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Member Since 29 Oct 2010
Offline Last Active Jan 25 2013 09:50 PM

#664482 Newbie Need Help!

Posted by on 31 December 2010 - 05:30 PM

I have DH too and if you felt a bump it could be from iodized salt which activates the antibodies. If there was salt in the salsa, it is entirely possible you had a reaction to it. I have made this mistake several times. The reaction for me starts the next day and lasts about 3 to 4 days. Sores can take longer to heal, but stop hurting sooner.

Also, I have some pharmacisits who are helpful and ones who are not. I tell them I can't buy it if they aren't willing to check. So far, that has done the trick. They check everything else, why not gluten? It isn't difficult and doesn't take long. To help them out though, I do call ahead or go when they won't be busy. I just don't accept that I have to buy a drug that might be bad for me. If I have to I will get the information from them on the maufacturer and call myself. I try to get meds that are gluten free by telling my Dr. it has to come off the list of safe gluten free medications.

Stay strong.
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#663578 How To Handle Eating Out With Cc Risk?

Posted by on 28 December 2010 - 10:52 AM

I am gluten free 3 months and I am coming to the humbling conclusion that I won't be ever risking my health to another food preparer. I ate out 2 days ago and carefully ordered and the chef and waitress were very helpful and tried to make a safe meal...just meat and veg. Well, I got sick. I have the DH and am very sensitive and get sores and migraines. That is a big price to pay for one meal. Now I am thinking it is impossible to educate food preparers to be as careful as I need them to be. I'm sorry that it is true, but I think you are absolutely right about CC and I won't be risking it again unless I first set aside a whole week to be sick. Sad but true.
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#662805 Gluten Free And The Holidays

Posted by on 23 December 2010 - 10:38 PM

Hello Everyone!

I'm new to this forum. Today I decided to register because of the upcoming holiday. Every year, my in-laws order Chinese food for Christmas dinner. They never offer to make anything for me or have something I can eat. I do bring my own food, but I feel excluded from the meal. It hurts my feelings that every year they do this and every year they ask me why I cannot eat the Chinese food. As I explain to them for the 100th time that I have celiac disease and cannot eat the food, my MIL says I am rude because I do not eat what they bought.

I am so angry because I feel like they do not listen to me at all. I do not expect them to have an entirely gluten free meal for me, but how hard is it to pick up some fruit or veggies so I can have something to eat? Every year while everyone is eating Chinese food, I am eating a peanut butter sandwich or some pasta with sauce I made at home while I get looks for not eating the meal. It sounds silly, but I feel excluded when I cannot eat what everyone else is having. Does anyone else feel like this? Especially at the holidays?

I've hosted dinner at my home in the past, but all they do is complain that the food does not taste good and that they have to be mindful of which butter tub to use.

Thank you for taking the time to read this.

Happy Holidays!

I would say "I am not trying to be rude when I don't eat your food, but people with Celiac disease are prone to developing intestinal cancers and I would like to be here for a few more Christmas's with y'all if you don't mind." Then I would smile, grab my salad and walk away. I might also say that "I have missed a few Christmas's before I knew what was wrong with me....and I'd rather not miss this one being sick thank you for understanding."
Just my 2 cents.
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#660933 Doctor Tells Me I Need To Eat Gluten For 15 Days!

Posted by on 16 December 2010 - 12:15 AM

After reading all of these posts, I would like to say that going on the gluten free diet is free, legal, and a personal choice that does not require a prescription from a Dr. It seems Dr.'s don't want to believe in testing children who don't have numerous or classic symptoms. And even if they do test, it is likely that they may test negative even though they may be sensitive to gluten. My son's Dr. didn't want to test him because face swelling and asthma and leg pain aren't classic celiac symptoms. Well on doing some reading that Asthma can be caused by severe vitamin D deficiency, I wanted to try gluten free. After struggling to get someone to want to believe me or test my child and no one would, I just decided to put him on gluten free. It was a miracle. In one week he looked, acted, and felt better and now he tells me all the things he can do that he couldn't when he was eating gluten....like think...like walk to the front of the classroom without hurting. Like run in gym class. You are the parent and it is well within your rights to want the best for your child. The Miracle of Celiac is that it doesn't require a Dr. to bless your decision to go gluten free. I would advise you to stop eating gluten immediately and take all your children off it too. I really think they do not know what they are talking about when they say the diet is too stressful. It removes so much pain and sufferring to be gluten free. The only thing I can think of is that the Dr.'s are thinking of depriving children of pizza and sweets...which isn't even the case as there are gluten free substitutes. So here is my last thought. Trust yourself because I have found every Dr. I tried to consult cannot think clearly....why? Because they eat Gluten...I swear. Best of luck to you and your kids....and good for you trying to help them. I hope you let us know what you decide.
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#660123 I Want To Share This Glorious Moment

Posted by on 13 December 2010 - 03:51 AM

That is wonderful! I am so amazed when young people figure this out! And you really are wise to know how to approach others too. I am trying not to be preachy with my sister but I want her to feel better too. Your perseverence paid off with your mom. I'm gonna take your advice on how to approach this by making it their idea. Brilliant! And I am only 30 years older than you! ;)
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#660099 Sick Of Being So Different

Posted by on 12 December 2010 - 11:33 PM

That is terrible! :o :( :( :(
I am so sorry you had to go through that.
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#660078 Celiac Switching From gluten-free Back To Gluten..help!

Posted by on 12 December 2010 - 08:35 PM

Well,unfortunately I have direct experience, so I will share it with you regardless of what your situation is. When I went back on gluten after 5 years on whole foods, my symptoms were 10 times worse than they were before. I didn't know about gluten at the time. I had remained on the Atkins strict version of the diet for my weight. I spent the number of grams of carbs per day on ...chocolate. I was fine. Little did I know it was actually gluten, not carbohydrate making me ill. So when I got married, my husband ate pita bread, so I used my allowed number of carbs on-pita bread-every day. Within a week, my face swelled and my fingers and feet swelled. I could NOT think clearly, I was dizzy, nauseous, dazed confused and sad. The next week I got bad acne which turned into oozing sores that did not go away for years. (DH) I became irritable, moody, clumsy and started having really bad migraine headaches that seemed to last longer and longer until they almost never went away. I was so tired I had to sleep every moment I was not at work and I had a small son to take care of. It was impossible to figure what was making everything about my body not work. The next thing I noticed was incredible forgetfulness, I would drive right past work and not realize it. Then I developed heart palpitations and kidney spasms and my fingernails peeled and cuticles bled. I had stomach aches and nausea every day. It was a long time before I got diarrhea but that too developed. I was horrified by all of this, but the Dr. said I had clinical depression and referred me for therapy. It didn't work. I couldn't think or process well enough to have a conversation. I started falling in the shower for no reason. I bruised easily and cried if someone spoke to me. I slept all day every day and never felt alert. This all happened within 3 months. It lasted years before I figured out it was really gluten. My symptoms were mostly the dermatological and neurological symptoms of Celiac. I thought I would share this because it can be more than the stomach aches and diarrhea..and you should know what you are getting into just in case you too happen to get neurological symptoms. I forgot to mention the tooth discoloration that occurred during my exposure to gluten. As far as recovery, I am healing, but certainly the DH scars are here to stay, and the tooth discoloration, but now my muscles and joints are working properly and the fatigue and depression are mostly gone. I have been gluten free two months. I hope this helps.
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#659884 What Is The *purpose* Of Adding Flour To Everything?

Posted by on 11 December 2010 - 07:11 PM

Thank you Mushroom! :rolleyes:
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#659860 What Is The *purpose* Of Adding Flour To Everything?

Posted by on 11 December 2010 - 04:53 PM

I was just thinking about my old friend "wheat" today.

It occurred to me that it gives new meaning to the migraine headaches I sufferred almost daily for the last 5 years. Now they are My Grain Headaches.
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#656355 Celiac Mom's Dementia Issues

Posted by on 26 November 2010 - 04:27 AM

It would be worth looking at whether she is taking vitamin supplements (or is she forgetting?) Vitamin B deficiency is known to cause dementia-type symptoms. If she was only diagnosed with Celiac 2 years ago there may have been long-term malabsorption of the B vitamins. I am reading about symptoms of vitamin deficiency causing memory and behavior problems. It happened to me. The B vitamins must be taken regularly as they only stay in your system for a day or two. With long-term undiagnosed Celiac, it becomes ever more important to take the B vitamins to avoid the negative effects of B deficiency on the brain. The 3 D's are indicative of B deficiency...diarrhea, dermatitis, dementia. This is just one thing to consider in your search and seeing a neurologist is a great idea. I wish you and your mom the best.
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#650241 To All The Veteran Post Authors

Posted by on 30 October 2010 - 09:25 PM

Thank you so much for saying so well what I have been thinking/feeling every night of my first 30 days being gluten-free.

I've been reading this site every night and am so thankful to all who post.
There is nothing like having a resource that is endless and that is what I feel I have found here.
It's very lonely to not be believed by friends or family and particularly humiliating not to be believed by Dr's. But here I feel I have found a thousand friends and soulmates and I am very grateful for all the time you have all invested in writing your experiences for the rest of us.

I was sick for years and misdiagnosed with fibromyalgia...I used to lay in bed unable to move for pain.....
slowly nibbling.... on soda crackers... to deal with the nausea...or so I thought.
I had daily migraine headaches and depression for 7 years.
I am self-diagnosed with the help of all of your posts ...and gluten free one month...and unbelievably almost completely relieved of all symptoms with the exception of lingering bone pain.

I often think as I go through my day not feeling ill....
"I wish I could thank them enough."
"I wish they knew they saved my life."
So thank you all for the lifeline you threw out to me for I was really lost.
I do not know if I am gluten- sensitive, gluten-intolerant or have Celiac.
But I am a very grateful ex-wheat-eater....well into recovering because people take the time to write posts.

I can never thank you enough.
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