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Member Since 22 Sep 2010
Offline Last Active Dec 29 2010 04:05 PM

#656287 Cross Contamination: Reason To Worry This Much?

Posted by on 25 November 2010 - 04:13 PM

I would advice you not to concern yourself with CC at this stage. Going gluten free, is enough stress to start with, without adding in extra complications.

Avoid gluten, read labels properly, eat healthily.

If you randomly get more sick, then maybe consider CC.

I don't give a hoot about it right now. I hope I never have to. I don't want to live my life in fear, which is what I consider those who have to worry about CC, are doing. I don't envy them, that's for sure.

I'm hoping my sensitivity is much less server.
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#655776 So Confused. Celiac Or Not

Posted by on 23 November 2010 - 03:19 PM

Thanks Mushroom, though I feel reluctant to ever go back to the Dr's again. I think I'm going to go private.

Iynnelise, you're right. I accidentally eat gluten in a sauce, and within an hour I was in agony and had terrible diarrhoea.

I figured eating a whole big mac, would be such a big dose I'd be a lot worse.

All so confusing.
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#655745 So Confused. Celiac Or Not

Posted by on 23 November 2010 - 01:26 PM

Hi Patti, I do. But apparently my B levels and Iron are OK. But I take B vits, Multi vit, Iron, Fish oil, Pro Biotics, digestive enzymes.

Googling makes me feel like a hypocondriac. But I was just researching adrenal fatigue. Which I suspected because when my adrenaline kicks in, before a race, exam or whatever, my arms and legs go numb and I feel extremely light headed and almost lose all feeling in my body. It's always felt extremely over reactive.

Symptoms are:

excessive fatigue and exhaustion
non-refreshing sleep (you get sufficient hours of sleep, but wake fatigued)
overwhelmed by or unable to cope with stressors
feeling rundown or overwhelmed
craving salty and sweet foods
you feel most energetic in the evening
a feeling of not being restored after a full night's sleep or having sleep disturbances
low stamina, slow to recover from exercise
difficulty concentrating, brain fog

Also often have hypoglycemic feelings where I NEED sugar. i go light headed, shake and feel weak. Eating sugar quickly resolves it usually.

All of which I experience. Not sure I want to approach my Dr, for tests. As he looks at me like I'm crazy. He somehow doesn't feel the need to get to the bottom of this.
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#655731 So Confused. Celiac Or Not

Posted by on 23 November 2010 - 12:21 PM

Thanks guys for the replies.

From what I can find online, Biocard is very accurate. As accurate as the lab tests.

Elimination diet I stopped, as I just wasn't eating. I figured it was healthier to at least eat. I'm still gluten free, minus the Big Mac.

I have been tired now since I was 13-14 so we're talking 16-17 years. I struggled all through school, with constant tiredness, often just day dreaming or trying to fall asleep with my head on the desk. I was told that's normal for teenagers, though none of my friends had the same issue. No tests were done.

I have gotten progressively worse I'd say. Right now, I feel as though I've been drugged. My brain just feels completely underpowered. Brain fog is horrific.

I do often have diarrhea but I've not actually been to the toilet since I eat the big mac over 24 hours ago. Strange.

I also have a horrific headache right now. I feel like lost cause.
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#653448 It's Easier To Just Not Eat

Posted by on 14 November 2010 - 05:49 PM

I'm going to reply properly tomorrow, it's 2am here in the UK.

But I do want to say, you're all freaking awesome, I feel a billion times better after reading all of your posts. And I'm so grateful that you've all taken such time and thought to reply. <3
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#649692 Tip: Finding People In Your Area

Posted by on 27 October 2010 - 07:03 PM

Hey guys, I just wanted to share this tip, for those of your who don't already know how to use it or that it exists.

Checkout the members page http://www.celiac.co...iew&module=list

You'll see a button, that says Advanced Search. Click it and you'll see tons of ways to filter members. One of them is via Location. So for example you could find everybody in England or Austrailia or narrow it down to your particular state i.e California.

It could be a useful way to find other Celiacs in your local area.

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#649087 Survey For People With Celiac Disease

Posted by on 25 October 2010 - 04:38 PM

1. Sex: Male
2. Age: 30
3. How long ago were you diagnosed with celiac disease? 4 weeks
4. Does anyone in your family have celiac disease? Not that I'm aware of, suspect it in my mother
5. How severe is your celiac disease? I really don't know how to gauge it. But it causes server fatigue.
6. Is it difficult to eat out at restaurants or anywhere outside of your home? I'm not healed yet and so it's hard for me to tell whether CC has taken place.
7. Do you believe that there should be more to be done to make this disease more aware to the public? Yes. I'd not have known it existed, if it were not for my own research. My Dr never mentioned it.
8. How has this disease impacted your life? Quite severely. I've been extremely fatigued since my early teens, it's held me back massively. Despite being successful, I know I'd be doing better, if it were not the fatigue.
9. What do you think would make celiac disease easier to deal with? Better, clearer labeling of foods. All foods should state clearly whether or not they are gluten free. This product IS gluten free or this product is NOT gluten free.
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#648479 Reputation

Posted by on 23 October 2010 - 03:38 AM

Loey, reputation is earned or lost, when members click the + or - under your posts. You basically earn reputation by being helpful.

So for example, you could click the green + on my post, for my invaluable advice haha! :D
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#647866 Friending

Posted by on 20 October 2010 - 04:13 PM

Yeah, not much. You can view your friends though, from your profile.

Also when starting a new Private Message, it makes sending to friends a little easier.

In later versions of this forum software, it's more powerful. Allowing you to easier see friends updates and activities.

I hope they upgrade the board soon, to the latest version.
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#647705 Had The Most Annoying Dinner Last Night

Posted by on 20 October 2010 - 06:43 AM

Sorry to hear about your dinner.

But really, you gotta try address the way you allowed yourself to feel about something, which is nothing to be embarrassed about. Though well done for not making it obvious. I cant believe they all went quiet when you ordered.

Honestly, It maybe they didn't understand and so watched curiously. But whatever their reasons, don't be embarrassed by an illness that's out of your control.
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#646927 Dictating What Others Can Eat Around Me?

Posted by on 17 October 2010 - 10:07 AM

I personally don't believe you can get "Glutened" by smelling it. Though I'm sure if there's a lot of ground wheat particles in the air, it could have an effect.e

I think perhaps you have more wrong with you than just Celiacs and thus a gluten free diet isn't making you 100% well.

I'm finding it more and more obvious that those with celiacs, are blaming gluten for each and every time they feel sick.

If it were true, and being around foods with gluten in it made me sick. I'd rather be sick for the rest of my life, than live my life by such extreme restrictions.
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#646187 Suggestion

Posted by on 14 October 2010 - 06:26 AM

I just accidentally, negatively repped my own post from my iPad. Oops. I'm guessing I can't undo that? Ha
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#646100 Suggestion

Posted by on 13 October 2010 - 05:25 PM

It's likely an option in the admin panel, as to whether to show it or not. I'm not suggesting we give exact locations, just the country the person lives in. If some members had an issue, then perhaps an option to hide their location.
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#646094 Suggestion

Posted by on 13 October 2010 - 04:52 PM

Hey guys,

Loving the forum, it's an awesome resource.

I notice we've quite a diverse crowd here, though I'd say predominantly US based. Much of the advice I received in a particular topic, was aimed at those in the US.

I'd find it extremely useful, to have specific location based forums, especially for gluten free foods and ingredients. I realise there is a forum (Gluten-Free International Room (Outside USA)).

My suggestion would be to have a main forum, called "Gluten free foods and ingredients" and then have "UK, US, Fr" etc as sub forums. By breaking it down to counties, it will be much easier to seek advice from those in our own country, but also create a local database, to help us better find gluten free alternatives.

Also would it be possible, to show our country in the profile field of our posts? That way, at a glance, we can easily see where our fellow posters are from, which may help us better help one another.

Thanks for listening.

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#645556 Rice Bloody Krispies

Posted by on 11 October 2010 - 06:15 PM

thanks guys, they're officially ditched. Vie purchased some gluten free corn flakes. Wow the gluten free alternatives are 3x the price here for 1/3 the amount. What annoys me, is that keloggs have a great opportunity with corn flakes and rice krispies, to make them gluten free, I'm certain the barley extract isn't essential. Its a big shame.

I might even write to them, it's worth a shot.

You're right, this is certainly an adventure alright! I'm glad we've got places like this to share our experiences and wisdom.
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