When the nursing staff was trying to calm me down the RN on duty all but snickered at me when I said I could not eat the eggs on the menu because they had gluten and probably soy in them ( powdered eggs because institutions are not allowed to have raw eggs on the premises)
The RN should be in deep trouble as well as the "Dietitian" or whoever was supposed to give your chart to the dietitian.
(((HUGS))) Before I was diagnosed I suspected I was dying. My best guess was a brain tumor. (the only symptoms I cared about were the neurological ones I had others but they didn't terrify me) My best friend and I met for lunch twice both times I wanted to tell her how scared I was, get her support, her thoughts on what I should do, and tell her what to do with my belongings should I die. Both times I didn't tell her because I sensed she too needed to tell me something and I feared for her so I kept my mouth shut. Turned out she was having an affair with my other BFF's husband. She never told me, I guess because I was holding back my secret she held hers as well. When the poo hit the fan I was so sick I couldn't cope at all. Our entire circle of friends fell apart. The only one I kept was the one who lost her hubby. I regained one of the others years later after I got well. Since then, since recovering from Celiac I have made new friends who are supportive and fill my heart with joy. I have a new life and new hope. You can too, it won't be easy, it will take time. But we are all fighters here, we wouldn't have survived this long if we weren't. The old saying it's always darkest before the dawn was true for me, I hope your dawn is coming very soon.
The social eating thing is a pain in the rear but I am always amazed by the wonderful souls who find ways to include me when I least expect it. The friends at work who have shared there fresh fruit. The friends who have actually seen "gluten free" printed on something and bought it for me to try. The friends who post links to gluten-free foods and recipes on FB just for me. Sure I still look like a drug addict when the boss orders pizza for everyone. But it's okay I've got a locker full of Mrs Mary's Pumpkin Crunch, Banana Chips, sunflower seeds, and always some sort of power bar in my purse. I can cope.
Spa day is done and we had a wonderful time! I got strawberries blended with ice and water (no dairy). It wasn't quite as good as the one with yogurt, but better safe than sorry. And it was more about the experience, anyway, and having a nice, normal, relaxing day with my boyfriend.
I suspect I'm the queen of blatherers! I'm gluten free since Nov 2nd 2010. Seems like I tell at least one person daily at work more than they could possibly want to know about Celiac. As a result some are really thoughtful. One co-worker gave me an orange the other day because she knew it was safe. On the other hand a co-worker handed me a used try from today's cookout and I unintentionally gave her an, "are you crazy!" look, but I think (hope) she missed it. I know I wasn't eating the tray or anything but my brain was analyzing it anyway wondering how dangerous it was in my hands, and thinking, "gee, I bet those tasted great". Honestly I know better. I ate at the cookout last year and it was awful.
I think Celiac Disease runs rampant in my family. My brother who studied law at Memphis State (I say this to point out that he was/is smart) was diagnosed with Type 1 Diabetes in his late 20's. Knowing now that Mom and I have Celiac Disease one might think he would get tested since Type 1 Diabetes can be brought on by untreated Celiac Disease. But no, he refuses to be tested. He would rather be sick than give up his sweets (yes that's right sweets). He is 47 years old and I fear he's running low on time to mend his ways. Still it's his body his life, all I can do is share information and be there to visit him everytime he goes to the hospital.
If you love this woman you may someday be in the same place I am in with my brother. There isn't much you can do. From what I've read you are doing all you can.
thanks for the kind words! I am needing to up my supplements, but I stupidly bought supplements from a pharmacy, and since learned that their doses are ridiculously low for my needs. I've since found a healthshop that has what I need, so I'll be getting what I need there.
Crazy hey, how some basic mineral and vitamin shortage can mess with us so dramatically!
All the best to you to - trust to hear wonderful stories of success from you in the future.
Check out Pilgrams Pride online they show their ingredients so you can confirm it's gluten free. All their bottles are buy one get one free and I think they are much cheaper than any vitamin store/health food store in my area.
I too am rather broke so I've been bargain hunting.
I think it's a great idea. Ravenwood is very wise in her suggestions. I myself have a "tramp stamp" which in my case is the definition of false advertising. I get upset when people judge others on there appearance so I find it amusing to have a "tramp stamp" except.....on rare occasions when creepy people see it and make rude (lewd) comments. That really upsets me.
There are so many things you could do to mark your diagnosis I hope you are able to find something you really like. Just be certain if you do so with a tat that it is something you won't ever regret.
PS Thanks a lot now I'm wanting to get one to mark my diagnosis and my path to a healthier life. I'm learning to be more of a nature girl. I'm liking the idea of a green vine peace sign.
Another Migraine sufferer here. I have had far less and less severe Migraines since going gluten-free in November. I was having up to 18 days of Migraine per month, 4 months gluten-free I've had a total of 8 days of migraine all of which were from accidental gluten consumption (I think).