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Chiana

Member Since 29 Nov 2010
Offline Last Active Apr 28 2013 06:24 PM
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#862818 How Much "cheating" Is Allowed ?

Posted by Chiana on 10 April 2013 - 07:41 AM

Imagine for a minute that you have the flu.  There are millions of little viruses in your body, all smaller than anything you can imagine.  Your immune system systematically finds and wipes them out.  It can locate a single virus or organism in your body and irradicate it.  Now, think about this by logical extension: you are turning the most powerful part of your body on your own tissues, intentionally.  Even if you don't feel it happening, you are causing terrible amounts of damage and not allowing them to heal. 

 

My uncle has MS.  He has been in a wheel-chair for the past 30 years, from a single MS event.  He got tired while at work, sat down, and never stood up again.  His immune system did that to him, without pain or warning.  Auto-immune diseases are not something to screw with.  We have people on here with the celiac cancer, people with failing kidneys, people who lost all their hair. 

 

One of my coworkers was a Celiac who cheated from time to time.  He was 45 and looked 65.  I say was, because he died last year.  This stuff can kill you.


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#854764 I Want My Pre Gluten-Free Life Back

Posted by Chiana on 19 February 2013 - 06:28 AM

For several months after I started the diet, certain things got much, much worse, mostly in the hormonal department.  But about 6 months in, I started to feel better...so much better that I realized that even what I thought of as 'normal' before or 'healthy' before paled in comparison.  If you had anemia, you were not 'fine' before, and you need to remember that.  If they hadn't caught it that early, terrible things would have started to happen to you -- the things that we have all experienced here.  This includes cancer.  You should consider how lucky you are.  I wish that they had tested me when I was young and saved me years of slow decline. 

We're here for you.  Remember: Nothing is a loss.  It's a trade.


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#839841 Fatigue And Muscle Weakness

Posted by Chiana on 29 November 2012 - 07:23 AM

You're getting there! It took me probably 4-5 months for the excessive sleeping to stop. I was sleeping excessively before (12-14 hours a night), so for me it felt like it would never end.

I can now set my watch to my BMs. I have found I am more regular than non-celiacs, and have fewer digestive issues than non-celiacs, as long as I avoid the gluten. Hopefully, you'll get there, too.
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#830630 Questions Re Shared Toaster Oven, Initialisms

Posted by Chiana on 18 October 2012 - 05:54 AM

They are Glutino English Muffins and I have been eating them for breakfast for the last week and a half without problems.

Maybe I am reacting to the previous day's gluten, hadn't thought of that. Although I felt ok until I ate that muffin. I kind of feel like I am getting worse by the day the last few days. Sigh.

I will use your suggestion of the paper towel and won't touch the handle or buttons anymore. Thanks!


When I did a challenge it was a slow, downhill progression of worsening fatigue, brain-fog, and depression. It wasn't any one thing, and I would feel better or worse in a fashion seemingly unconnected to what I had just eaten. All I knew was that after 4 or 5 days, I felt like I was carrying around a bag of bricks. For some of us, it is cumulative.
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#705737 Attention Dog Lovers!

Posted by Chiana on 04 June 2011 - 02:23 PM

We use the same thing we use on ourselves. :D Any decent, inexpensive shampoo will do. I will say, though: don't wash your dog in the winter at all, and only wash him a few times in the summer. Washing dogs too often is very bad for their skin and coat.
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#704252 Another B12 Question

Posted by Chiana on 31 May 2011 - 10:48 AM

Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.


Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

I would let your husband know that unless he is a vegan or an alcoholic, he has a health problem that is causing the deficiency and should continue to get the shots. Nerve damage, vertigo and peeing yourself is no fun. If he wants to know what is causing the problem, go to a doctor who is willing to test for pernicious anemia and/or celiac disease.
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#703132 How Often Do You Cheat?

Posted by Chiana on 27 May 2011 - 05:55 PM

You can get gluten-free angel food cake. I saw one just the other day at the co-op grocery in East Lansing. :D You've just gotta know where to look.
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#702629 How Often Do You Cheat?

Posted by Chiana on 26 May 2011 - 01:12 PM

I think this article pretty well reflects my sentiments on this topic:

http://graindamaged....cheat-live.html

Lymphoma is a terrible, terrible cancer.
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#694917 Gluten Free...just Because

Posted by Chiana on 25 April 2011 - 06:50 PM

I also have a coworker who's sister is ceilac. As a teacher we get food, often sweets, donated to us for appreciation in our teacher's lounge. When I long for just a bite of one of the sweets everyone else is eating my coworkers response is "my sister is celiac and she cheats all the time, just eat a piece." Um what?! No thank you...I'd rather not be up all night sick!

I do not understand why some people are just totally and completely insensitive.


It's so hard being polite in society. I would have had the hardest time not saying, "Well, she's an idiot and is going to die of cancer." That obviously wouldn't win me any fans. ;D

I just try to remind myself that most people are uncomfortable with people who do their own thing. A lot of people spend so much time and effort just doing things to 'fit in' (the reason fads exist in the first place) that seeing someone confidently break the mold makes them uncomfortable and makes them question their own world-view. It's possible that she is not questioning your health problem...Instead, perhaps it bothers her that you are unwilling to risk your health just to 'fit in'. What and how people eat is part of their identity. Every time there is a special event or milestone in my boyfriend's family, they celebrate by going out to eat. When I suddenly couldn't eat the same things and at the same places, it was like there was a giant wall put between me and the family. People bond and form groups over communal activities like eating. Once you stop participating, it's like you're telling them on an unspoken level that you don't want to be part of their group anymore.
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#689886 Confused. Sceptical About Diagnosis.

Posted by Chiana on 05 April 2011 - 09:57 AM

If you did the biopsy now, you might not show damage anyway, as you have been on a gluten-free diet. If you were to get a biopsy, you would want to be eating gluten at every meal for months before-hand.

The low-carb lifestyle may explain why you have been seemingly asymptomatic, and could also lead to a false negative on the biopsy. The biopsy just looks for damage to the intestinal lining due to repeated inflammation from the antibodies. If you don't have gluten very often, your body may be able to heal well after each incident, leaving little or no evidence.
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#682148 Still Learning To Eat Gluten Free. Sleeping 10 -12 Hours. Related?

Posted by Chiana on 10 March 2011 - 07:32 AM

I am 4 months in and I'm still really variable on how much sleep I need. Sometimes I have to nap for four hours in the middle of the day after 9 or 10 hours of sleep at night.

I'm so glad that I read this thread. This used to describe me when I was young (and on gluten) and describes my son now, even though he is gluten-free. However, he is not as strict as he could be. He's a gifted student and a good kid but he can't wake up. I was wondering how he'll be able to survive next year at college. I've convinced him to be really strict for a month or two to see if it helps.


Actually, as long as he is smart about when he schedules his classes, he'll be ok. I don't schedule anything before noon unless I absolutely have to. (It was actually my terrible minimum-wage job that suffered.) Though, he may get more strict on his diet when he realizes that he could be out having fun instead of sleeping all the time.
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#671085 Well, Guys, It Looks Like I'm Here For The Long Haul :)

Posted by Chiana on 27 January 2011 - 02:46 PM

I started a gluten-free diet shortly after Thanksgiving, and was on it for about 5 weeks. I was feeling a lot better, but decided to go off the diet for a week to see if I got ill. After four days I had to stop...I was dizzy, exhausted, nauseous, and depressed. My whole body hurt and I couldn't focus. It's been almost two weeks since I started the gluten-free diet again, and I'm feeling a whole lot better. I can get out of bed in the morning, and stay awake during the day! So, it looks like I'll be hanging around. :)

My name's Alis, and I'm a computer science student at the University of Michigan - Flint. I graduate in May - SCARY! I split my time between Flint and East Lansing, where my gent lives. :) A good number of my friends and family are in the medical profession or are chemists, which gives me the opportunity to get answers to all of the silly questions I ask while researching Celiac disease.

I'm also a bibliophile.

By the way, the Guido's in Okemos makes an amazing gluten-free pizza from scratch. The owner's mother has Celiac disease, so they are amazingly careful about contamination. I can't help myself...it will take me longer to heal because I'm a cheese addict.
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#660470 Food Stamps

Posted by Chiana on 14 December 2010 - 10:08 AM

In the past we have split the upfront membership cost of Sam's Club or Costco with friends and relatives. Then, the leader of the group compiles a list of foods each household needs, and picks it up. Everyone comes over and divvies up the 20lb. bags of green beans, etc. and splits the cost of the food. In Michigan, food stamps are on a card now called the Bridge Card. They work like pre-paid debit cards, so you can hand the leader of the group a few of them. We also buy a large number of turkeys around Thanksgiving when they are $.29 a pound, and fill our deep-freeze in the garage with them. We used to be a macaroni and cheese/ramen family as well, but I can't do it, and it's really not nutritionally sound over a long period of time. It's inexpensive meat/beans, rice/potato, and frozen-vegetable time for our family.

Once it hits summer, we grow our own food. Seeds are dirt cheap (seedlings are not, so grow from seed if you plan to do this.) During tomato harvest time, we can home-made marinara sauce and salsa for the winter. A few favorite plants come in with us for the winter in big pots. We get a couple of red bell peppers a day from the pepper plants we brought in this winter. We would never be able to afford bell peppers otherwise -- they are like $2 a pepper for the red ones here, right now. I grew them from seeds I got out of a grocery store bell pepper. :D

If anyone wants to do a seed exchange now or in the spring, send me a PM. :D
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#659309 Gluten-Free Diet Effects On Non-Celiac Sufferers?

Posted by Chiana on 08 December 2010 - 08:07 PM

My fiance is a vegetarian and gets sick if he gets contaminated accidentally with meat. It's probably the same way if you eat gluten-free all the time. I would suggest he eat gluten free at home with you, but not when he eats out. Unless he wants to go all the way.


I thought about the vegetarian thing, because he was a vegetarian with one of his exes many moons ago. I think that perhaps meat is harder for a system to digest, and when you go vegetarian you eat nothing like it for a long period...Whereas, Celiac sufferers eat rice, corn and potatoes, which are similar foods. We aren't completely starchy-plant-free. They are completely meat free.
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