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Loey

Member Since 09 Oct 2010
Offline Last Active Dec 10 2014 04:32 PM
*****

#890885 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by Loey on 05 October 2013 - 01:38 PM

Well hi y'all!  After trying to resurect my dying desktop, I've decided it is terminal and switched to the laptop.  This, of course means that I have none of my passwords.....
 
Finally got around to resetting this one, so, hi!   Missed y'all!


Missed you too!
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#888484 New Member

Posted by Loey on 15 September 2013 - 11:37 AM

Those are the wrong details! :). We want to know the Doug's name, age, anything funny he does!


I love the way you cut to the really important stuff! Yeah, more about your adorable stogie stealing dog!
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#888461 Hi! (New Person Here)

Posted by Loey on 15 September 2013 - 07:50 AM

Hi Everyone,
My Name is Laura and I live near Fort Worth, TX.  I was diagnosed with celiac via biopsy/blood draw in January 2013, been gluten-free ever since.  I have been reading this forum a lot so I figured I should finally sign up and join in on the fun.  I have a lot of other health problems, too- lupus and common variable immunodeficiency, that kind of limit what I can do some times.  I have a non-gluten-free husband and a cat who is like our child.  That's her in my pic :)  I am a big nerd and I love it.
 
I really enjoy cooking so maybe I will get around to posting some gluten-free recipes that I made for myself out of necessity, since you all know how eating out is.  If anyone is visiting the Dallas/Fort Worth area feel free to contact me and I will help you figure out where to eat.


Welcome Laura! This is hands down the most educated, supportive loving & funniest group of people I've ever met! I was housebound for 3 years and my celiac family kept me going! I'm actually glad igot celiac because it led me to all of these wonderful folks!
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#878488 Do I Possibly Have Celiac's Disease?

Posted by Loey on 07 July 2013 - 07:39 AM

A white tongue usually means you have candida (yeast). Probiotics and yogurt might help with that. I've found that everyone on our Forum has additional medical problems. My naturopath says mine all seem to be connective tissue disorders on top of the celiac. Feel free to PM me any time. 


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#870345 Support Forum Is It?

Posted by Loey on 23 May 2013 - 01:33 PM

I'm so sorry you had a bad experience. This forum has literally been like life support for me.

When I first joined I was just diagnosed and moved to a new state. I was overwhelmed, overmedicated,scared and wrote some pretty whacky posts. I don't think they offended anyone (at least I hope they didn't). I was always treated with love, support, encouragement, wisdom, and a lot of laughter. I hope you'll stick around long enough to see how very much the people here care.

Please feel free to PM me if you need to vent. And a belated welcome.

Loey


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#870096 Mushroom (Neroli) Memorial Thread

Posted by Loey on 22 May 2013 - 07:48 AM

I've been struggling to find a quote that does justice to our dear friend. I think I've finally found one. It's from the show Touch:

 

"We can not help but wonder how much difference one person makes in the world. We look inside ourselves questioning if we have the capacity for wisdom and greatness but the truth is every time we take an action we make an impact, every single thing we do has an effect on the people around us. Every choice we make sends ripples into the world and our smallest acts of kindness can cause a chain reaction of unforeseen greatness. We may not witness the results but they happen all the same.

 

The point where all things are possible, the moment when a choice is made or an action taken, the breath inhaled before a first step forward and at most the last chain reaction started by those moments and actions and choices are always the ones that are started by love..."

 

 Dearest Schroomie, you showed each and every one of us the difference one person can make. We have all been blessed by how often you touched our lives and will continue to. I know that you are watching over us all.


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#864791 Thoughts For Boston 4-15-2013

Posted by Loey on 23 April 2013 - 05:53 AM

Homegrown for the past ten years :(

 

Stay safe Boston!  We all know how strong you are.  Our family stands with you.

 

For me....Oklahoma, Columbine, 911 combined to make me very fearful for about two years while my children were quite young...fearful of the world we were leaving my babies -- those babies are now 18 and 19 years old -- they have grown in the shadow of these events and I am proud to say are strong, brave young men.

 

I am no longer fearful of what is happening in this world -- I am a member of my local CERT team and suggest to everyone I meet.....prepare.

 

Do not be fearful -- be prepared and remain watchful -- if you see something "fishy" wherever you live in this "new" world report it to your local police -- NON-emergency.  Millions of eyes can see far more than any homeland security group.

 

Busy day...off to move my Mom into her new home...

 

Happy Friday Everyone :)

 

Truer words were never spoken!!!  "SEE SOMETHING - SAY SOMETHING!!!!  My son is 21 and wants to join the FBI. Hopefully the next generation will accomplish what we have only been able to start.


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#863447 Looking For Support...

Posted by Loey on 14 April 2013 - 10:23 AM

I have a few updates on my cancer.  I'm having 2 wide excision done Friday on 2 dysplatic Nevis.  Then next Tuesday I have scans done, chest, gut and pelvis.  My chest scan in December showed a 4mm Spot in my lung.  This is one that scares me.  I've also been having neurological issues that seem to be getting worse.  My brain is selecting some kind of word for me in a sentence, that doesn't make sense.  Forgetting info five seconds after I've been told.  My beautiful handwriting is suffering.  I been mispelling simple words.  and I am having balance issues. I gonna ask for a head ct scan too.  My depression has been very heavy. My anxiety is as high as I've ever experienced and I am totally fatigued and couch bound.   The waiting for these procedures on Friday and then the scans on Tuesday is debilitating me and my appetite is especially very low.

 

Please keep me in your thought if you can. I truly appreciate it

 

Thank you

 

Colleen

 

I'm sorry I haven't responded on the site sooner. I've been offline and following on my Kindle (which doesn't seem to let me reply to email or on the forum). You have been in my thoughts and prayers since your first post and continue to be. You're on my list of heroes and heroines. Please know we're all pulling for you!

 

Sending positive energy, healing (((hugs))) and love,  :wub:  :wub:

Loey


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#859280 Results....

Posted by Loey on 19 March 2013 - 06:43 AM

I will say extra prayers that day (I pray for you daily) that whatever the next step is will be the safest  and most medically sound option. Please know you are not alone and that this forum is a pretty amazing family. I don't know what I'd do without all the wonderful folks here giving love, info and constant support.

 

Sending lots of positive energy, healing (((hugs))) & love,

Loey


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#856446 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by Loey on 01 March 2013 - 01:56 AM

That's really sweet, Loey :)

 

Second day in a row I wake up with eyes semi-closed by an allergic reaction. WHAT on earth is causing this? The only new thing I ate these nights was coconut butter, but I am usually ok with coconut in any form? I am so, so tired of this. As soon as I think I mastered one allergy, something new comes up. This sucks big time.

 

Glad yur startng t feel better. I would still look into other types of allergies.

 

Love,

Loey

 

Thank you Loey - and I am sorry you got CC'd. My body is in alert-mode: I think what triggered the puffy eyes was a Neutrogena wash, because soon after gaining sight again I realized that my face was burnt red and sand-paper rough. It b****y hurts. To even have facial expressions. I also have a bright, boil like strip on my wrist, where I carry my watch. So, yeah, pretty much anything I use causes me a reaction.

 

On the psillie note: I am ready to baffle my baristas once again! Known in the Heights as 'the woman with the teeny-tiny travel mug' (8 ounces), I have recently got a new mug that measures 4 ounces. I feel so cool. B)

 

I have met other scholars interested in the problems I tackle in my dissertation. Weirdly enough, they are all in cybernetics. :blink: How on earth did THAT happen?

 

Here are some thinks between cybernetics & the Romance Period. I hope they help:

 

http://teachers.sduh...it moements.pdf

 

http://homepages.rpi...youth/youth.htm

 

http://leonardo.info...ark-zilberg.php

 

http://docs.lib.purd...iod literature"

 

http://stevenejones.org/c-v/

 

http://lucian.uchica...ds/cybernetics/

 

http://catdir.loc.go...32/98042851.pdf

 

http://theanarchistl...etic-hypothesis

 

http://www.academia....Ordinary_Things

 

Let me know if you need me to do any more research for you. It' my passion!

 

Love,

Loey


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#844871 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by Loey on 24 December 2012 - 07:27 PM

MERRY CHRISTMAS TO ALL AND TO ALL A GOOD NIGHT!!!!!!!!!!!!!!!

Love,
Loey

:wub: :wub: :wub: :wub:
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#701588 Body Lotion Hell

Posted by Loey on 23 May 2011 - 05:19 AM

Thnaks guys. I live in England and there is a shop called Body Shop and most of their stuff is gluten free which is reassuring, but buying everything again in one bulk is a little daunting on the money side of things of course! I used Botanics Body Lotion, with the name you'd presume it would be okay but good old wheat protein makes an appearance... And my hand cream and most my make up and my shampoo... Sigh! I am in the early diagnosis, only been gluten free for 4-5 months now... thank you for all your loving support, its nice to 'speak' to people who actually understand!


It is quite daunting to have to replenish everything. Just try to buy a little something every week and always read labels. I'm unemployed and was just rejected for disability (seeing a lawyer tomorrow - fingers crossed) so it's really hard or me to buy large amounts of products. Especially when the gluten-free food is so expensive.

Good luck!

Loey



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#699111 I'm Free!

Posted by Loey on 13 May 2011 - 12:26 AM

Preface - haven't eaten out for 8 months. I can't eat gluten, corn, dairy, or nuts. I don't eat processed foods.

I've been dreading this day for a month. We had a going-away lunch for a colleague at a local sushi place and I've been getting more and more anxious as the date approached. I even thought of calling in sick, but I really like this woman and she'd be disappointed if I didn't go.

Like many of you, I've turned down a lot of engagements that involve food because I thought I couldn't eat anything or would have to take my own food. It's easy to bring food to work-based functions, but not usually restaurants - although I've done it. I've felt really lonely and like a shut-in because everyone else goes out to dinner and I am stuck at home.

But I did it! I pulled our server aside after drinks were brought - as I always do, while people are busy reading menus and talking - and told her about all of my "allergies" (much easier to explain than "intolerance"). I asked about the duck salad and would she please asked if it had any of those things.

Out came another woman who knelt near me and we talked about the food. She said she had a wheat allergy and would personally make all of my food. We tailor made my lunch: grilled salmon with salt only, a salad with specially-made salad dressing that she would mix up for me, and sticky-rice. She wrote everything down. The regular server took everyone's order (10 people) and when she got to me she said, "You've been taken care of" and moved on. And my lunch came out with everyone else's! No one knew!

I'm definitely going back there. I felt so at ease and worry-free.

I also figured that I can go to restaurants and order fish with salt only. I can't imagine that it can be pre-marinated because it would fall apart. So fish and a green salad with vinegar or fresh lemon juice as the dressing (I eat salad with vinegar only when I need a fast dressing - sounds weird but it's pretty good when you get used to it). And fish is grilled with skin side down, so less chance of cc.

I could do this again. :D


You go girl!!!!!! It's so good to hear a story with a happy ending. See, we can be normal (if normal exists).

Hugs and congratulations,
Loey



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#683113 What's Your Vote?

Posted by Loey on 13 March 2011 - 03:59 PM

I agree with keeping the house gluten free. Your little one's not going to suffer by your keeping the house gluten-free and you can possibly make her own gluten-free baby food (or check Whole Foods and see if they carry it). Your baby is going to need a healthy energetic mother more than a diet with gluten in it.

Sending positive energy!

Loey Posted ImagePosted Image
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#681536 I Can't Stop Weeping...

Posted by Loey on 08 March 2011 - 12:48 PM

I know just how you feel. I've been at this for a year in April and I am still angry. My family is tired of me calling them "tribe Wheaterites" in an joking/antagonistic manner. I thought it was time for me to particicipate in the support forum because I need it really bad. Your post and the replies made me cry cry cry.....I feel like I found my tribe, "the Gluten-free-darites" I'm so tired of being high maintenance!!!

This is part of an email I wrote to my sister on Sunday. Sunday, I was at my lowest point so far in this journey. She has Reumatoid Arthritis, so she understands, and we vent to each other.

By the way, I have a wheat allergy. It's hard to find other wheat allergy peeps, am I welcome here?

To my sister on Sunday:

I am very depressed today about my wheat allergy. I got glutened all week by Splenda. It use to be a safe food, but I think they must have changed their maltodextrin supplier to one that is not in the U.S, because the bag I opened last week has been breaking me out in hives and migraines all week. I thought it was the coffee, but I eliminated splenda first, just this morning and did not break out. So, raw sugar it is for me. Maltodextrin made outside the U.S. is not safe.

Then I had to be a pain in the butt at church with communion. They have you dip the bread into a large goblet of grape juice. It did not occur to them that the rice cracker dipped in the grape juice full of wheat crumbs was a problem. But they were so nice and rinsed out the cup and put fresh juice in it for me......while 20 people waiting in line.....once again, I was a pain in the butt.

Then I went to my weight loss meeting, where they were all sampling this wheat bread. but, Jessica's fiance' made them take the bread into the kitchen to try. He's a chef and somehow knew that I would get sick from it in the air. I didn't have to say anything. That was nice...however, I was a pain in the butt.

Then we went to a neighbor's BBQ. I had to ask about every single ingredient in every dish before I found something to eat.....The host had to ask people things like "what brand of mayo did you use in the potato salad?" Did you make the Spanish rice from scratch or did you use a box mix?"

Again....I was a pain in the butt.

And I still got sick. It happened at the BBQ with all the cakes, wheat products, beer and wine in the room. I get sick from wheat in the air. I have a migraine.

I need a support group. My family is soooo sick of hearing about the wheat allergy, and I'm tired of being a pain in the butt.

I'm angry about this wheat allergy. I'm so sensitive now that I can't even be in a room with wheat without breaking out in hives.

I learned that the reason I cannot handle fragrances is because they have wheat in them. The manufacturers do not have to declare it. I saw that on "The doctors", believe it or not. They said if you have a wheat allergy and can handle certain scents (me) chances are that they are wheat free, but most have wheat ingredients and therefore make me sick!!!!


Sigh........

I hope I can be a part of your group as I am still working on coping...........


You already ARE a part f our group and we'll be here for you!!!!

Loey Posted Image



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