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Bobbie Jo

Member Since 25 Sep 2010
Offline Last Active Jan 26 2013 07:03 PM
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Posts I've Made

In Topic: A Newbie With Lots Of Questions!

09 July 2012 - 09:39 AM

So I think an angel can come from above and tell me she is not celiac and I would stick to this diet no matter what. Her pediatrician says I'm a littlebit crazy and stuburn because my daughter was "perfectly fine" "there's nothing wrong with her" but NOW I can say that, NOW THAT SHE'S GLUTEN FREE :)


LOL! My kids' docs thought I was crazy too. Funny thing though - now that they see how well the kids are, they are supporting us. They are human and trained in their ways. But honestly, I think too many moms underestimate their wisdom and instict when it comes to their kids. So - don't cut yourself short. You are abnormal for not taking the doctors strict advice and going out on your own for answers.

By the way - you can make fantastic pizzas with gluten free crusts. And if I don't have crusts on hand or the time to make one, I keep tostadas on hand if the kids have like a pizza party to go to, and I just put cheese and pepperoni on top of those. Not the same as a pizza but better than nothing.

This cookbook saved my sanity in feeding my family: "Recipes for Gluten-Free fun eats from breakfast to treats" Lots of kid tested food that are pretty simple to make.

Have a great day in the Caribbean!

In Topic: Sending gluten-free Kid To Camp

08 July 2012 - 05:20 PM

Camp went GREAT! I called the kitchen ahead of time and they actually were trained in how to handle gluten free diets! They even told me how to pack his food. It was expensive - I spent about $170 on gluten free foods for a week, but - they were mostly prepacked, meal sized and microwavable. I got a list of the menu and tried to pack food similar to what other kids were eating. I labeled it in a baggie which meal was for what day and mealtime, then I stored everything perishable in an icechest with dry ice.
Kids at camp were jealous of the foods my son was eating (especially the precooked ribs that I packed), and saying "I want to go gluten free too!")
I even put in some gluten free graham crackers for smores, which my son said was okay.
The only thing he said that didn't work were the gluten free hamburger buns that he said just crumbled.
This camp, by the way, is Kanakuk in Missouri, if anyone is interested in sending their child to an awesome camp where they really care.
Pricey camp, but worth every penny.
Thanks again Victoria and Googles for helping me get serious about this and the tips!

In Topic: A Newbie With Lots Of Questions!

08 July 2012 - 04:58 PM

Hi Alexa!
I'm glad your daughter is better! And GOOD FOR YOU MOM for tracking down some causes. You must love her a lot, and you've saved her from likely YEARS of sickness, poor performance, and even early, painful death.


I also have a 10 year old daughter who is gluten free, as am I and my 12 year old son.

Lots of sage advice on here from people who have been at the diet a lot longer than me, but I will tell you that I wish we had done endoscopy testing to get an official diagnosis. It would be nice to say "we have celiac disease" and know it's official.

Why:

- #1 Reason: We would have an official diagnosis to now sound the alarm and pass this information down to future generations - to say, "YES, we have this DISEASE in our family and you may too". Otherwise relatives just don't seem to take it seriously. And people may say.. "yeah.. grandma jo was allergic to something..."
Since I've had two grandmothers on the fraternal side die, one of stomach and the other of intestinal cancer, and an uncle now very ill with stomach protein problems.. I take this seriously.

-#2 Reason: Other people, like friends, school, waiters, etc, also seem to understand better when you say "disease", thus making life easier instead of saying "we're allergic to wheat". ( This is getting better though since more people being diagnosed these days and info spreading). Not that I care what people think, but if they have anything to do with food around my kids, I want them to take it seriously.. to know that yes, you can't set the sandwhich I packed my kid to eat at your house on the cutting board where you just made your kid a wheat PB&J. Now - most people do care, and try,... but it takes just one self-focused idiot who doesn't care, and ruins my daughter's next two days getting over being glutenated.

So again - great job, and it's so nice to know that something as simple as taking gluten out of your daughter's diet is changing her life. It's worth it, and life will get easier for you as you get used to this diet.

Let me know if you ever need any tips on feeding hungry gluten-free kids on the go! We eat a lot of corn quesadillas with meat, cheese, whatever.. beans.
More info and tips in my profile.

God bless!

(PS - And for those who suggest I just lie and say we have Celiac Diease - I tried that, and first - my kids know I'm lying, because truly we don't know that, we just know gluten makes us sick, and secondly - people then start asking all of these questions, and if they ask about testing I'll have to backtrack and explain all of that! And I'm a terrible liar. And .. I do not feel led to subject us to eat gluten for weeks to then get the endoscopy. Maybe me at some point, but not now.)

In Topic: Sending gluten-free Kid To Camp

29 May 2012 - 09:34 AM

I'm getting worried:( Will think thru all of this.
His symptoms are not as bad as mine and my daughter's, he gets more tired than anything if glutenated. Still, it would take away from the fun.
Thanks for these tips though. Being the adventurer he is, he's got to learn to travel and eat gluten-free, like you do Victoria. And thanks for the camp counselor viewpoint Googles.
If he was very sensitive, I would not send him. It looks like I will just need to pack a lot of food.
Thanks again.

In Topic: When Glutened...

28 May 2012 - 07:49 PM

I always give my kids tylenol when we get glutenated. It seems to help, along with lots of water.
I've read 1% of people will get our diet, and we are to worship the ground they walk on.