When it comes to oils, did you cut out EVOlive Oil and Coconut oil as well? I can't have very much coconut oil, I think its the fats as if I use it on a regular basis my stomach tends to burn. Olive oil tends to be my staple for now.
Also I think I feel your vibes on this but i'll ask: did you at one point have to take anitbiotics? any SIBO or yeast? One of my next tests I'm interested in the organic acids or fecal test for bacterial overgrowth, if that hits positive, I'm nervous over the idea of taking a pill (but I understand we gotta do what we gotta do, you know?)
Yes I don't eat Olive oil anymore or Coconut oil. I went through the whole Coconut oil phase and I really didn't feel it doing anything good. Macadamia and natural animal fats are the gold standard for me. I've taken a LOT of different antibiotics and treatments for SIBO, I've even done two months of Diflucan and a few other antifungals. None of that helped, because none of that was the problem. The problem was / is a very hard to diagnose immune system disease which had been ongoing for probably my whole life or at least since childhood.
I figure you are always going to have bacterial overgrowth in the upper small intestine when there's damage there but the big lesson to learn is that Humans in nature have around 3000 different species of bacteria balancing their immune system and digesting their food. Humans in the western world are lucky to have 300. That's the primary reason we are sick with out of control immune systems, antibiotics in early life is the primary cause actually, taking them as an adult isn't likely to throw your immune system into chaos but as a kid it will.
I doubt I would have ever recovered without Tacrolimus and that's a very very potent drug, I don't think diet alone was ever going to be enough. Although diet alone is the only thing that's going to cure me now that it's under control.
I don't know if I mentioned up there but my Kidney function had crashed down to an eGFR of 50 last year thanks to the high levels of inflammation in my body, as Tacrolimus is toxic to the Kidneys it worried me. But thankfully my eGFR came back to 90 which is pretty much normal despite the tacrolimus. Having the inflammation is more damaging than toxic drugs it seems.
It's a little bit depressing know that so many of you out there are in constant pain in the gut like I was and that diet might not be enough and there's probably no doctors in the world crazy enough to give someone with a dodgy gut and nothing else they can find wrong immune suppression... But you know I think given that most of us are loading up on anti histamine and mast cell stabilsers and getting a part response... should really be trying something a little stronger.