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jamillusions

Member Since 21 Sep 2010
Offline Last Active Sep 27 2010 06:59 AM
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Topics I've Started

Positive Biopsy / Negetive Bloodwork

22 September 2010 - 09:32 AM

Hi, I was just recently sorta diagnosed and now I am confused.

In May I was having stomach issues, more diarrhea/constipation than normal. Bad bloating, gas, stomach pain. I suffer from GERD so my general doctor chalked it up to be reflux flaring up after at normal ultra sound and CT scan (although not related my CT scan showed that I had probably fibroids)

Being the freak about my health that I am and not being satisfied with his answer. I scheduled to an appointment with my husbands GI. He switched my GERD med, and scheduled me for a endoscopy and a colonoscopy. The endoscopy biop indicated I had Celiac. Turned over villi and inflammation. I then went and had all of the Celiac bloodwork done.

Everything was negative. So now I am wheat and gluten free for 3 months and having the endoscopy done again at the end of the 3 months.

Is this normal? The neg blood work, but positive biopsy?

Also In June I had a cbc...everything was okay. Also having the issues with possible fibroid and my GYN just so happened to do blood work, CBC included at the time I had the blood done for the Celiac. My hemoglobin and hematocrit are low. Much lower than they were in June. The GI said I was iron deficient and told me to take an ovc iron supplement 3x a day....He also told me that people with Celiac do suffer from anemia. My GYN calls this week, telling me I am SIGNIFICANTLY anemic and wants me to really think about having a hysterectomy asap. I am a heavy bleeder...always have been...but I don't want to rush into surgery if the anemia is possibly related to being a Celiac....but I don't know if I truly have Celiac since the blood was negative. I am tired all the time, and my hair has been falling out like crazy.

Any opinions/advice/info would be appreciated. This is just too much at one time to handle. I have been mostly WG free since last week, and I can say I don't feel quite as bloated/gassy ....could be in my head..... ??????? :blink: I am just confused...and lost.

Thanks

J