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Victoria6102

Member Since 16 Dec 2010
Offline Last Active Feb 28 2013 07:11 PM
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#805833 Gluten Free Cosmetics & Body Care Products For Celiacs

Posted by Victoria6102 on 23 June 2012 - 03:38 PM

Just as a side note, Burt's Bees products may be cross-contaminated, according to the company. I used to use it and my lips would break out so I called the company to see if it was 100% gluten-free and they said it may be CCed. Now I use Soft lips brand, which is 100% gluten free, their whole factory is gluten free!
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#801313 Did I Do A Bad Thing?

Posted by Victoria6102 on 06 June 2012 - 07:02 PM

If you have celiac, you can't eat gluten, period! You must ALWAYS be on guard and make sure what you are eating is not CCed! With the right planning and preparation, you can travel anywhere and eat gluten free. It may cost you more time in preparing, searching for things to bring with you, and doing research. but just bring your own food that won't perish and a frying pan. When you arrive at a destination, pick up some chicken, veggies, and fruit to supplement what you've brought. It can be done, and your health is worth it! Cheating is a big no-no for people with celiac! Not trying to be harsh, just telling you the truth:) heal up quickly :)
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#800186 To My Friends!<3

Posted by Victoria6102 on 02 June 2012 - 04:28 PM

To my amazing friends!
The ones who hugged me when I was sick and never felt better.
The ones who patiently listened when I called them to tell them I found out the answer to my sickness, and spoke comforting words as I cried.
To the ones who give me strength to keep on going, even when the gluten-free road gets rough. ;)
To the ones who encourage me when I accidentally get glutened.
To the ones who keep me in their prayers cause they know it can be tough!
To the ones who love me for who I am, regardless of all the things wrong with me.
To the ones who stick up for me when no one else will!
To the ones who are just the BEST friends ever!
Without you, this journey would be a million times harder. I love you! Thank you for being my friends!:)
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#800044 Just So Tired Of It All

Posted by Victoria6102 on 01 June 2012 - 08:47 PM

I am going to give you permission to whine. I have an 11 yr old celiac. I have vented here only to be told that I needed to get into counceling. But I don't. I just need to be heard. It is hard to take a child's food everywhere. It is even harder to deal with the emotions that come with them feeling different. I don't tell my child to grow up or suck it up. I tell her that I wish I had it instead of her but that we have to do this thing. Moses got tired of holding up his arms (as long as he held them the battle was won)so Aaron and Hur held them up for him. Sometimes, we just need an Aaron or Hur to old up our arms so we can keep winning. I'll hold yours up because today I can. Tomorrow you may have to hold mine up.


What a great analogy! I love that story:)
Reading your post made me cry!:( I'm glad you don't tell your daughter to suck it up. My mom doesn't tell me that either. Sometimes, encouragement doesn't mean you have to pretend everything is ok (when it's not!), but rather it's telling each other that we can get through this, we can help eac other, we can be an Aaron and a Hur. We are a special group of people, with a disease that requires strength and devotion and commitment to your health. We are here for each other...this forum is where we encourage each other. Because despite any differences we may have, one thing brings us all together, Celiac! Hang in there, we are here for you. I understand how difficult it is for you, I know we all do! It's a tough life, not as tough as it could be, but tough nonetheless!
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#797753 Life Has A Way Of Playing Cruel Jokes On You...

Posted by Victoria6102 on 23 May 2012 - 08:58 AM

I know how you feel. I've adjusted to where most of the time I'm pretty positive about my diet. But every so often I'll get a week where I feel so angry and upset, missing how life used to be, feeling like I want to just curl up in a ball and cry. basically, I have a pity party. And after all I've been through in my short life, I think once in awhile I deserve to feel a little bad for myself , don't you?
I know people say "well you could be worse off, like having cancer or sickle cell anemia" well I'm very thankful to not have those things. But not comparing celiac to any other disease, just how bad it is in itself, it's a pretty awful disease. Some people it effects in worse ways than others. Sure, maybe I don't have cancer, but I've spent the last 7 years of my life feeling like I could throw up at any second, chowing down saltines to try to make myself feel better, when in reality saltines were the very thing making it worse. The last few years have been complete misery. Then you finally get an answer to why you're feeling so bad...and they tell you have to give up a HUGE food group and can never eat it again unless you want to damage yourself. And it's not just giving up gluten that's so hard. It's dealing with all the idiots out there who have no clue about Celiac or gluten and make your life miserable because now you're not "normal". It's all the time you have to spend researching to make sure you don't get sick. It's the thought that there's no hope for a cure, for you to ever get rid of celiac, atleast not in this generation. And the thought that no matter what you did you couldn't have stopped yourself from having it, and that no matter what you do, you will always have Celiac.

Sorry didn't mean to be negative....but all that to say, I know how you feel. I know it is tough and I KNOW it does NOT seem fair. But it WILL become easier and you will start to feel less and less upset about it. Like me, maybe you'll have a time every once in awhile where you feel upset again. But those times will become fewer and fewer . It will get better!
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#792926 Igg Testing -Recent Article Questions Reliability

Posted by Victoria6102 on 02 May 2012 - 07:21 PM

Not every thing published is true.....if you're at wits end and can spend $100 to take this easy test, I don't see what's the big deal. It makes the elimination process easier. It worked for me. :) everyone I know personally who did this feel better from following the results of this test and I've found it quite reliable!
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#791277 Undiagnosed Celiacs 98%

Posted by Victoria6102 on 26 April 2012 - 08:30 PM

I'm a teenager and I understand that it's hard to bring your own food with you for everything you do with your friends. But her health should be more important to you than her having friends. Getting celiac has shown me who my TRUE friends are! And now, gluten free cakes that I hated before, now taste normal to me. If you don't make abig deal out of it then it won't seem like such a big deal to her. Tell her her food looks good, tell her she is lucky to be one of the kids who found out she had celiac disease and didn't have to wait til she was older to figure it out!

Thr doctors believe I got celiac 2 years before I started having symptoms. After those 2 years I got very bad symptoms and wasnt diagnosed for another 4 years. I WISH I had found out before I got so sick. I am still recovering now! Just trying to help you see that it's better to catch it before you start having serious problems from it! Good luck! Don't worry it will get easier and it will get better! :)
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#779115 Not Tolerating "low Gluten" Host

Posted by Victoria6102 on 07 March 2012 - 08:55 AM

Jesus wouldn't make you eat something if it destroyed your body! I don't eat the cracker when we have the Lords supper, and everyone knows its because I have celiac not because I'm rebelling against the Lord! Do what's safe for you. God gave you celiac, He isn't going to punish you for not eating the wafer! :) good luck hope you feel better!
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#693419 Annoying Friends!

Posted by Victoria6102 on 19 April 2011 - 06:13 PM

Hey all,

Well I've been on the gluten free diet for about 7 months (it feels like it's been 7 years haha ;) ) I was diagnosed with Celiac in September, 2010.

In the beginning, I obviously had no idea which gluten free foods tasted good and which ones didn't. I do a lot of activities with my youth group at church, so I am constantly bringing meals and snacks with me and eat them in front of my friends. So, in the beginning I would bring some pretty nasty stuff because it's all I could find. My friends were curious and wanted to try my "strange and abnormal food". I let them and they ended up wasting my cupcake and, may I say, being quite rude by wiping what was left of it all over the pavement right in front of me. The next time I had some crackers and I got up to get a napkin....when I came back my friend had reached her hand in the box (while eating pizza) to try one of my crackers. When I said that I couldn't eat them now because of that, all my friends decided to laugh at me and make a big deal out of it. I didn't get what their problem was...

So after that, noone really wants to try any of my food (not that I want them to). But they make it a point to say something about my food, like "Oh, what do you have today, another meal that looks and tastes like rotten dog food?" Or, "How can you eat something so disgusting like that." Why do they need to make such unnecessary rude remarks to me?! Going gluten free is hard enough as it is, and I don't need my friends acting like this on top of it all.

I also get the annoying questions like "What are you going to do when you are dating, tell him 'oh we have to go somewhere gluten free'" And they say "gluten free" like I am some sort of exaggerator. That's another thing......they don't believe me. Especially about cross contamination. I try to explain that I am doing this because it is for my health..sometimes I even use scary things like "If I eat that my body will destroy itself." hahaha...I have to have a little fun with them sometimes! ;) But most of the time I feel like either A.Freaking out!! B. Wringing their necks. or C. Praying that they all get celiac disease. lol

So how do you deal with those things:
1. Your friends not believing you or saying you are exaggerating.

2. Your friends making awful comments about what you're eating and about how careful you have to be.

Any advice would be greatly appreciated!!

Thanks :)
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#662743 Any Celiac Teens Out There?

Posted by Victoria6102 on 23 December 2010 - 04:04 PM

I'm 14 -I was diagnosed almost 2 years ago...

I am 15 and was diagnosed just a few months ago...you say you are a Jesus freak! Well, let me tell you, I love Jesus too and I don't think I'd be able to get through this without Him!!!!
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