I had graves dx when I was 30 not long after the birth of my son (which is a common), i was on carbamazole for a year and then my levels were normal. 3 years ago after suffering severe stress (husband had lung cancer) my graves started again and they tried to control with meds. I was told that because it had come back, it was likely to continue to be unstabalised and the safest way to control would be to nute. Last year i had RAI and wasnt allowed near my son for 3 weeks. It didnt work so in march this year i had a total thyroidectomy so now on levothyroxine. i have recently had positive blood tests for celiac (awaiting biopsy) .. Ive often wondered if i went gluten free before the operation how my graves would have reacted. But i was told that if i didnt have my thyroid nuted, it would eventually shut down completely...dont know how true that is!
Very interesting topic which I'm now really tuned into. I've been on celiac diet for several years now, in earnest for about 2. Take lots of vitamin/mineral supplements prescribed by my doc. Checks blood every 6 to 9 weeks to make sure all is okay. About 7 years ago, before I found I had celiac, I was dx with a huge goiter wrapped around my trachea. After checking the attending nodes it was decided there was no malignancy, but because it was positioned as it was they couldn't do the nuke. Had to have it surgically removed because if it had swelled at all after nuking it would have squeezed the trachea shut! All went well, including the repositioning of the parathyroids which control calcium levels in the body. I didn't lose the ability to talk or sing, and that made me very happy! So, I've been on levothyroxine for the past several years. Lately my TSH has been going up and up almost to 10 which panicked me (not my doc). He says all the other thyroid tests he's done look fine although he's tweaking the treatment with a tiny bit of T-3. He says not to worry about the TSH and I think that's what's being said by some of these postings, too. I'll be interested to read more of this topic in the coming months.