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Member Since 11 Oct 2010
Offline Last Active Oct 05 2014 01:21 PM

Posts I've Made

In Topic: Mayo Appt

28 July 2013 - 07:09 AM

I have had blood tests for deficancys and been told my numbers are good.
And I went to what they told me was Dietician that specialized with Celiac and showed , not a written list but all the bottles of supplements I was taking. I also took her a month long log of every food I eat and the portion sizes. She said it looked like I was doing everything right.
Then I saw a Celiac Doctor and she told me to go off all supplements. In her own words she said "Gluten Free Diet is a huge fad right now, so all the supplement company's are on the bandwagon. So even though they read Gluten Free , they may not be! "
And I have had three upper endoscopy's and I woke up during one plus after the last one I had to go back for internal bleeding! Celiac Doctor exclaimed "That can not happen".
Well it did happen And I decided I have had enough of her so called expertise!
This is why I have decided to continue the gluten-free diet and make the best of it.
Thank You for your reply.

In Topic: Mayo Appt

26 July 2013 - 07:20 PM

Thank you for your reply. The Celiac Doctor advised I go off all supplements. Which I have done. I feel very depressed and alone. I think there is no help for Celiac Disease. Only perhaps for the side effects. So I will continue on the gluten free diet and.... Take pills for restless leg syndrome and for depression, and accept this condition for what it is.

In Topic: Mayo Appt

23 July 2013 - 10:01 AM

was that your total IgA? if so, that is WNL, I think.

What is WNL ?

In Topic: Cleaning What I've Got To Prevent Cross-Contamination

22 July 2013 - 02:10 PM

Clorox or bleach will not get rid go gluten!
You need for your husband to realize how damaging gluten is for you! You really can't share anything that has been cross contaminated. It is a very serious intolerance.

In Topic: Nightmares/strange Dreams When Glutened

07 July 2013 - 12:04 PM

I had a similar problem years ago and besides the weird dreams at night would see flashes of light when I was in a dark room. This went on for quite a few years and was long before I was diagnosed with gluten intolerance. Eventually I read in one of my alternative books that the cause might be mold toxins. Mold toxins are chemically similar to the psychedelic  drug LSD though not as strong. The book said take increased Vitamin C - so I did increasing the amount until I had loose stools and then lowered the dose and kept taking it for several weeks and by then my symptoms were gone. It may be that you are living with mold toxins in your home and taking gluten foods that  contain  molds as they often do elevated your exposure to mold toxins to where your body could not detoxify them. At that time I was making my own breads and learned to put Vit. C in the dough to detoxify the molds. Over the years I've found some commercial foods, even gluten free foods, have contained enough mold toxins to bring back the flashing lights and dreams. I take my Vit C and cross that food or company off my list of OK foods.
Hope this helps.

I am to the point of feeling hopeless. Celiac Doctor told me to stop all food supplements. And I protested that they were all gluten free !
She told me they are all on the gluten free fad s they only claim to be gluten free.
I know I am not the only person to feel this was, but it feels like a very lone battle.

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