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Member Since 02 Nov 2010
Offline Last Active Jul 06 2015 02:52 AM

#905365 Maybe It Is Gmo's Causing Problem

Posted by on 07 February 2014 - 08:46 AM

We don't have GMO Corn in my country and it's still hard to digest.. That's just the nature of corn I'm afraid. I'm quite sure everyone with a leaky gut or hypersensitivity has built up enough problems that they will probably never fully recover to the point of being able to eat everything a more hardy person can. I was getting pretty over eating almost nothing and weighed only 55kg last year. Now I just take my mast cell stabilisers and antihistamines and get on with my life. So long as I take the mast cell stabiliser I can eat anything without any gut issues at all and my digestion is now perfect (and I've gained 11 kg over the last year). I figure at some point my gut will get thick enough that I can cure myself with weight gain :P lol. Life's much easier when you can eat Chocolate without getting sick :rolleyes:  


I still don't eat grains other than Rice but I could if I wanted to, well everything other than Gluten containing grains would be OK.

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#903940 Sensitive Topic, Please Dont Laugh

Posted by on 26 January 2014 - 08:29 AM

Whenever you are healthy you have hyper active sex drive, that's what healthy is. Unless you are a plant and you are dying, then they do the same thing with their last energy :P.

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#897882 Leaky Gut And Joint Popping/pain

Posted by on 02 December 2013 - 05:40 AM

I've often had popping jaw, clicking neck when I talk and knees in the past. I did at times have knees so sore than I struggled to walk but that all stopped ages ago. I haven't eaten gluten in 4 or 5 years and I guess it stopped about then. By the way I started getting regular B12 injections about then too. I'd recommend you start having the injections especailly with your restricted diet and low weight. Cold hands and tingling is CLASSIC B12 deficiency. Id also want to know why your stomach in inflamed, yes sure maybe your small intenstine could still be but your stomach shouldn't be after a year on a good diet. You want to have a test for helicobacter while you are there.


If there's anything to say about the popping itself (if it doesn't hurt I think it's zero problem). I've been told many times by Europeans when I was younger after they have heard my knees pop that I must be very healthy :! apparently in Europe the old tale is, if your joints pop they are in good condition.

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#892673 gluten-free For 6 Years, Worse Than Ever. Help! New Person Here: )

Posted by on 19 October 2013 - 06:46 PM

gluteymommy, just about vitamin D. Vit D is one of the major factors in balancing your immune system (T cells). The problem is if you take bulk amounts of Vitamin D it will push your immune system towards the inflammatory side almost instantly and it'll keep doing that until you have enough vitamin D to balance the T cell maturation. I find real sunlight to be much more tolerable so try if you can to do proper sunbathing and get your levels up as high as possible doing that. Then after that top up with the supplements.


Sunlight will also help greatly with your itching and general breaking down of toxins. Lack of vitamin D is also the major cause of depression so all up I think that's where you need to put your focus first. 

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#886189 Why Is The Main Stream Media, Tennis Stars And Others Trying To Destroy The G...

Posted by on 27 August 2013 - 09:43 PM

Nadal is a Spanard and the chances of having a problem with Gluten are next to nothing so for him it's just an annoyance. For the Northeners it's another story and 30%? of us carry the genes. 30% is a big problem, it wont be going away anytime soon. 

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#879416 Ketotifen Fumarate And Other Mast Cell Stabilisers

Posted by on 14 July 2013 - 03:51 AM

I stumbled across a couple of articles about curing leaky gut with the help of mast cell stabilisers over the last few months and finally got my hands on some Ketotifen. I've been talking it for 3-4 days now and have already overcome the extreme sleepyness it caused on the first day.


Because I have multiple problems I'm never sure what's the best way about fixing things but as I most of the time have a pronounce burn in the small intestine after eating almost anything and very high IgE and Eosinophil levels I always thought a mast cell stabilizer maybe quite likely to help me out.


Well so far I'm happy to announce that I can eat 100% pain free, I was hoping the enlarge lymph node in my neck would have gone down in size with the pain but it's actually got bigger as if I was having a bad reaction to something (but the lack of pain tells me I am certainly not..) so this is something I don't understand unless the Ketotifen has broken all the eosinophils in my blood all the sudden (I've read it does cause mature eosinophils to break down). So maybe I need to see what happens in a couple weeks time.


Anyway other things have changed, my persistent sores caused be excessive histamine and itching, which had been only mild on my previous anti histamines has totally stopped with the Ketotifen, to the point of me having noticeably clearer eyes these last few days.


I'm guessing that's because Ketotifen partially blocks H4 and the general anti histamines do not. I've gained weight, more than you would imagine possible in a couple of days and my usual going to the toilet a few times a day has also stopped. I'm guessing again just because the histamine levels have dropped off. It feels quite amazing to be able to eat what seems like anything without pain although I'm continuing on the SCD style diet for the most part so I get a combined drug+diet healing.


I found this protocol I found on the net worth reading too..


I'm not taking the cromolyn, only the Ketotifen so far. I've already been following this basic idea but without the mast cell stabilser it was just soooo slow.




Treatments for "Leaky Gut Syndrome"


Histamine Reducers:

1. Ketotifen (Zaditen) 1mg by Sandoz.

- Compounded at Clark's Pharmacy (not commercially available in US).

- Antihistamine that reduces the harmful effects of histamine that allows the mucous layer to come back and heal the intestinal wall.

- Generally taken: 1-2 tablets (ours is a liquid subspension) 3 times daily 30 minutes before meals for about six months or up to twelve months depending on severity.

2.Cromolyn Sodium (Gastro Crom) 100mg by fisons or Cromolyn Sodium powder by various compounding pharmacies.

- Reduces mast cells from releasing histamine.

- This treatment does not generally work well in adults by itself.

- Generally taken: Dissolve 1/8 tsp in water 3 times daily 30 minutes before meals.


Parasitic and Antifungal Treatments:

1. Tinidazole 500mg by various manufactures and various compounding pharmacies.

- Used for chronic giardiasis and amoeda.

Generally taken for Giardiasis: Adults- 4 capsules all at once with a meal one time only (some doctors repeat it in ten days). Children- dose at 50mg per kg all at once with a meal one time only

2. Appropriate antibiotics / antifungals to treat identified intestinal parasites / yeast.


GI Healers:

1. Glutamine by various manufactures.

- Found in high concentrations in the small intestinal tract and is the preferred fuel.

- Generally taken: 1-5 gms per meal up to 15 gms per day.

2. Probiotics (friendly GI bacteria)

- Use only human strains and / or saccrharomyces boulardii.

- Generally taken: 1-2 capsules daily with meals.

3. Abstain from gluten if gluten intolerance.

- Extremely small amounts of gluten can cause major mucousal damage if gluten intolerance.

4. Stress Management.

5. Digestive enzymes.

- Breaks down protein and less pretein molecules (i.e. polypeptides) get absorbed into the blood stream.

6. Rotating foods and avoiding foods that irritate the digestive tract.

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#878521 Has Anyone Healed Some Of Their Intolerances?

Posted by on 07 July 2013 - 10:40 AM

Why do you think a lot of B12 would help? 

People can overdose on vitamin D.  Last I heard if you take more than 2000 IU per day, it's recommended you get regular blood level tests of vitamin D.  An overdose can cause serious problems. 


I was very deficient in B12 after gluten nearly killed me for 20 years so I soon came to be able to feel when I was getting low in B12 and when I wasn't. I need a B12 level of over 1000 to feel "right" so I get regular injections to keep it above 1000. Vitamin D is much more important again, you need it to keep your DNA good without errors, Because I have a fair bit of malabsorption I need to take about 4000 iu a day to hold steady and that's including sun bathing, that's to hold me over the 100 minimum blood level, I would prefer to hold it just over 150 but that starts to make it difficult and would need regular testing to make sure I didn't get too high. I had to take 4000 IU a day every day plus lay in the sun half the day for a full year just to reach 100 on my blood test.... Most of my friends who aren't even sick take 5000 IU per day and it hasn't done them any harm. I live in a cloudy and wet climate and most the people here are very deficient in vitamin D so these days most people are on Vit D supplements, it turned out low vitamin D levels were causing the local people to be depressed, so now the doctors test everyone.

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#862834 How Much "cheating" Is Allowed ?

Posted by on 10 April 2013 - 08:35 AM

Depends how sick you want to get later in life and which auto immune system you want to live with....during your by then shortened life span  :D. That's the correct answer to your question. I.e if your smart you'll never touch it again and be thankful you got it in time. Once your body starts destroying itself it's no joke any more and you'll see on this forum a VERY abnormal percentage of people have auto immune conditions. Play with gluten as a known celiac and you'll get messed up big time eventually... but you'll never know which grain of wheat is one too many so any is too many.


I've never drank or smoked or done anything unhealthy in my life other than eat bread... and I've got the Kidneys of a 70 year old (I'm 40) I've got a lymph node the size of a fist at times in my neck. I didn't cheat on the gluten once I knew I just didn't know for a long time, you got lucky. Trust me on this, don't cheat.

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#862827 Celiac Vs. Gluten Intolerance

Posted by on 10 April 2013 - 08:08 AM

Getting diagnosed on paper isn't at all important other than one reason (you need to, to get help from a doctor). Problem is by the time you get a test you wouldn't have eaten gluten in years anyway.. why? because people tend not to eat things that make them sick in the guts.. maybe a couple times,, maybe ten years like me lol but eventually you will say enough is enough. In that case you can still have the gene test like I had and I had all the right genes, no anti bodies though as I'd been off gluten for 3 years.


My doctor refers to gluten as "poison" when talking to me and isn't that the truth. He would never ask me to eat it in order to show up on the anti body test because it's already dam near killing me from previous damage as it is.

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#859463 What Were You First Symptoms To Go Away?

Posted by on 19 March 2013 - 07:12 PM

Bloating went away as soon as I got on b12 shots and the majority of stomach and digestive upsets / pain etc went away with the gluten. Still ongoing other problems some years later because gluten free was too little too late for me. But I'm getting there. I only wish I had of know there was such a thing as Celiac or gluten problems when I was 17 because I was already sick then and didn't stop eating it for another 20 years. I think you'll come out of it ok having got on it early

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#851195 Adult Acne And Inflammation

Posted by on 30 January 2013 - 05:02 AM

I had "acne" all my life on the back, back of the neck, Chest, forehead, Shoulders, and upper arms. Do you know what it was after 20 years of chasing it... It was "Eosinophilic folliculitis". Caused by very high histamine levels and high Eosonphils (allergic reaction). Less that a week on the aniti histamine Zyrtec 95% of my sores were gone, give that stuff a test run and see how you go.

It's not going to cure you quickly and you will need to cut out all your allergic foods, (probably milk protein and grains are the main ones) but if it clears up on Zyrtec you will at least know what you're dealing with.

For me going Gluten free stopped my stomach pain... for a while but the problem runs deeper than that once the damage is done.
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#849351 Low Calcium (After A Year Of No Dairy)

Posted by on 19 January 2013 - 06:44 PM

Calcium levels should be good if you are not on milk, I was vegan for many many years and it never got low, I believe it actually costs you more calcium to digest the proteins than the calcium you absorb from it. Lack of calcium is normally caused by low Vitamin D levels, have that checked if you can
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