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The Horticulturalist

Member Since 10 Oct 2010
Offline Last Active Jan 14 2012 02:30 PM
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Topics I've Started

How Exactly Is Dh Diagnosed?

20 December 2011 - 12:29 PM

My 7yr old was diagnosed with celiac via an endoscopy and +ve bloods back in October, he has been gluten free since then and I'm fairly sure that there are no cross contamination issues for him as I had been gluten free for a year prior to diagnosis.

So a few days ago he complained of being itchy, his skin on his trunk was dry and he was scratching a lot and even woke during the night. He has always been prone to dry skin and sensitive skin but that's about it.

last night I noticed that he had a rash on his inner elbows, the backs of his knees and all over his trunk and buttocks. It is made up of pinprick sized little spots with teeny tiny scabs on some of them and others look like little blisters, they are very small.

I can't get a dermatologist appt for several weeks and I think it will be gone by then, how important is it that we get a diagnosis for this do you think? I mean, he's already gluten free so I was a bit surprised to see this appear, however it's only been 8 weeks and it's entirely possible that he has had this in the past but I just never noticed.

I know the dermatologist personally, (from church) but we are not close or anything, I would need to be convinced that it was important for him to be seen soon in order to call her at home and see if she could squeeze him in. What do you all think?

Also, how exactly is it diagnosed, can she test for it in her office or does it need to be sent so a lab?

Edit: I have a photo of his arm that shows the rash, I don't know if I can post it here, if anyone can help with that I'll gladly post it.

Thanks for your help.

All Bestlife Products Are Gluten Free

19 December 2011 - 08:13 AM

I live in a small town and our local Walmart sadly stopped carrying Earth Balance, the only other supermarket that has is it is a small Kroger and it cost almost $5 per tub, so I won't buy it at that price.

I noticed some dairy free Bestlife sticks and spread in Walmart the last time I was in and emailed the company to see if they were also gluten free, here's their response:

"Thank you for taking the time to contact us here at the Bestlife. We always appreciate hearing from consumers who care enough to reach out to us with their comments or questions.

We are happy to report that all of our products are Gluten-Free.

Thank you for supporting Bestlife™ products. We hope you continue to enjoy our products for many years to come! Coupons for our Bestlife™ products can be found on our website: www.thebestlife.com. You also may find coupons in your local newspaper or in grocery store circulars.


Sincerely,

Your Friends at Bestlife"


Too bad they won't put that on the packaging!

How Do You Know If Your Kid Has Lactose Or Casein Intolerance?

12 November 2011 - 03:30 PM

My son (7) was diagnosed with celiac (+ve bloods and biopsy) about a month ago. prior to that his symptoms really have been mild and infrequent, occasional diarrhea every couple of months and mild abdominal pain with the same time frame. I had him tested because I suspect I have celiac and have been unwell over the last year.

So, yesterday for the first time since going gluten free he had diarrhea, he was not unwell and it was only one trip to the bathroom. This morning he told me that his tummy hurt right after he had a drink of milk.

So I'm now questioning whether he has an issue with lactose, casein or both. He has cheese, yoghurt and milk every day and this is the first time I've wondered if there was an issue with dairy.

Anyone had a similar experience? how would I know if it was lactose or casein or both? I don't want to make him sicker,but I also don't want to exclude dairy unnecessarily. Not sure what to do. :unsure:

Bimonthly Episodes Of Very Severe Diarrhea

21 October 2011 - 05:49 PM

I just posted this on an IBS forum but wanted to post here too as I know that gluten is at least part of the problem for me, but not sure that it's the only problem. If anyone has similar symptoms I'd love to know, I can't find any stories online that sound like mine and am really at my wits end :(
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Almost 2yrs ago our family had a D&V illness that was doing the rounds that winter, I had diarrhea only, the others were all vomiting. We all recovered normally it seemed at the time. 3 months later in March 2010 I had a similar diarrhea episode that was so severe that I assumed it was food poisoning, I took immodium and it stopped within 1 - 2hrs. I had another 'episode' in May 2010, then again in August 2010. Following the August episode I started to have these episodes on average every week.

A typical diarrhea episode would start with me feeling hot, flushed and generally unwell about 30 mins before the diarrhea starts, I did not have a fever though. Once the diarrhea starts it would very quickly become watery and often foul smelling, like rotten fish. I would be very weak, shivering, teeth chattering and barely able to hold my head up. I usually would lie on the cold bathroom floor near to the toilet as I was too weak to move very far. At no time did I ever have abdominal pain or cramping. Within 1 to 1.5hrs of diarrhea starting the medication would start to become effective and the diarrhea would stop and I would go to bed. The severe episodes have *only* ever happened in the evening, almost always after my evening meal, only once I think it happened just before we sat down to eat.

Despite eating and drinking as normal the next day, I would be very weak and extremely fatigued, much more than I would expect after only an hour of diarrhea. I would usually spend most of the next day and the following day in bed and unable to do normal things around the house. I would be far too weak to attempt to drive. It takes days for me to feel fully back to normal. In between these episodes my bowel movements are totally normal, no diarrhea or constipation. I have lost weight, usually 1 - 2lbs after each episode of diarrhea. My weight 1 year ago was about 125lbs, It’s now around 107lbs.

I saw a Dr last year after it started happening weekly, since then I have seen three different gastroenterologists. All my tests have been negative, I have had a celiac panel, CBC, Vit B12, Vit D bloods, colonoscopy and barium x- rays,stool tests for giardia - and had flagyl for the same despite the negative stool test.
I have been on a gluten-free/DF diet since the time I had the colonoscopy. I was treated with a 2 week course Xifaxan in August this year, (I did not have the breath test) it seems to have had no effect as I just had another episode last weekend and it's only been 6wks since I finished the treatment.

I know now that I should really have had an endoscopy and not a colonoscopy to rule out celiac, but it's too late now as I am gluten-free. If I eat gluten I get the severe diarrhea symptoms pretty quickly after that, so I don't know for sure whether I may have celiac, but I definitely have a gluten intolerance of some kind. My 7 year old was just diagnosed with celiac last week, so it's possible I have it too.

I thought for a long time that it was just gluten and dairy that was the problem and avoiding them did stop the weekly symptoms abruptly. However I am still having these severe episodes every 2 - 2.5months which leave me feeling like I've been run over by a truck. I'm fairly confident that I am not accidentally consuming gluten, and I'm at a complete loss to know what could be the cause of this (in addition to gluten). If anyone has any suggestions I'd love to hear them, thanks!

Son Does Have Celiac

12 October 2011 - 06:16 AM

Previous thread here

We had the biopsy on Monday, it went well. the surgeon saw "patchy moderate erythematous mucosa without active bleeding in the duodenal bulb" He said it was highly suggestive of celiac, or as the report said "high likelihood of duodenitis."

He gave us a copy of the endoscopy report to take home, it had photos on it (which I will post if I can figure out how to do upload them) of the duodenal bulb, you could see the red patchy spots in that area, the duodenum beyond that looked normal, he biopsied that also.

Just had a phone call from the clinic and he has celiac, it was Marsh 3a.I have asked her to fax me the report so that I can see the details. They are also going to fax me an order for his brother to have celiac bloods checked, that will save me a trip to the pediatrician at least.

Very pleased with the care we received, thankfully very different to the debacle I had to endure.