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Member Since 19 Dec 2010
Offline Last Active Jul 26 2011 04:51 PM

Topics I've Started

Is This Crazy?

28 December 2010 - 10:50 AM

Hello, this is actually my second post here (my first was just a general "Does this sound like Celiac?"), and now I'm in the middle of being tested and such. Before I went in to the doctor, I ended up going gluten free because I was in the middle of college finals as well as participating in a friend's wedding. It was only 4 or 5 days, and I was back on gluten as soon as that was all over. It's been 2 weeks since I've fully been back on the gluten. Since going back on the gluten, I have been very ill, so ill in fact that I just can't handle 3 gluten filled meals a day- I eat gluten free once a day just for my own sanity. I should add that I'm not being extra careful or anything to avoid cross contamination since I'm supposed to be back on gluten. Anyways, this brings me to why I'm posting.

After getting incredibly sick after breakfast and lunch, I had some Annie's gluten-free macaroni and cheese for dinner last night. My stomach started cramping afterward, which I thought was peculiar. That had never happened after eating any gluten free meal the past 3 weeks. I had a glass of milk this morning with my gluten free meal of the day, same thing except much worse. My stomach and abdomen are cramping quite painfully. I know a lot of Celiacs have problems with lactose, which is what got me thinking. It seems very sudden, however, that I should be having problems with it now after never having issues with milk before (one of the very first potential diagnoses was lactose intolerance, and cutting out milk seemed to do nothing). Can problems with lactose develop in a matter of weeks? Have I lost my mind, or is it just possible cross contamination because I'm not being careful?


19 December 2010 - 09:13 PM

I was just wondering if I could get some input and opinions from people who know a little more than I do. My diagnosis has been a mystery for well over a year now, and probably much longer now that I think about it. My doctor recommended that I go see a gastroenterologist to be tested for Celiac/Coeliac; he called it sprue, but from what I understand that's just an old name for it (he said nothing about Tropical Sprue, which I think is a little different).

Anyways, I guess it might be helpful to see what you think if I list some of my symptoms. For the past year, I've had excruciating abdominal pains on my right side about once a month or so. The pain lasts about two weeks and generally follows a week of vomiting once then not being able to get off the toilet due things as equally unpleasant from other ends. I ended up having a laparoscopy to look for endometriosis, and I just had a cyst. While in there, the doctor also noticed that my intestines were very swollen, alarmingly so actually. I have always gone to the bathroom rather infrequently, so we were thinking it could be IBS.

I started increasing my fiber, did a colon cleanse (one of the ones prescribed before a colonoscopy), and tried to change my diet accordingly to accommodate IBS. I started having problems again, which is what led to my doctor suggesting that I be tested for Celiac. After he said that, I started noticing that most of my symptoms generally occur after I eat. I'd say I'm nauseous at least 95% of the time. I get abdominal cramps and awful heartburn as well. In fact, I had a bowl of grapenuts, thinking it would be good for the IBS, and was in tears later due to the pain in my abdomen. I got the point, again, where I could only eat a little before I'd have to rush off to the bathroom because I felt like I was going to be sick. I've had problems with my stomach all my life (I get these stomach aches where I feel like I'm going to vomit, break out into a cold sweat, and start shaking uncontrollably), so this wasn't unheard of for me to not be able to eat due to stomach aches. My weight is constantly bouncing around from overweight to under (I'm supposed to weigh 115-120, but I can be anywhere from 105-130 and have in the past year).

I started doing more research since a lot of things started to make sense. I was able to start making connections to things I had no idea could be related. I suppose I could just list all of my health issues that I've had, and then since hopefully you know more than I do, you can tell me what exactly is related and what isn't.
I had colic as a baby and needed predigested formula. I was diagnosed with hypoglycemia 5 years ago when I was 15, and over the next two years, I needed two sinus surgeries over the next two years due to chronic sinusitis. I have just about every GI symptom known to man: constipation, diarrhea, nausea, heartburn, vomiting, bloating, gas, cramping, you name it. I have pain in my lower back, and I've started noticing dark spots on my teeth (I generally get comments on my enamel at the dentist's office too). Have I mentioned that I am always exhausted? It doesn't matter if I get 13 hours of sleep- I'm always tired and look like I've been punched under the eyes. My great and great, great grandmothers also both had terrible stomach problems requiring them to take a laxative or have an enema every day, so I could have the hereditary factor, but we are not sure what or why they had problems. I'm only posting all of this because I've heard it can all be related to or caused by Celiac/Coeliac.

Oh, I feel like I should add that for the past 4 or 5 days, I have eaten gluten free because I couldn't eat or sleep, and I had university finals and a friend's wedding to be in this week. I know I am not supposed to before I have my biopsy, but I didn't know of any other way I could try and make it through the week. I had no idea if I'd feel any better, but I just had to try something. I could start to tell an immediate difference because I could eat an entire meal and stop when I got full rather than stopping when my stomach would start to cramp and feel sick. I genuinely have felt better, not completely well, but better than I have in a while. I've gone back to eating gluten again and the heartburn and nausea are back in full force (I had a few bites of bread with dinner that was otherwise gluten free, and this is the first time I've had problems since I started eating gluten free). I don't want to mess up any tests by not eating gluten, and I'm scared I have. I am hoping that since I can't even get into the specialist until the first week of January for a consultation and I only ate gluten free for less than a week that I will be fine for the tests.

Since I feel so sick after just a few bites of bread, does anyone know if I can cut back the gluten and still get good results for a test? I could use any sort of tips, if there are any, to live through the symptoms until the tests and diagnosis. I just hate to go back to feeling so sick, especially since it's the holidays and I had been feeling better. I'm still not even 100% if this is what I have, but it seems like it could be. After years of having so much wrong with me and so many problems, I think it would be great to finally know. It's even better if it could explain most if not all of my other health problems as well. Any input would be greatly appreciated, and I'm sorry this post is so long. I could just really use some sort of guidance right now.

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