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salexander421

Member Since 15 Oct 2010
Offline Last Active Mar 04 2014 03:13 PM
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#758907 Super Sensitive Teen

Posted by salexander421 on 21 December 2011 - 09:07 PM

Gemini, you're are certainly welcome to disagree with me. Although you seem to have missed the part where I said that sensitivity varies widely and it takes time to figure out where you fall on the spectrum. I love coming on these forums and hearing everyone's varied point of views. When you disagree with someone though you don't have to be quite so condescending. And as far as "bashing" goes, I'm not really sure how I came across as "bashing dedicated facilities". I'm just sharing my experiences. Everyone on here is just trying to help each other out. I am not trying to scare anyone, just offering my point of view.

OP, sorry to take this off topic! I promise I won't turn this into a back and forth debate on who's right or wrong, I know you are here for advice and this in no way contributes to that. :rolleyes:
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#758478 What Do You Think - Gluten Challenge

Posted by salexander421 on 20 December 2011 - 07:52 PM

Personally I would not do the challenge. There is a lot of research going on right now and you don't know what testing will be like in a few years. If they do have celiac and you give them gluten for a prolonged period of time (at least 3 months is needed for testing) then it puts them at an increased risk of developing other autoimmune disorders. And, it can make them more sensitive.
I know it's hard not having answers but I have found out the hard way that, with gluten intolerance, sometimes you just don't get all the answers. Gluten intolerance and celiac are so complex that they just don't know enough about it. They're working on a vaccine right now for celiac, just wait...once that is out doctors will start being more informed and hopefully testing will improve.

Have you investigated other food intolerances like dairy, soy, eggs, etc? It's not uncommon for these to accompany celiac.
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#758475 Picky 4 Year Old, Transitioning To Gluten-Free

Posted by salexander421 on 20 December 2011 - 07:41 PM

My girls were both picky eaters before gluten free, they were also cured of their picky eating by the gluten free diet! I think once their little tummy's aren't hurting anymore they're much more open to food. My girls are 2 and 3 1/2 and they have AMAZING appetites and are pretty open to trying new things. They're new favorite thing to eat for lunch is salmon salad or egg salad wrapped up in a cabbage leave as a "wrap". They pretty much clear their plates most of the time now. I think a big thing is getting them involved in the process of picking and cooking foods.
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#747142 Fruit And Vegetables

Posted by salexander421 on 13 November 2011 - 09:48 AM

No they don't, because I don't walk around with "Celiac" stamped on my forehead. ;)

I thoroughly understand super sensitives. But, I would like to know scientifically, how your wheat based slugg bait transferred gluten to the bearing fruit. Can you explain that to me, please?

All threads are open to all members.


Sometimes there just aren't any scientific answers, that's what makes it so hard and challenging. And that's exactly why we turn to the experiences of others to help us figure it all out. The truth is there just aren't many, if any, studies being done on any of these issues. If there was it would make it a lot easier.

Shauna's list may seem over the top for some but may not even be enough for others. We need to let everyone share their experiences without skepticism, I think I can speak for some of us when I say we get that skepticism enough from the non celiac/non gluten intolerant world.

We seem to do ok with most produce and so I don't feel the need to ask all these questions, if we did have a problem then I would. A light bulb actually went off in my head the other day when I read about wheat straw being used to grow strawberries. For months now we have not been able to figure out why our 2 year old sometimes would eat strawberries and be fine and other times she would eat them and get tummy aches and diarrhea. When I read that wheat straw is sometimes used in the growing process it all of a sudden made sense. She does fine with frozen strawberries and it must be something in the washing process, so for now we'll stick to the frozen ones. It's not scientific no, but it works.

We should allow people to freely share their experiences and allow the reader to decide if it may or may not be too extreme for themselves. That's just my feelings on the matter :)
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#743361 Fda Seeks Comments From Super-Sensitive Celiacs

Posted by salexander421 on 31 October 2011 - 12:57 PM

HeeHee - now ain't that the truth :D

People say YES!! You can eat it!! It's gluten free!!!! :lol: And we say, well, no, actually we can't eat it (for whatever reason - super sensitive, contains other allergens, cooked by someone who doesn't know about cc - what a bummer!)


Oh my gosh, I know! People think I'm just being difficult when I say I can't eat something that's gluten free for whatever reason.
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#742693 Genetic Testing

Posted by salexander421 on 28 October 2011 - 06:32 PM

Hi everyone! I was wondering if anyone on here has any experience with celiac genetic testing. I have a 4 year old who was diagnosed with celiac at 2 he is now 4. He's doing amazing! Since then we have had a daughter who is 3 mos. old. I'm considering testing to see if she has the genetic predisposition to be a celiac as well before she is old enough to start on solid food. I figure that if she does have the genetic markers we can have a heads up and if not then we know she can have gluten and be fine. any tips or info. will be helpful. I noticed that there are a few companies out there that do this testing without a doctors order. Is that a reliable way to go?


I think if I were in your shoes I would have the genetic testing done. Having a brother with celiac does put her in a higher risk category, I think she has something like a 1 in 22 chance of having celiac or something like that. But if for some reason she doesn't carry the DQ2 or DQ8 gene then she would have a very low chance of having celiac. You can't really rule it in or out with the genetic test but it can be a helpful piece of info for some people. My daughter had her's done at the GI and insurance covered it. They used labcorp which tests for both the alpha and beta subunits. I did my test through enterolab since my GI would not order it, they only test the beta subunits. There's another lab that you can order it through but they require a doctor's authorization, it's Kimball labs. Hope this helps!
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#740747 Homeschool

Posted by salexander421 on 21 October 2011 - 06:41 PM

We are planning to homeschool our girls. The decision wasn't solely based on their food issues but it did play a small role in it. Our youngest is super sensitive and I really don't see how she could go to public school and not risk cross contamination. Homeschooling is a very personal decision, some people are very passionate about their decision to stay home and school their children while others are very passionate about their children attending public school. To each his own.
Me and my brother were both homeschooled and we did very well. I feel like we've both turned into well rounded adults who are a functioning part of society. The social issue was not a problem for us. We were always around other kids and adults, it's not like we spent all of our time closed up in our home :P I went to public school 2nd-4th grade and absolutely hated it. I was in gifted classes and still got bored. I'm not saying I'm a genius or anything just that public school does not always challenge some children.
For me, I feel like it's my responsibility to teach and guide my children...I'm not sure why that should stop once they reach school age. And as far as qualification, you do not need a degree to teach your children. There are plenty of smart and creative people who do not possess a degree. I read this article recently and thought it was really good "The ten most important things you need to know about homeschooling"
I love number 2 where it says "You are qualified to homeschool your children if you love to read to them, love to spend time with them, love to explore the world with them, love to see them learn new things and, most important, love them."
In the end you just have to do what you feel is best for your children.
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#736336 Can An Infant Have Gluten Problems?

Posted by salexander421 on 04 October 2011 - 07:03 PM

At 6 weeks it's highly unlikely to be a gluten thing.

richard


Sorry, but I totally disagree with this. My girly started having problems at 8 weeks. We first suspected dairy and took that out of my diet and she got better but her symptoms were not completely gone. It took a super strict elimination diet to get rid of all her symptoms and finally when she was around 12 months we finally realized that gluten was at the base of her issues. She has not had any testing yet (doctors have not been super supportive, it would be really good if you can find a more supportive doctor) but we know she carries at least one of the genes and she has major symptoms which include a rash that fits the profile of dermatitis hepertiformis so we definitely suspect celiac.

I think you have 3 options here; you could continue eating the way your eating and wait until your little one's older and the symptoms are worse and maybe a doctor would be willing to test, you could change your diet and try to figure out what's causing the symptoms and eliminate those foods, or you could give up breastfeeding and hope that formula is the answer (some baby's have problems with even hypoallergenic formula).
If I were in your shoe's I would take out dairy and gluten and give it a few weeks and see how things are, then go from there.
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#699065 Distended Belly- Need Help Please

Posted by salexander421 on 12 May 2011 - 07:28 PM

Both my girls had distended bellies that went away with a gluten free diet. My 3 year old will start to get a big belly and get constipated if she has even a speck of gluten. They are both extremely sensitive. We pretty much have a gluten free household, unless my hubby sneaks some in the house on occasion. We pretty much can't eat anything processed or we end up getting cross contamination somewhere.
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#693429 Chocolate

Posted by salexander421 on 19 April 2011 - 07:34 PM

I eat the enjoy life chocolate with no problems. I like to mix a little of the chocolate chips with a little almond butter for a sweet snack :)
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#685412 So, You Think You're Gluten Free?

Posted by salexander421 on 21 March 2011 - 10:13 AM

I know some people do have problems with other grains, I think I probably don't do as well if I eat a lot of grains but I don't get the same obvious symptoms as when I eat gluten. So, I would say it might be the case for some, but certainly not all.
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#685142 Scientific Validation For Non-Celiac Gluten Sensitivity!

Posted by salexander421 on 20 March 2011 - 06:53 AM

I was very excited to read these articles!!
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#684033 Still Sick

Posted by salexander421 on 16 March 2011 - 07:36 AM

Is the new GI doing a scope to look for celiac? If so you would want to be still consuming gluten for an accurate result. Have you had any bloodwork for celiac, if so was it positive?

Going gluten free in the beginning, it is best if you stick to a whole foods diet. Meats, fresh fruits and vegetables, rice, dairy (if you can tolerate). There's a pretty big learning curve to eating gluten free, it can take a little while to realize all the places gluten can hide. I would even stay away from seasonings at first and just use sea salt and pepper for things. Gluten can be in cooking spray so I would use regular olive oil to coat pots and pans. Be super bland in the beginning and just know that as you learn more about the way of eating your food choices will become broader over time. You may even want to ditch the chicken for a little while and go for something easier to digest, lamb is one of the easiest to digest meats.

Hope this is helping!
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#683591 Blood Test Results

Posted by salexander421 on 14 March 2011 - 09:15 PM

It just says
(tTG) AB, IGA <3
Endomysial AB IGA- test not performed
Endomysial AB Titer- Test not performed
IGA Serum - 160
(tTG) AB IGG- Test not performed

make sense to anyone?


They didn't do a full celiac panel, you can have a negative on one test and a positive on another. Blood tests have a high rate of false negative and a endoscopic biopsy is what they use to diagnose anyways. If you have a positive biopsy than you have celiac.
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#680715 Is Anyone Familiar With Enterolab?

Posted by salexander421 on 05 March 2011 - 07:18 PM

Yes, it is still possible to have celiac without possessing one or both of the main celiac genes (DQ2 and DQ8).
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