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Kelleybean

Member Since 19 Dec 2010
Offline Last Active Feb 19 2014 05:11 PM
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#839035 When My Child First Went Gluten-Free, I Noticed _______

Posted by Kelleybean on 26 November 2012 - 10:44 AM

My 2 year old has been gluten free for one week. I have not seen any changes yet. I know one week is not much, but I was so hoping for a magic bullet...

When did you first notice changes/improvements?


Our situation might be a little different because my son has a gluten intolerance related to his autism but is not celiac. Unfortunately I did not notice any changes right away. I say unfortunately because I didn't have any immediate clues that it was helping. But over 6 months his language test scores went up by 20 points (from severe deficit to "within normal limits"). The biggest thing that told me that it was helping was when we did a gluten test. After a few days of gluten his behavior changed completely - meltdowns, very unfocused, hyper. So hang in there. I think one of the most frustrating thing about testing a gluten free diet is that you don't always see any changes right away, which leaves you wondering whether it's helping.
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#838912 Struggles With 4 Year Old

Posted by Kelleybean on 25 November 2012 - 04:45 PM

We figured out last spring that my son is gluten intolerant. No idea if he has celiac or NCGI, because we figured it out after making our home gluten-free to keep me from constant cross-contamination. He's always had stomach problems-- reflux as a baby/toddler that went on longer than our peds expected, frequent complaints, C&D, and then last winter/spring, things went up in intensity and I would get calls from his school that he was crying in the bathroom or had gone through all of his changes of clothes (even though he'd previously been pretty solidly toilet trained). We didn't jump right to gluten because he's not genetically related to me, though we did wonder about wheat when he was a toddler because his face broke out sometimes after bread products.

Anyway, once we were able to see the connection between episodes of bathroom drama and consuming gluten out of the house, we took it completely out of his diet and many things improved. Normal poop, more stable mood, generally more pleasant child. Over the summer when we were traveling he started to have constipation trouble. Made some sense since we were traveling and out of our routine. We were also doing some dairy trials since he'd been off dairy for a while to see if it helped his frequent congestion issues. However, it never really got better once we were home. At this point we're doing daily miralax doses, and he's still having hard poops, big belly, and complaining of pain a lot of the time. Complicating this issue is that he's incredibly picky about food. He seems to have some sensory issues, so has trouble with some textures (though I haven't been able to fully figure out what in specific). We also were vegetarian, and then as my intolerances grew, had to add in more meat, and he is still pretty vehemently veg. We encourage him to try things, but he hates it and is distressed at the idea of meat. And since we removed gluten and dairy right at the point when a lot of kids become pickier about food, we've had trouble finding other things to put back in without a major battle. Left to his own devices he'd live on PB and gluten-free bagels. He will eat fruits and vegetables, though it sometimes takes a bit of coaxing/struggle. He hates most forms of protein other than nut-based ones.

At this point it's hard to know what's causing what. Is he tired and cranky and constipated because he's not eating a balanced diet? Or is something else irritating him? Is his pickiness causing the constipation or is he picky because his stomach is cranky because he's contipated? Is there something bigger going on that forcing him to eat new things won't fix? He's very strong-willed, so trying to force anything is kind of a losing battle. I try to find ways as his parent to sidestep the head to head confrontations and get him to follow drections, etc in different ways. But he will not be tricked or otherwise convinced with food.

Any suggestions about where to start with this? We will probably chat with the pediatrician about it, but so far they haven't been terribly helpful about it (though at least they are supportive of our decision to remove gluten without a clear diagnosis). I know we need to add more variety to his diet no matter what, but would welcome suggestions about ways to do this without a battle. So tired of mealtimes being a massive struggle. So tired of seeing him tired and cranky and hurting after such a promising start to his gluten-free journey.


I could totally relate to your post! My son is on a gluten free diet because of his autism, and he is SO picky about textures. Won't do meat except the occasional hotdog and won't do veggies unless they are pureed (very sensitive to texture). So frustrating! I don't know about the medical part of it, but I do have some ideas about how you can vary his food. I sneak mashed beans and pureed veggies (actually use baby food) plus 1/2 c applesauce into Namaste muffin mix. He will also do spinach in his smoothies if I add other sweeteners like bananas - can't even taste it. Sometimes I'll add pureed squash or pumpkin to the batter for French toast. Pancakes and waffles are also easy to play with. My son will also do the "5 minute mac and cheese" from the Spunky Coconut website. Has a cashew base.

One thing that I did that was really helpful was think about what my son ate already and really think about what those foods have in common. In his case, he liked soft (so we decided hot dogs were worth trying) and bready (so we do muffins with hidden ingredients). If you are trying something new for dinner, set yourself up for success by having something else that he really likes (first tries the least preferred food, then can have the favorite) and make sure he's hungry.

Good luck!
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#826828 Almond Butter/pb Recall Expanded

Posted by Kelleybean on 02 October 2012 - 09:19 AM

MOre PB and almond butter products being recalled

http://www.fda.gov/S...s/ucm320647.htm


BTW - lately I've been making my own almond butter and it is SUPER easy. I just roast some raw almonds for about 15 minutes, let them cool slightly, then throw in the food processor with some salt and coconut oil. If I bulk order the almonds from Amazon, it is way cheaper than the store bought brand. Just thought I'd throw that in there, b/c until recently it never occurred to me that I could do my own.
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#692507 Told My Baby May Be Autistic, Could It Be Celiac

Posted by Kelleybean on 15 April 2011 - 04:43 PM

My son was diagnosed with autism at 18 months. Stomach issues are VERY common with autistics - it is theorized that these stomach problems can aggravate autistic symptoms. Many parents have tried a gluten free/casein free diet with their autistic children and had incredible results. The problem is that a blood allergy test may not reveal a sensitivity to gluten or casein, so the only way to know is to try the diet. You mentioned yeast - yeast buildups are also very common for autistic children (not sure about celiac - someone else here might know more about that).

Keep in mind that there is a HUGE range of autism and it can present in so many different ways. We didn't think that my son had autism at first b/c he could make eye contact, liked to be held, etc. So I think the answer is that it could be celiac, but could also be autism. Please know I'm not AT ALL saying your child is autistic, I just don't want you to rule it out b/c obviously if she has autism you want to know. I would look at both, if nothing else for your peace of mind. You could also try going gluten free (and even casein free) and see if it makes a difference.
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#686407 The What's For Dinner Tonight Chat

Posted by Kelleybean on 24 March 2011 - 02:45 PM

We made the cream sauce from cashew milk from the Spunky Coconut, added it to some gluten-free pasta and added a can of chickpeas. My picky 3 year old ate it, so we're adding this recipe to our rotation.
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#684353 Dairy Free/soy Free Muddy Buddies?

Posted by Kelleybean on 17 March 2011 - 09:28 AM

I don't know about this recipe in particular, but I did sub Earth Balance for butter in a chocolate chip cookie mix and they came out great! I'll bet it will work.
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#673843 The What's For Dinner Tonight Chat

Posted by Kelleybean on 09 February 2011 - 04:08 AM

Quiche with a waffle fry crust
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