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Member Since 10 Oct 2010
Offline Last Active Oct 18 2012 09:06 PM

Topics I've Started

Going Out?

18 October 2012 - 07:44 PM

The nature of my work involves meeting people which inevitably involves going out and eating out. I always get nervous when ordering but at the same time I don't want to attract too much attention and cause my disease to become atopic of conversation.... How do you handle it? What do you typically order? I am most,y having problems with "let's meet at this coffee place for deserts" thing... Thank you! This is a great group! Hopefully I will be able to offer advice one day myself...

Vacation? Travel?

15 October 2012 - 10:01 PM

Since being diagnosed, we only vacationed once at a cruise, and it was wonderful! However, i would love to go to an all inclusive resort... But not sure how well grey will handle our food issues. What do you guys do? I was also hoping to go to Euroe bed year but cannot even begin to think how I will be able to eat there... Appreciate your insights!


Shall I Insist On More Testing?!

11 October 2012 - 09:55 PM

I just had a physical with my 10 yo son and it appears that he has not ganed even a pound in one year!!!! He grew one inch which my pediatrician thinks is completely normal. She told me to increase his calorie intake and add oil and butter to every meal...Now, because I am celiac, I did persuade her to have him tested last year and h was egatve. It was a compete celiac panel. She said you either have celiac r you don't, no need to get tested again and assured him that his poor f weight gain has to do with his Level of activity(true, he is ver active and he is also a picky eater). Also, He has been seeing a chiropractor for his mysterious join pain for year now. No explanation given...shall I insist on mor testing?...

Children Of Celiac Mothers... What Kind Of Testing Is Sufficient?

06 October 2012 - 08:09 PM

I was diagnosed with Celiac Disease a couple years ago. Have been on a very strict gluten free diet ever since... Tested my kids immediately for antibodies and neither of them was positive. Now, I do notice that their bellies get bloated after a big spaghetti dinner, but it could be just me watching them a bit too closely... My oldest has asthma and multiple food allerges and while i think it is better for him not to eat gluten I am concerned that his diet is restricted as is... What do you guys do? If the kids have negative bloodwork, do you still keep them on gluten free diet so that they don't develop it in the future? Other grains are not enriched and I am just concerned about giving them gluten free bread sandwich because it is lower in nutritional value...
I am torn... On one hand, I think it is better to stay gluen free if they are at risk for celiac disease , but on the other hand I am concerned about their nutrition and unnecessary restricting their diet.

My other question is something I have been researching for awhile but still could not find a clear answer to. For those of you who have been diagnosed later in life, do you think we have been sick all our lives but just went through some periods of remission
or/and denial? When I think back to my childhood, I remember that I did go through some periods of "stomach problems", but they were minor and I was never skinny or otherwise unwell... Then I miraculously got better until I got really sick with this mysterious illness that a number of doctors could not diagnose for some time until one doctor decided to perform an endoscopy looking for some kind of weird ulcer and in turn found a celiac disease. So I am just wondering if in fact I have had this disease all my life... What are your stories? Can you just get sick in a fourth decade of life? Or does it have to lay dormant waiting for a perfect moment to manifest itself? I think I was a perfectly healthy young woman in my 20's, eating all kind of junk food and never once do i recall
feeling sick... Does it mean I was healthy then or does it mean that I was a celiac without symptoms? Thanks in advance

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