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jamillusions

Member Since 21 Sep 2010
Offline Last Active Sep 27 2010 06:59 AM
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Posts I've Made

In Topic: Positive Biopsy / Negetive Bloodwork

26 September 2010 - 08:17 AM

Thanks a bunch Nora. Much appreciated. I am trying to dig up my past blood work to check and see what those levels actually were...I am just completely confused....every doctor has always insisted I am not hypo...but I feel like every person is different and you cant go by the ranges, because for years I have felt like I am...I pretty much could check yes to every symptom.

Thanks again

In Topic: Positive Biopsy / Negetive Bloodwork

24 September 2010 - 06:37 PM

Honestly I have thought for years that I have had a thyroid issue, my body went wacky when I turned 30....I gained a lot of weight, hair loss...increased depression...etc. I have been seeing a endocrinologist for over 5 years, she NOT ME...insists that I do not have a thyroid problem with my levels, my testosterone was elevated and therefore she diagnosed me with PCOS and for the past 2 years my test levels have returned to normal.

In June my TSH was 2.3 (.450-4.50) and my T4 was 1.22 (.82-1.77) I was told they were normal......

My GYN just did them again on this past blood work that I just had...she again like my endo said I was in the *normal* range...I will post them when I get them, requested that all of my BW be forwarded to me today.

Thank you both again. I appreciate your input greatly.

In Topic: Positive Biopsy / Negetive Bloodwork

24 September 2010 - 08:40 AM

Thank you for responding. I have my thyroid levels tested every 6 months because of the PCOS, and they are always normal.

In Topic: Positive Biopsy / Negetive Bloodwork

24 September 2010 - 05:44 AM

Thanks mushroom yes I think so too. I do have an appointment with a dietitian next week, going to see if she can point me in the right direction. I have been gluten-free starting this past Monday.


Thanks as well Soph. Yes I am well aware I am going to have to find a better doctor. This has all been thrown at me within the past 2 weeks. So I am extremely overwhelmed. And all that I have read on here is just overwhelming me more.

I have been talking to my GYN for about a year now regarding the hysterectomy. I have terrible periods. along with mega blood loss, I have lots of pain. So that was just not thrown out there just because of the anemia, I think she believes from just viewing my results and not knowing completely of my possible celiac rx, that it is occurring from my periods and possible fibriods (which were found on a CT scan I had in June, going for an ultra sound next week for conformation) along with undiagnosed endo. I am terribly frustrated and have been for years with doctors. I was diagnosed with PCOS by my endocrinologist in 2005. My testosterone levels were very high and I was put on metformin. About 2 years ago, my sugar was crashing all the time, my levels had returned to normal, so I discontinued the metformin, endo was fine with that and my testosterone continues to be in the normal range......????? So now she says I am insulin resistant/metabolic syndrome... My thyroid is always normal.

And yes my general doc is an idiot...I have an appointment with my GYN Oct 6....I am gathering all of my bloodwork and test from the GI and taking it to her, having her test all of the things you have mentioned. I cant tolerate the pill...so that is not an option to lessen the bleeding. I tried it about a year ago, was miserable on it, and still bleed heavy. If she provides me with no answers...and even if she does, I have started to look for doctors in my area that specialize in Celiac.

I have found it very hard unfortunately to find a doctor that will sit down and listen to you.

Oh on the hemoglobin and hematocrit ranges....

11.5 to 15 on the hemo, I am at 11

and

34 to 44 on the hema, I am at 33.2

So I am just below...

Thanks again.....and I too hope to get some answers or more understanding of all of this in the coming weeks.

In Topic: Positive Biopsy / Negetive Bloodwork

23 September 2010 - 05:13 AM

Thank you gf_soph!

I don't have my current labs in front of me. All I know are my hemoglobin and hematocrit levels that the nurse gave me over the phone from the GYN.

In June when I had a CBC my hemoglobin was 11.6 this time it was 11 and my hematocrit was 36.1 and is now 33.2. Which seems like a pretty significant drop over 3 months to me. No one has tested my iron yet...nor b-12 etc. I am going to insist to my general doctor when I go the 1st week in Oct to do so.....although he is extremely old school and doesn't think I could be a Celiac because I am over weight, nor does he believe in insulin resistance...which I clearly suffer from.

I am thinking perhaps I should find GI that specializes in Celiacs...??? I also have an appointment with the GYN again. I am a heavy bleeder, possibly endo...never diagnosed, and now possible fibroids. This past summer my periods have been out of control, I had also cut out meat and diary from my diet for 4 months in the Spring...thinking that may help stomach problems and high cholesterol. I am going to say since the end of Spring my hair has been shedding like crazy, and my stomach felt better for a while when off the meat and diary, then all of the sudden I was having pain, back to the bloating and gas....and that is when I had went to the GI...which lead to this.

I am just overwhelmed. I hate not having information, and then getting different information from each doctor, just leaves me confused. The anemia has me freaked out. Anyhow, I could go on and on...I too hope to find answers as well...thanks again for your input. It is much appreciated.