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Member Since 25 Dec 2010
Offline Last Active Feb 01 2015 11:35 AM

#915996 I'm So Damn Hungry! Help!

Posted by on 13 May 2014 - 08:28 PM

Four years ago I was in the EXACT same spot, I got diagnosed in my mid-40s.  I lost lots of weight and had no idea what to eat at all.  I was starving.  And little or no alcohol for six months since the intestines were injured.  That was real tough.  What to drink/not drink is a whole other thread...but on to my very first gluten free diet from the first days and weeks:


Breakfast--gluten free cereal (lots of the Chex are gluten free now) with sliced bananas because they're more filling.  I couldn't do milk at first, so I used soy milk at the time.  You get used to it.  Scrambled eggs and a baked potato (believe it or not).  I was too lazy to make home fries.


Lunch--tuna or gluten free lunch meat on gluten free bread.  Goodbye Gluten (believe it or not) is about the only gluten-free bread I can tolerate taste-wise...but know that nobody's really gotten gluten free bread close.  I gave up on frozen gluten free bread since it would disintegrate as soon as it thawed.  You can throw in a fresh ingredients salad with gluten free dressing (lots now, look them up by brand).  I did lots of salads with canned tuna in them.


Snack--my first post-celiac snack was Nestle's toll house semi-sweet chocolate chips (most are just now being labeled gluten free, check closely on the back) and Diamond Almonds mix.  Most Diamond nut products are gluten free, look that brand up too if you like nuts.  I had to gain weight back, thus the nuts mixed with chocolate for my sweet tooth.


Dinner--Broiled or baked chicken breasts, fish, pork...all the raw stuff you cook yourself.  Steaks and baked potatoes with gluten free margarine like Olivio or real butter (look up your brand).  Steamed raw vegetables or from frozen (the plain, frozen vegetables).


Progresso has labeled soups gluten free right on the front or the side of the can (in smaller print with some other facts).  There is "gluten free" Mac and Cheese made by Annie's I think it is.


A note on meats...DON'T get any meats that say things like "up to 12% solution" or whatever.  Economy grocery stores carry those a lot, so steer clear there.  BUT at the same time there's a store here called Aldi's which is an economy store but labels TONS of their regular products as gluten free, I've seen the labeling almost double it seems in the four years since I had to start gluten free myself.  If it says gluten free, you are good to go.


YOU WILL GET THIS DOWN...trust me and after awhile it just becomes regular.  No, you can't go out to eat many places like you used to because you've gotta get gluten free...but there's more places than ever before with a gluten free menu and you can go there ONCE in awhile.  If you're not negative for active celiac yet (the <20 Iga reading) DO NOT take chances.  Your life truly depends on stopping the active celiac condition in your gut but it CAN be done...but you must eat only whole foods or goods (think the "perimeter" of the grocery store) OR gluten free labeled products.  It blew my mind the first time I walked into a grocery store and realized I couldn't eat most of the of the stuff in there.  I never gave it a second thought.  Now I don't even think about that anymore, and just go for the stuff I know I can have and the mind-blowing is in the past.


One of my first celiac tricks was...if I wanted to know if I could eat something and it wasn't labeled, I would need to see three sources that told me it was gluten free:  these boards, manufacturer's website and a third place like gfoverflow.com.  If I got three "yes" answers for gluten free then I could eat it.  For example, Heath bars (my weakness).


After awhile, you will have quite a regular and full list of "safe" foods.  The hard part is passing up most things everyone else eats (even with the family...they'll have to accommodate you there) and sticking to what you KNOW you can eat.  No guessing, because there is no cheating.  Your intestines have been injured and have to heal.  And the WILL heal and stay healed with gluten free eating.  But you can't cheat, you'll get sick all over again and you put yourself in a high risk category for really, really uncool illness.


It was hard as hell for me, I hear ya.   But like anything new you will question, learn, assimilate and incorporate it into your daily life and routine.  You are now the FIRST source and LAST word for celiac among your not-understanding or even well-meaning friends and don't be afraid to be really on top of it.  Get these good habits right at the beginning and honest, with time it's like driving a car.  Second nature.


Not second nature now, but it will be.

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#915991 I Need Help Dealing

Posted by on 13 May 2014 - 07:33 PM

I am truly sorry you are having a rough time.


First, I would go to youtube and look up some guided meditation...either voice or music and voice.  I never went for any of that stuff when I was younger but, presented with health problems of my own, I realized I was going to have to do something to slow my brain down so I can start to deal.  I really had to work on training myself to slow down and relax the body but it does help and you get better at it (if you've not done it before).  Fear and anxiety can be tamed and toned down so your brain can get to work figuring things out...honest it was almost as hard as the new celiac itself to get used to.


Secondly, look for a psychologist/psychiatrist that deals with health issues and/or other things specific to you.  I always looked for older, more experienced people because they've seen more...at least that was my take on it.


If it's mainly celiac that's got you down these boards are great for finding info and asking questions, but sometimes answers aren't posted right away.  If it's new celiac, and older in life, know that 98% of us (including myself) were also completely overwhelmed but the "logistics" of living with the thing DO work out.  Honest, the confusion passes and the new rules just become normal.  If there are other things going on as well, other boards for those things can be excellent and I did that, too. It helped.  You can pull apart what you need to know and get answers in different places.



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#785867 Autism Rising

Posted by on 07 April 2012 - 05:40 AM

I've been in special ed. for 20 years. Some of the things that pass for "autism," and I am FULLY aware of what things look like all over that spectrum, I think "REALLY?"

1 in 88 I've heard recently??? Come on.
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#785855 Tired Of Eating

Posted by on 07 April 2012 - 04:50 AM

I am also dead sick of thinking about every damn thing I put in my mouth, not being able to go out with friends anymore or having to be "different" at a restaurant (if I can find one), not able to drink what I want and searching for stuff I can have. It SUCKS. Celiac disease SUCKS...there I said it!
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#665999 Zeers Website

Posted by on 06 January 2011 - 09:45 PM

Right but it's a pay site, like five bucks a month. Perhaps the question is

1. Does anybody have a subscription to it and like it?

2. Is it accurate?

3. Is the information worth five bucks a month? I don't know, I kind of thought that was kinda crappy to charge people for information that helps them not get sick
or worse. Just my first impression, though.
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