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Noni

Member Since 27 Sep 2010
Offline Last Active Aug 01 2011 04:30 PM
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#692706 Desperately Needing Some Answers, Please!

Posted by Noni on 16 April 2011 - 03:01 PM

1. Although Frito Lay has a long list of stuff that is gluten free most is produced in a shared facility and the risk of CC is high. If you go to their gluten free list they do state that at the very bottom. The only products of thiers that haven't given me off and on CCings are the plain chips and Fritos.
2. Yes Rice Krispies and the treats have gluten. They use barely malt. I heard they may be coming out with a gluten free rice crispies though I don't know when and it will say gluten-free on the box. Chex cereals are gluten free.
3. I like Udi's and it is often on sale for about $3.50 at my local Wegmans. I also like Grainless Baker and Kinnickinnick will do if they are out of the others. Kinni also makes a 4 pack of pizza crust that I find nice to keep on hand. Kinni stuff is available by mail order but it does have to be kept frozen until used. I've never checked to see if the Udi's and GB can be ordered in bulk but maybe someone else will know.
4. I don't know about mail order entrees but at a larger Wegmans close to me they have a selection of Glutenfreeda items. I buy the burritos and those are about $1.79 and with a bowl of rice they make an okay meal. Dinty Moore Beef stew is another staple that is pretty cheap, the ones in the can are marked gluten-free. I also get Jimmy Dean's Breakfast Skillets with potatoes, peppers and onions and either sausage or bacon. They are about $5 a bag and for one person will make up to 4 or 5 meals. They come in a bag and you brown them and add a scambled egg.
I also do a lot of rice and beans and veggies or make a meatloaf and freeze part for another day. Amy's does make some gluten free dinners but some of us have had issues with CC with them.



Thank you for an awesome reply. I truly appreciate it.

I really thought Doritos had Gluten, my sister tried telling me they didn't. Her 4 y/o has celiac and she's letting her eat Doritos.
She claims their website states they are gluten-free. I couldn't find it online. :(
Thanks for clearing it up. I know several of the variety' clearly state they contain wheat.

Thought I should share this info with all of you:
MY ONLY GROCERY STORES are: KROGER, IGA, WALMART SUPERCENTER.
Not much variety, ha ha!
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#654342 Need Information Quickly Please!

Posted by Noni on 17 November 2010 - 08:03 PM

Hannah couldn't have gotten the celiac gene from you because she is not your child. It means your sister is probably also carrying the genes and needs to be tested. Your parents should be tested as well.

Hannah almost certainly has celiac if both those tests were high. If your sister doesn't want Hannah to have the endoscopy, she needs to talk to the doctor about getting a diagnosis without it for school. Also, gluten free might help her Asperger's and your sister should consider casein-free as well. A lot of autistic kids do better off both.


Thanks so much for all the advice. I truly appreciate it. Will definately find a way to pass the info on.
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#654336 It's Easier To Just Not Eat

Posted by Noni on 17 November 2010 - 07:40 PM

Hang in there Noni,

I know how bleak it must seem with how expensive it is to follow a gluten-free diet. Maybe we can get together a collection for you from the forum. I'm unemployed but feel very blessed that my husband currently has a good job. If there's anyone out here who wants to lend a hand I'd be happy to organize it.

Loey


That's so sweet of you to offer! No one else has even commented on my reply. I really, truely appreciate you compastion. Thanks so much.
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#653487 It's Easier To Just Not Eat

Posted by Noni on 14 November 2010 - 10:12 PM

:( I can hear where you coming from about "I'd rather not eat" but......be thankful you're not in my situation. I've written in several times for advice on what to eat & received some good ideas. As you said, I've ran out of ideas on what to eat. The choices really are limited unless you have alot of money to spend. Even the natural whole cooking costs money. Face it!
Therein comes my circumstances. I've just went through a divorce, live alone on a fixed income. I can't afford the food everyone has recommended. As things are, (very difficult), it takes all my money to pay my basic bills. I'm only receiving $36 a month for food! They say I make too much! Didn't know $800 was so much.
So.....with $36.....I won't buy the usual cheap food, its all gluten. I get free food from churches but it's usually gluten.
So I'd rather not eat! If I do, I will be in misery from the crohn's or the celiac disease. Right? Right!
There is a good part! Just had my antibody done. For the first time since 1994.....I'm gluten-free!!!!!!
I'm happy!
Have lost 60lbs, that's ok with me. Just wish I could keep my blood sugar up.
So, be thankful that you can buy food. Don't be so picky.
I would eat anything gluten-free......if I could afford to buy it.
Have a good one!
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#653478 Gluten Free Pasta

Posted by Noni on 14 November 2010 - 09:36 PM

We have had very good results with the Tinkyada brown rice pasta. We weren't as impressed with their white rice pasta.



Where would I find this at? The area I live in doesn't have any gluten-free food shops! Thank you.
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#652093 Canker Sores

Posted by Noni on 09 November 2010 - 07:26 AM

Hello All!
I'm so relieved to find this post! I've suffered with Canker sores and "THRUSH" for years. To my dismay, it took years to convince my DH dr. to acknowledge to connection between my celiac disease and the mouth break-outs. Still, they will not treat me for it. Whenever I can get it prescribed, Diflucan clears it up immediately. Here's my question for all of you: Ever heard of a good home rememdy for Thrush?
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#651568 Need Information Quickly Please!

Posted by Noni on 06 November 2010 - 09:57 AM

There is also great information on the main site. Send her to http://www.celiac.com/. Right in the middle of the front page, there is a series of links on the gluten-free diet.

As for the endoscopy, your sister needs to find out whether the doctor will positively diagnose celiac disease without it. Your niece will likely need doctors notes for school, especially if her celiac is severe enough to have positive bloodwork that young. If she was positive on anti-endomysial IgA or anti-deamidated gliadin peptide, she is almost certainly celiac as those two tests are about 98% accurate. Some doctors still want the "gold standard" of a positive biopsy, and they also want to get an idea of how bad the damage actually is. Bloodwork and villous damage are not very well correlated. If the result was anti-TTG (tissue-transglutaminase) she does need the endoscopy to rule out other problems because that test is less specific. Also, endoscopy isn't just for celiac. Your sister can talk to the GI doctor and see if he has a suspicion of any other GI problems and his clinical experience is suggesting he should have a look.

Celiac is genetic, so your sister and her husband need to be tested.

Thank you so much! I have Celiac Disease myself. Could Hannah (my niece), have got it from me? I also have Crohn's Disease. My feelings about the endoscope are that the doctor only wants to do it because he is a "Gerd" specialist. The blood test he ran was the 2 you named. He stated they were extremely high results. His words were: very abnormal for a child her age. My concern with getting the diagnosis in writing without the endoscope is great, as he has a strange personality. When we took her in, she had been vomiting for 10 days straight.....he did nothing, offered no remedy. She also has had either loose green stool or diarehha. I wasn't impressed with him. Hannah cries daily that her belly hurts.
I've tried for a while to get my sister to start her on a gluten-free diet, as Hannah has Asperger's Syndrom. It took the trauma of the ER visit and the doctors visit w/ blood work to get her attention, sad! I'm Hannah's support system right now. Thanks for writing, please keep in touch. Noni
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#651564 Need Information Quickly Please!

Posted by Noni on 06 November 2010 - 09:43 AM

Here is the link to the main forum page:
http://www.celiac.com/gluten-free/

'

Thank you so very much!!!! I appreciate it more than you
could know. She will be so happy. Noni :D
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#651558 Need Information Quickly Please!

Posted by Noni on 06 November 2010 - 09:20 AM

To all the wonderful people I've met on this awesome site!

Since joining, you've all been so supportive and helpful to me that I'm coming to you today for help again. Here's the situation:
I have a 4 y/o niece who has suffered with stomach issues since birth. These problems have become severe. We took her to a large children's hospital this week where they ran blood work on her, an a stool specimen. The specialist just contacted my sister to inform her that the blood work was extrememly abnormal; says it shows Celiac Disease.
However, he still wants my niece to have an endoscope. The doctor claims the blood test is without doubt. I have no clue about how the accuracy of the blood test. We don't see why she should have to endure this invasive procedure. She's been traumatized enough.

Another main question for you: How can I send a link to my sister so that she can join this website to get help on the "Gluten-free Diet". I don't know how to do that. Would someone please respond quickly so that she can be helped also? Thank you in advance.
Noni
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#651554 ? Advice Needed About 4-Year Old?

Posted by Noni on 06 November 2010 - 09:07 AM

Hi!

I've been a member of this site for a few months now and
love it. I have a question that I pray someone will answer
very quickly, please. My 4 yr/old niece just had blood work
done that came back highly abnormal, indicating Celiac Disease. The doctor stated the blood work left no room for doubt. I'm unfamiliar with this blood test. I would like for my sister to join this website for help and advice from all the wonderful people on here. Can someone please tell me how to send her a link to this site?
Also, if my niece's blood test was so definate, why should she have to go through an endoscope? Would appreciate feedback on this please.
Thanks so much. Noni

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#645894 Depressed Over Celiac, Need Help!

Posted by Noni on 12 October 2010 - 10:40 PM


Hello All!
It's been a while since I made a post on here, but I've been
tuning in, reading and paying attention. I want you to know I
took the good advice, positive changes have taken place. :rolleyes:
I wish I knew how to send this to everyone that has written to
me, but I don't. All I can do is hope it gets read. :unsure:

If you recall, at my last post I was sad, hopeless and very
sick. Well, I've done something about it and have news to share.

First I made a doctors appointment. I couldn't take the pain &
running to the bathroom every 5 min. Dr. checked me out,
ran tests,(he's very good doctor I might add).
I'm not happy with the test results, but its nice to finally know why
I've been hurting so bad and know whats going on. He told me I have
"Crohn's Disease"!
My tests also showed abnormalities with my liver, pancreas, and more.

He wrote some scripts for me, scheduled an appt. with my GI specialist.
Will have more tests done by him. :o

Next I cleaned out my kitchen cupboards! Made my neighbor happy,
he took everything I didn't want. Then I did some healthy shopping.
Vegetables, tuna, chicken breast, all the good stuff.
Did get a 3 items from the Gluten-free coop. Had to have
something special.

My diet change has been 2 weeks, its only been a week since I
went to the doctor. However, I'm pleased to report that I'm
feeling better already. My mood has improved, :D . I know I've
got a long way to go...but I'm hopeful. Yes I'm concerned about
my medical situation, but, it will work out.

I want to thank you for reading my post and for all the help
you've given me so far. Your support is what got me to where
I am right now. I sincerely hope to hear from some of you and
that we will continue to communicate in the future.
God Bless You all! Noni B)
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#643265 Poll Time:

Posted by Noni on 30 September 2010 - 01:52 PM

It's not chicken parm and Fettuccine Alfredo, but Olive Garden has a gluten free menu with gluten free pasta on it.


:D I'm so excited to know about Olive Garden's gluten-free menu!
Has anyone tried it out? I miss pasta the most! LOVE pasta!!! :P
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