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Bobbie Jo

Member Since 25 Sep 2010
Offline Last Active Jan 26 2013 07:03 PM
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#809621 Sending gluten-free Kid To Camp

Posted by Bobbie Jo on 08 July 2012 - 05:20 PM

Camp went GREAT! I called the kitchen ahead of time and they actually were trained in how to handle gluten free diets! They even told me how to pack his food. It was expensive - I spent about $170 on gluten free foods for a week, but - they were mostly prepacked, meal sized and microwavable. I got a list of the menu and tried to pack food similar to what other kids were eating. I labeled it in a baggie which meal was for what day and mealtime, then I stored everything perishable in an icechest with dry ice.
Kids at camp were jealous of the foods my son was eating (especially the precooked ribs that I packed), and saying "I want to go gluten free too!")
I even put in some gluten free graham crackers for smores, which my son said was okay.
The only thing he said that didn't work were the gluten free hamburger buns that he said just crumbled.
This camp, by the way, is Kanakuk in Missouri, if anyone is interested in sending their child to an awesome camp where they really care.
Pricey camp, but worth every penny.
Thanks again Victoria and Googles for helping me get serious about this and the tips!
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#656693 Newbie In Need Of Advice

Posted by Bobbie Jo on 27 November 2010 - 08:00 PM

We are basically eating the same things.


Bella - When I say we are basically eating the same things, I mean the same things but gluten free. Like, instead of Rice Crispies (which to our shock has malt flavoring) my son eats Rice Twice which we get at our local grocery's speciality section, and it's at the health food store. We also eat gluten-free waffles, of course gluten-free bread, and we have tried frying chicken in some brown rice crumbs. Wasn't that great. Potatoes chips work for that. But we liked best - the fried chicken in the gluten-free pizza crust mix. Again - not helping you on the fat free thing! But we do that about once every 6 weeks or so.

My biggest struggle was what to pack the kids for lunch and eating out. But trial and error, we've figured it out.

We do a lot of smoothies, and I add some really good gluten-free protein mix to it for me.

Tacos are a staple. Taco Bell is a frequent stop. I eat a lot of salads with balsamic vinegar/oil dressing. For our pizza fix, we buy the frozen gluten-free pizzas at the health food store. When in a real scramble I always have on hand Tinkyada pasta, Amy's gluten-free sauce, also Frito chips and Hormel Chili WITH beans. Without beans is not gluten-free.

We actually think the gluten-free life is better. Some things taste better, plus we're eating healthier (except the many bad examples I told you about).

Oh - my 8 yr old daughter and I started a tradition after being glutenized. We go to the local chinese place (Pei Wei) and have a bowl of rice. We just had to do that after Thanksgiving :)

Have fun on your new diet! It's an adventure.

Honey Nut Rice Chex got me through my first few weeks too.

OK - that's it. Bye!
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#655245 Need To Vent

Posted by Bobbie Jo on 21 November 2010 - 03:20 PM

I seriously feel for you. I am so sorry .. for your cat too!!!

I was just reading an article on the main page of celiac.com today about how few people understand us. You should read it for laughs - it's the one by Danna Korn. She basically says that .01% of the population get us and will try to help us - and that if we find those people, worship the ground they walk on.

I am sorry about the spelling test situation. I have a 3rd grade girl with the same thing, so I know what you are talking about.

This day will be over.

Pulling for you!
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#650129 To All The Veteran Post Authors

Posted by Bobbie Jo on 29 October 2010 - 09:05 PM

I can't thank you all enough - the people who have posted hundreds of time on this site, the ones who have written books, created websites, children's books, made zillions of phone calls to companies... My family and I are reaping the benefits of all of it as newly diagnosed gluten sensitive, possibly Celiac Disease people.

More than once I have been brought to tears as I have read your encouragement to others, your years of being undiagnosed, and shared with you the frustrations of dealing with doctors who just don't get it and make us feel less than what we are.

And it all began because of Carol Sidofsky, a wise former nurse, who I met online (her website below), and who encouraged me to consider that my repeated bouts with vocal cord dysfunction, diagnosed for years as asthma, was triggered by gluten exposure. Especially since I almost passed out in a pizza place from a coughing attack. Carol's persistence broke through my denial. Through diet elimination for me, and Enterolab testing for my kids, we have a diagnosis and an explanation for decades, actually generations, of stomach cancers, IBS, strange rashes and my sweet 8 year old girl who has had a bloated belly all of her life.

I am so relieved that I do not have to suffer this alone, as so many of you have before this site and other support systems like it were created.

Anytime I have a question, I just type it in the search engine, and you all have hashed and rehashed it over, leaving a legacy of advice, support and encouragement. It has been a lifeline for me! Especially since my kids' pediatrician and my asthma/VCD doctor do not support me at all.

After only TWO months gluten-free, my kids are not the same. My 10 year old son has energy he never had. My daughter is actually paying attention in school and coming home with a score of 102 on her spelling tests - she never did that. She's done that 3 times now. Her memory is just sharper. They are remembering things I tell them to do - shocking! My son was always labeled "absent minded professor" by teachers, and he drove us nuts with his fading away. But that is going away! He's emerging as a different little boy! More attentive, more engaging, more light in his eyes. My God - this amazing.

And just this morning, I noticed my daughter, who is unusually short, looked taller. I took the kids to their growth chart to measure them, and they each had grown one inch in just 20 days!!! They were smiling like it was Christmas.

Do you realize what all of your work, attention and care mean? You are helping to break GENERATIONS of problems. You are saving lives! Improving lives! I know you all know this, but you could just go on your merry way and keep all info to yourself. But instead, you answer the questions of newbies, the same questions, again and again and again. Thank you! Thank you to Scott for starting this website!

We got some gluten-free books in the mail yesterday and the kids ripped open the box and each found a quiet place to sit and absorb everything. The "GFKid" even helped prepare my son for what candy he could and could not eat for trick or treat night tomorrow. And a book about a little girl named Emily with Celiac Disease enthralled my daughter, and we even took the book to school today and read it to her 3rd grade class.

And Danna Korn - I got her book today about her family's journey. When I read the part about not needing to take out a third mortgage to feed my children I just broke down and cried. Thank you Danna.

And thanks to those who have posted great ways to live gluten-free on a budget.

Okay - I am starting to sound like an award show.

Just thanks you all.

Before all of this, I had told my kids we would reintroduce gluten after 3 months to see how they would respond. They had been carefully planning their gluten (glutton) day. But now, there is no speaking of it. They know how much better they are doing.

Keep up the awesome work - especially the ones who have like.. thousands of posts listed under their name!!!

God Bless.

Here's to the gluten-free Life - long live us all, happy and healthy, and actually blessed for eating foods better for us anyway. The gluten-free Life is a good thing!

Carol's site that I first went to as I researched my doctor diagnosed Vocal Cord Dysfunction:
http://cantbreathesuspectvcd.com/
We love Carol!
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#642363 All 3 Kids Diagnosed

Posted by Bobbie Jo on 27 September 2010 - 07:21 AM

For lunch, here are some ideas:

Soup or chili or leftovers (spaghetti, stew, etc.) in a thermos. I heat up HOT water and pre-heat the thermos and then dump out the water and then the thermos stays hot until lunch. Make a pot of soup or stock up on soup on sale (Progresso Southwest Chicken/rice, wild rice/chicken, regular chicken/rice and Beef pot roast are gluten-free last time I checked - read the label and stay away from the "light" versions. Hormel Chili) Target has Progresso on sale a lot.

Some real gluten-free stuff is expensive so I try to make it a treat or add it to regular items to lower cost.

Tortilla chips and salsa or tortilla chips and hummous. Mission, Santitas or Doritos(original flavor -check label) are gluten-free last time I checked. Put chips into sandwich baggies.

Craisins or raisins - make trail mix with craisins, almonds, chocolate chips.

Applesauce, pineapple chunks, mandarin oranges. Get big size at Costco or Target and divide into small containers.

Envirokids cereal bars, lara bars, KIND bars or make your own.

Chex mix - homemade. See recipies on side of box. Add glutino pretzels or Ener-G pretzels.

Make muffins and freeze ahead, then put in lunch. Will thaw before lunch.

Small packs of peanuts.

The good thing about these as they all look pretty "normal" so if your kids don't like to look different, they won't.

Good luck.
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#642103 All 3 Kids Diagnosed

Posted by Bobbie Jo on 25 September 2010 - 10:37 PM

Thanks everyone for your replies to this amazing mom and wife.

My kids and I are also newly diagnosed, so the tips were VERY helpful. I also have been freaking out over the lunch issue. It's usually late at night as I gaze into my pantry wondering what in the world am I going to put in those empty lunch boxes staring at me. A tip I read that I'm trying to incorporate is to cook extra portions of the dinner meal and then use those for lunch.

I am so grateful for the tips on saving money. I took the kids to our local version of "Whole Foods" and $200 went way too fast. However, it was worth it, because the kids were very encouraged to see what they could eat. We just have to figure how to make at home, or splurge on those special things - like the Knnickuck (sp?) animal cracker cookies!!!! They taste like vanilla icing.

My kids are 8 and 10.

One other tip that was very reassuring to all of us concerning birthday parties - make and freeze cupcakes and gluten-free pizza. When it's time to go to a party, defrost and let the kids ice the cupcakes.

Thanks again to the mom who posted the question, and for everyone being so generous with your advice.
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