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bonnie blue

Member Since 28 Sep 2010
Offline Last Active Jun 17 2012 10:20 AM
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Topics I've Started

Last Round Of Chemo Done!

04 January 2012 - 05:15 AM

Good morning friends,
Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!
Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!
It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.
There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!
So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!
Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun :D
Have a wonderful day everyone, thanks again for all the support and hugs, take care B)

2Nd Round Of Chemo, Done!

17 December 2011 - 05:15 AM

Hello to all my friends,
Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and spiritually so that my healing process will be easier. I just want everyone to know that I am doing well the doctors are very pleased with my progress, they actually thought by this point I would need a feeding tube, but I fooled them all and I am actually gaining weight!!! So I have this break now to enjoy Christmas with my family, so for now the words, Cancer, surgery, and chemotherapy are banned in my house. I just want to enjoy this next week and only have some fun!!! Have a wonderful day my friends and thank you again for all your support. B)

The Hair Is Gone Now, But I Dont Have To Shave My Legs!

03 December 2011 - 04:01 AM

Good morning my dear friends. It has been awhile since I updated but my first round of cocktails (chemo) was pretty rough. But I made it through, and getting ready for my 2nd round on the 7th. Just a couple of days ago I lost my hair, it was very strange just started coming out by the handfuls, I did cry a little but then I figured look you can get all depressed our look on the bright side, when I get up in the morning it only takes me 5 seconds to fix my "hair" I just put on a hat!!! And I also don't have to shave my legs anymore, Woo Hoo!!! So I am doing well I am meditating and doing Yoga everyday, and I am actually eating really well. I will continue the good fight and please know how much I appreciate all your support, sending out big hugs to all, have a wonderful weekend!! :D

First Day Of Chemo Went Well

17 November 2011 - 06:09 AM

Good morning friends,
Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. :) Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea meds, magnesium, and I cant remember the name but also a drug to keep my white count up. The good news is that I have a port so it is only one poke at the beginning of the day, and you know what I can't even feel it, so that is good. Their main concern now is keeping my weight stabilized, my goal is to make it through the two months of chemo without having to have a feeding tube, so I am eating every two hours, just small amounts, my husband and girls have been great about reminding me, actually they made two signs for me in the house that say "Don't forget to eat!"
So I am still in very good spirits, the doctors, nurses, everyone who is treating is very optimistic about a good outcome, I know this will be a very difficult time, the worst time will be the stomach surgery, but right now just taking this one day at a time. Thank you all so much for the support it means so much to me, sending out hugs and good thoughts to all. B)

Never Let Anyone Tell You This Isn't Serious

09 November 2011 - 02:43 AM

Hello to my friends,
Last year in September after being ill for sometime I was diagnosed with Celiac. We took everything very seriously and began our gluten free life. All was well until December when I started losing weight again and feeling really bad. To make a long story short I saw different gastros, I was told it was all in my head, that I must be cheating and eating gluten, and my personal favorite, that I had worms. Finally after months and months I found a gastro who took me seriously. He did start me on Entocort to control the big D and I did feel a little better, however the weight loss continued, fatigue, and then it became hard to eat, and I began to have trouble swallowing. He decided it was time for another endoscopy, well the results came back yesterday, and I was diagnosed with Adenocarcinoma of my stomach. It is not my intention to scare anyone but to let anyone who has any doubts that Celiac disease is not serious that it is, it defenitely is.
In just 3 short hours we are off to the medical center to meet the with doctors so that they can stage my cancer, and come up with a plan to beat this. I guess I just wanted to share this with my friends who really understand what it is like to have Celiac, and the obstacles that we face everyday. I will keep you all in touch, take care of yourselves, and God bless.