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Member Since 29 Oct 2010
Offline Last Active Jan 25 2013 09:50 PM

Posts I've Made

In Topic: Does This Look Like Dh To You?

19 September 2012 - 12:08 PM

You are absolutely right it will help someone else. There were many times I sat there in the dermatologists office crying and saying that my migraines were connected to the face sores...and my "fibromyalgia" is worse when the sores are there. And I would say "These sores are burning my brain." They would just shake their head and tell the PA who was standing there wanting to help, "She is a skin picker. We call it neurotic excoriation." Then he would turn to me and say, "You see how you are scarring your skin?" and walk out of the room. I was angry because I knew he was wrong but I couldn't explain it. None of it made sense until you look at what Celiac is and what it does. Then it all made sense. My sores didn't look like classical DH either. I'm so glad he brought a few PA's in to look at yours. You probably saved a lot of lives and spared a lot of people misery by letting them see the way your DH presents. Thank God that Dr. recognized your DH.

In Topic: Preventing Glutened

18 September 2012 - 03:25 PM

Enzymes, Probiotics, and Vitamins can all be found over the counter. No prescription needed. Make sure they are gluten free.

I stopped eating out or eating food prepared by others. It made a world of difference and I feel so much better. The Outback is the only restaurant I will go to and that is only on a birthday or special occasion.

It sounds like you should not eat at your in-laws. They probably use their pots and pans that have cooked gluten. Even if they make potatoes and strain in a colander that strained pasta you can get glutened. I realized it was critical to replace pots and pans and that it would be unreasonable to expect that others would have pots and pans that had not had gluten in them and therefore I could easily get sick. So basically if others cook gluten in their kitchen I will not eat there. That's pretty much everyone except a Celiac.

Take control of your diet and don't let others cook for you. They cannot be expected to see that you are not cross contaminated. There is way too much involved in cooking gluten free to expect irritated in-laws to be able to do it responsibly. Your body seems to be saying so too. Same thing with cooks in restaurants. Unless the restaurant is certified to be able to cook gluten-free. Some things you have to take into your own hands in order to heal. Cooking is one of them.

In Topic: Daughter In Crisis

18 September 2012 - 02:58 PM

Mention Celiac testing to whatever Dr. you are following up with. Any of them can order the blood testing which is a good place to start.

In Topic: Glutened Just From Stitting In A Pizza Place?

18 September 2012 - 02:54 PM

Probably CC from every surface. Benches, chairs, tables. And flour in the air too. I once had a meeting at Panera Bread. I arrived early to scope out the seats. All covered in crumbs and I wiped them with a napkin the best I could. I decided not to even drink anything during the meeting as I could see flour dust on every table. I never noticed this before I went gluten free. I can see how easy it would be to get glutened in a pizza place. Hope you feel better soon.

In Topic: Time To Get Real

18 September 2012 - 02:44 PM

It took me a year and a half to heal my DH.
Any cross contamination would cause the lesions to weep and peel and sting again....for several weeks.
I recommend you do not use any products that are manufactured in a facility that processes wheat. Limiting iodine won't really help if you are getting contaminated from gluten. I think you are getting a lot CC from your description of things.

I had to get very strict. No eating out. Not only no gluten, but nothing processed in a shared facility or on shared lines. I had to limit iodine. My experience was much like Prickly's. I ate a lot of shrimp when I went gluten free. Thinking I would eat better food since I had to be gluten free. But I didn't get any better. I finally gave up iodine and eggs, dairy, asparagus, canned goods, anything with carageenan, iodized salt and sea salt. Then I started to get better. I had to limit iodine for many months. I tested it from time to time and the result wasn't good. I finally healed and after a few weeks after I was totally healed I was able to use small amounts of iodized salt.

Make sure you eliminate possible sources of gluten. If they aren't labeling accurately you may have to limit yourself to meat, vegetables and fruit. Even nuts are often packaged on shared lines with wheat. It's a nightmare trying to figure out all the ways you could be getting contaminated, but once you do figure it out, it is so much better.

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