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plumbago

Member Since 13 Nov 2010
Offline Last Active Today, 02:22 AM
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Posts I've Made

In Topic: The Fight Against Omission Beer

12 July 2015 - 02:15 PM

I was going to post what I found on Omissions web site about their mission being to brew a gluten-free beer and mission accomplished etc etc...but see that others have already done so.

 

What I'm now going to say is different but probably even more likely to cause conflict. Please just read the whole thing first.

 

An acquaintance was first dx 18 years ago with celiac disease. His case was much more severe, wasting, than mine, and practically the instant he went gluten-free, his symptoms went away. But then a few years ago, it was a hot day and someone offered him a craft beer and he drank it. Nothing he said. No reaction. So, he started drinking nice craft beers. Not gluten-free-marketed beers. But craft beers. But, he wanted to see if any markers showed up. (Again, please read the whole thing.) So he stopped. He got the gliadin antibody tests - not diagnostic. He was clear (AGAIN. Please keep reading, I know I know.) So he did the craft beer challenge and started drinking it again and a few months later got the ABA IgA or IgG test. Nothing. He was clear. (....hope you are reading and not jumping to comment!)

 

So now, my commentary. Setting aside for the moment that tests available for gluten in foodstuffs are bad, we must I guess, test our bodies. Gliadin is a broken down component of wheat and would not therefore measure hordein, the broken down component of barley. So, to my way of thinking, the test he had done was not really useful, right? My understanding is that aside from the ABA IgG and ABA IgA tests, there are three other components of the Celiac panel, but none of them test for anything but gliadin or reaction to gliadin. Not hordein. Not seculin (?).

 

Moving on, I got on the Internet and have discovered that there are indeed some beers without being marketed as gluten-free that are below 20PPM in gluten. I had no idea! I do not know about craft beers.

 

My symptoms are milder than my acquaintance's, and yet I generally do not like to gamble with anything that might contain gluten, because I am aware of the Celiac iceberg. But sometimes it is tempting. Is there any way to have an open discussion on this without going automatically to "do not drink any beer period?"

 

Just testing the board waters.

 

Plumbago


In Topic: How Do I Search My Old Posts And Topics

29 March 2015 - 06:43 AM

Thanks! I am investigating it now. I've made some progress.

 

Plumbago


In Topic: Waffles: Van's Vs Eggo

08 February 2015 - 10:56 AM

I tried the cinnamon flavored Eggo waffles, and found that they had a very strong brown rice flavor. I think I prefer the Van's. I always liked their blueberry waffles, but I wish they put more in a box.

I'm right there with you! It's a bit of a waste of packaging.

 

Plumbago


In Topic: Feeling Pretty Sad About The Whole Gluten-Free Thing Right Now

23 November 2014 - 08:10 PM

It doesn't sound like you want much more advice, so this will be my last  - are you concerned about your iron levels? How's your hemoglobin? What does your doc say - at what point should you move to injections? that sort of thing. You can get iron injections as well as B12 injections. Has your doctor wanted to rule out ulcers as a source of blood loss?

 

Good luck, and of course feel free to whine.


In Topic: Feeling Pretty Sad About The Whole Gluten-Free Thing Right Now

23 November 2014 - 07:56 AM

Hi,

 

It would be helpful to know what your B12 level was, and what is the normal B12 range for the lab your blood was processed at. Same with the normal range for iron/ferritin. I used to give myself B12 shots. Easy to do. Also, you can do supplements for iron. I agree that animals have more heme available to us than veggies, but the veggies are so good for us!

 

Plumbago


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