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Member Since 24 Sep 2010
Offline Last Active Dec 22 2013 11:15 PM

Posts I've Made

In Topic: No Test For You!

15 September 2011 - 07:05 PM

With a TSH at 0.1 and still hypothyroid symptoms I think you need to ask for an endocrinologist referral. If she refuses that, insist on a second opinion within the practice group you're seeing. Ditto the celiac testing.

If all else fails, I think you can get a Canadian home celiac test kit shipped to the US.

Yes, I have thought of that. I'm going to check with my insurance to see if I have to get a referral. If not I may just go on my own.

Can Americans buy the celiac home test? I've seen the web site before and IIRC it says they only ship to Canadian addresses. I'm in Detroit...I wonder if I can get a Canadian PO box. LOL ;)

In Topic: No Test For You!

15 September 2011 - 07:03 PM

Have you thought of going to another doc? I liked mine too but some things he was saying made no sense kind of like your post. What kind of thyroid issues are you having? Are you on meds? I have a nodule on my thyroid that I take meds to try and shrink, have to go back in Nov for retesting. I too still have symptoms and wonder if my meds are not working and wonder if my original tests were accurate. I see a new doc this next week.

The best chance of having positive test results for gluten intolerance or celiac is while you are on gluten so if she is suggesting you limit glutens it makes no sense that she would run the tests. How frustrating! This is where we run into so many brick walls that we finally have to make a decision what is best for ourselves. You could do an elimination of say breads and pastas for example, there is plenty of gluten left in crackers and other snack foods without going totally gluten-free and see if that makes a difference. That is actually how I found out gluten was my problem. Doing this for 2 months in itself would probably give you your answer. I did it for 3 weeks and I knew.

Are you still consuming dairy while on the Lactaid? I take it too as I am also dairy intolerant, however, even with the pills I still cannot have any milk, not even coconut milk. I can only have aged (hard) cheese and some yogurts, anything that is aged. Could the dairy still be making you sick?

Yes, I am on Synthroid. Currently I'm taking 225 mcg. I had been taking 250 before the latest test, but apparently that was too high. I was tested for Hashis years ago and it came back negative. I had to fight to get that test done, too.

The Lactaid really helps with milk. I love my milk and I would be devastated if I couldn't have it any longer! It has been a godsend. I can drink my milk without any issues. :) I take the tablets because the lactose-free milk is too sweet-tasting and too expensive!

In Topic: New Symptom; Doctor Won't Test For Celiac

16 April 2011 - 04:46 PM

No, sadly those are the real numbers. When it was 398 my doctor told me she didn't know how I was functioning, but I don't know that I was. I was severely lethargic, depressed, my skin was horribly dry, my hair was falling out, among other things. I was between doctors at the time, didn't have insurance and was out of work, so I didn't have money for testing or meds. I think I was off my meds for two years. Even at 117 it's not so bad, although I don't know if I'm just used to the way I feel. I was diagnosed as hypothyroid in 1989 and it's hardly ever been where it should be. It'll go down to the 2 or 3 range and stay there for a little while, then starts creeping up so at my next appointment my doc has to increase my dose. The best I felt was when it was around .5, but my doctor told me that was too low and lowered my dose, so of course it went up. I was such an uninformed patient at the time.

Anyway, about the diarrhea - I had two good days and then last night it came back. I went out for the day with a friend and I ate restaurant food, and as much as I really really (really) wanted the buffalo chicken sandwich, I settled for grilled chicken sandwich - chicken breast, lettuce and tomato on a bun with some kind of sauce (not mayo). Later I had soup. On the way home I started getting the rumbly feeling in my tummy and sure enough, when I got home, I had diarrhea. I had it twice last night and twice today. It seems to have settled down now but if this is just a temporary lull in the action, my doctor's getting a call Monday.

A friend of mine suggested I get a second opinion and get tested for celiac, without even knowing of my suspicions. My chiropractor suggested I try a gluten free diet and see how my body responds, but if I'm going to get tested I might not want to do that just yet. With my lactose intolerance, she said it wouldn't be surprising if I at least have a gluten sensitivity. I have goofy insurance so I will have to wait until the bills from this illness have been paid before I can even think of getting more tests done.

In Topic: New Symptom; Doctor Won't Test For Celiac

13 April 2011 - 03:57 PM

Oh, one more thing that I forgot - my TSH level is 117, which is WAY high. It's alwlays high - at one point several years ago it was 398. I honestly don't remember the last time it was within normal range. Doc upped my Synthroid dose to 250 mcg and wants to see me in 3 months. To the best of my knowledge I do not have Hashimoto's, just hypothyroid.

But my blood pressure is excellent. :)

In Topic: New Symptom; Doctor Won't Test For Celiac

13 April 2011 - 03:43 PM

Well, all my tests came back negative - no virus, no infection, no salmonella or other food poisoning. Nothing. My doctor simply has no explanation for it. She told me to continue taking the Prilosec and the fiber supplements, stay away from dairy and keep eating the BRAT diet until I'm feeling completely better.

Today is the first day I actually feel close to normal. Had some d this morning, but there is more, ummm, *solid* content to it. In other words, it's looking more like poo than yellow fluid with a few small chunks. I made it through the entire work day without having to run to the bathroom! My stomach is still doing the rolling and gurgling, but definitely not as much as even two days ago. I think another few days and I'll be back to what serves as normal for me.

I asked about celiac testing again and she said that it's "highly unlikely" and that testing is unnecessary. Since I've incurred a slew of new medical bills, I am going to ask to be tested again when I go back in a few months to have my thyroid check up, because I do think something's going on. I always have digestive issues and while discovering my lactose intolerance and taking lactaste tablets before drinking my daily glass of milk or eating dairy has helped immensely, I don't think that's all it is.

Thanks for listening and for all your help! :)

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