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Member Since 07 Nov 2010
Offline Last Active May 02 2011 03:53 PM

Topics I've Started

On The Road To Healing

28 April 2011 - 02:30 PM

I am finally on the road to healing.....

I am hoping that those who are undiagnosed are reading this because it may help you find some answers and some relief....

I am sure many undiagnosed diarrhea sufferers do not know that their D may be caused by bile salts leaking into the intestines. Diet will not cure this - the only thing that will is medication and that medication is either Cholestyramine which is powder form or Welchol (pill form). I know some will say that this is defined as Habba Syndrome - but not all forms of bile leakage are categorized as this syndrome. My Gastroenterologist explained that this is fairly common and is easy to take care of and is not really anything to be alarmed over.

What you will need to do is first have a colonscopy and endoscopy to rule out Celiac, Colitis, IBD, or Crohns disease. Blood work is also necessary and stool samples. If all come back negative - then you may be suffering from Bile Salt leakage or possibly Habba Syndrome or even gallbladder disease. This condition is also very prevalent to those who have had their gallbladders previously removed. Trust me when I tell you it is well worth looking into. I have suffered for months and am finally beginning to see some positive results. I am still thin at 98 lbs. (lost a lot of weight with this) but am hoping to soon put some back on. I did notice that I am not having digestive issues (malaborbtion) and the diarrhea is much, much less than before. I asked the doctor how long I would have to continue the medication - he said probably around a year until everything returns back to the way it should be. I must say - I can now eat many of the foods I had sensitivities and/or intolerances to - which were many.

So if you are really suffering from undiagnosed diarrhea - do look into this.

I hope that I am still welcome to post here - because the members in this forum are the greatest and most supportive people I have ever met! Thanks so much for all your help - it is so very much appreciated! :)

Nocturnal Diarrhea

20 April 2011 - 01:10 PM

Are any of you plagued with Nocturnal Diarrhea that comes on in the middle of the night?

I know for myself - I usually am awoken about 1 to 3 a.m. and have to go to the bathroom either with watery, semi hard or even regular urgency. This might continue once an hour up to about 6:30 to 7:00 a.m. It is really annoying and it so disturbs trying to get a good night's sleep. I have never had an accident - but you sure know that your colon is calling you....

Is there anything you can do about this? I know I am not bothered all day - but somewhere between 7 to 8 hours after eating - this comes on..... :(

Silk Milk Products/milk Substiutes

11 April 2011 - 02:33 AM

I have tried using the Silk Vanilla Almond Milk and as long as I use just a small amount in cereal I am okay. But, yesterday, I made the mistake of having a glass of milk and had diarrhea for the better part of yesterday and some again this morning.

Have any of you had a similar reaction?

Which substitute have you tried that works well for you and that you would recommend?


Antibiotics Stopping The Symptoms - Have You Experienced This?

31 March 2011 - 02:39 AM

I have been gluten free now since January - 3 full months - but still have ongoing diarrhea and malabsorbtion symptoms. I have had my endoscopy which visually showed no damage at all as well as a colonoscopy that was clean. I am still awaiting some biopsies from both areas testing for microscopic colitis and celiac disease.

But here is the funny thing. I have been suffering from a sinus infection and was given amoxicillin for it. While taking the amoxcillin, I had no diarrhea at all, no food intolerances and no malabsorbtion. I and could eat anything (although I did not eat anything that was with gluten). But, once I stopped the antibiotics - the symptoms came back again :(

This leads me to believe that this might be SIBO? Have any of you experienced this?

Colonoscopy/endoscopy Question Please

25 March 2011 - 04:30 PM

Today I had a colonscopy and endoscopy. The doctor said that he could not see any damage but did send a biopsy of my colon to test for microscopic colitis and a biopsy to test for celiac sprue.

My question is - if there were damage to the villi - would that not be visible during the examination? Or is it general procedure to send out a biopsy when a patient tells the doctor about gluten intolerance, food sensitivities, etc.

I had been doing great the past two weeks prior to the exam - but the day before the prep, I had a very, very, bad bout of diarrhea. I told my husband - I could probably now go to the colonscopy without having to prep. Anyway - I was really shocked when the doctor did not see any colon inflammation - yet on his own, (without my saying anything about the flare), he is testing for microscopic colitis. Is this something a doctor regularly might do if a patient has complained of diarrhea for a long extended period and the colonoscopy showing no inflammation?

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