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Member Since 01 Jan 2011
Offline Last Active Apr 08 2013 11:04 AM

Posts I've Made

In Topic: Health Complications Found In Celiacs

08 April 2013 - 11:06 AM

What other illnesses/diseases/etc have you also been tested for?   Where would a doctor even begin?  How long has the inflammation been going on?  The malabsorption of vital nutrients?  Could there be something else along with the Celiac not yet tested for symptoms are similar? 


How much time, money - blood can you spare? 


A non gluten diet is by far the most helpful for those with issues dealing with gluten.  All forms of gluten must be eliminated.  (Actually, I am to believe no human should digest any gluten.  For there is no benefit and it is just a matter of time before a problem shows in tests)


 For instance - my daughter was found to have nodules on her thyroid and the left lobe was removed.  She was placed on thyroid meds.  Her health began a decent downward.  She became ill and I insisted that she get tested for mono.  Her doctor tested her and found she had an "older" case of mono - but she will always have the Epstein Barr virus showing (which is caused by mono).  She was placed on antibiotics and steroids.  Never felt 100%.  No other tests for anything.


She came back home after finishing school and a new doctor tested her for sensitivities.  Positive for Corn, Soy, Gluten, Casein, and a few others.  This began the gluten free lifestyle.  Then a different doctor she was seeing for problems found her to have Poly-cystic ovarian syndrome.


Which one happened first?  Each new diagnosis was months/years in between.  No new illnesses/symptoms to date after going gluten-free around 2009/10. 


What is in her future?  Who knows.  By gluten free she is eliminating as much inflammation as she can that will help immensely.  We are also organic.  Lots of Juicing and Raw Fooding going on.  Medicinal TEAS, too :)  Herbal remedies.  Homeopathy.  SUNSHINE.  But we do supplement with Iodine,  B-12, etc.  We try to find Genetically Modified FREE, too.  Our water is filtered.  Our air is filtered.  Our linens and clothing is organic.  We use NO chemicals in the home or on our body. 


Her doctor recently began treating her for YEAST in her stomach.  Hmmmmm - could this be the original culprit?  Is cancer simply fungus?  Remove all those items that get moldy:  grains for sure and keep one step ahead, I suppose. 


With each new set of symptoms or complaints come the tests and hopefully the CORRECT diagnosis and treatment. 


Which came first tho - the celiac or the others that symptoms took longer to appear?  Who knows.  Diet will help. Always.  Not just for celiac sufferers.  But diet is the cure for Celiac.  Maybe for other diseases/illnesses as well.

In Topic: Newbee To This...

08 April 2013 - 10:18 AM

The good in all that is that your doctor has tested you and is treating you.  Your diet will be the main issue.  Then your support in the way of nutrients, supplements, vitamins and medications. 


I was never tested for gluten/celiac.  I was found to have gallstones, ulcers, migraines and IBS.  Oh, almost forgot reflux.  As soon as the xrays were read and reports written, I was given many prescriptions and a xerox copy of some diet to follow.  With the bill ; /


Truly, I feel my main culprit was possibly a system wide yeast infection, but no doctor would consider this.  So I changed my own diet.  All organic.  Now gluten free and no genetically modified. 


I will not touch any grain.  Sugar.  Or those items that contain them.  No alcohol at this time, too.  Gave up cigarettes.  Switched to green teas.  It was a major life change.


I have been symptom free since 2007. 


My hope is that you give yourself time to heal.

Don't let your guard down.  It is not easy, but you are not alone.  Take care. 

In Topic: Celiac Vs. Gluten Intolerance

08 April 2013 - 10:06 AM

My daughter has two blood tests that will only claim a "sensitivity."  Her doctor let her decide if she wanted the more invasive procedure to determine damage/inflammation.  She declined the biopsy.  He said either way she MUST eliminate all gluten.  We have. :)


It's family members that scoff.  Even with the two separate blood tests showing positive results. 


Since going gluten-free (I joined her in support -- I am a confirmed IBS sufferer--I did have that awful scope), we are MUCH healthier.  Took a couple of hard long years to get here but --  YAY.  IT WORKS!!


Best of health and good vibes your way.  Gluten is a mess.  Don't deal with it :)

In Topic: First Week Gluten Free - Looking For Answers

08 April 2013 - 10:00 AM

Hello!  Congratulations on the wedding coming up!!  :)  (My daughter is much like you:  reaction to corn, soy, gluten, casein, egg whites)   She has Hashimoto's and hypothyroid.  Then came the mono/Epstein Barr virus. The gluten sensitivity.  Then we found poly-cystic ovarian syndrome. 


Isn't mono and Epstein Barr and chronic fatigue pretty much the same?  Isn't it a life long virus that can be reactivated? 


Have you been thoroughly tested for thyroid issues?  Seems much of this goes hand in hand with thyroid and Poly-cystic ovarian syndrome, too.  Just a thought.


And, did you know some of the environmentally safe cleaners use soy?  I was buying BABY clothing soap and it contains soy :(  Be careful out there.


Here is something I found about Epstein Barr and neck pain,  recently: 


Authors: Shokouhi G, Naghili B.
University/Hospital: Tabriz University of Medical Sciences, Tabriz, Iran
Journal: Neurosurgery. 2005 May;56(5):E1158

Introduction: The authors present the case of a young boy whose acquired tonsillar herniation (Chiari) resolved after conservative treatment for the Epstein-Barr virus.

Patient 1: 6 year old boy had headaches in the back of his head for one weak, neck pain, and balance problems. Upon examination, he was found to have a fever and sore throat as well. Neurological exam showed abnormal reflexes in his arms and legs. Blood tests showed some irregularities as did a spinal tap. MRI showed that his cerebellar tonsils had herniated to the level of C1.

Treatment: The doctors suspected that the herniation was due to swelling related to the Epstein-Barr virus and chose to treat it conservatively.

Outcome: Three weeks later the boy was asymptomatic. Two months later a follow-up MRI showed the tonsils were higher, but had not returned completely to their normal position.

Author's Discussion: The authors point out that this is a rare complication of the Epstein-Barr virus and go on to emphasize that in cases where the Chiari is thought to be acquired, treating the underlying problem may resolve the Chiari.


http://www.conquerch...udies 3(6).html

In Topic: Glutening Reactions

08 April 2013 - 09:25 AM

  We don't eat any food unless it is prepared by us.   Health risk isn't worth it.  Even though you "feel" fine, there is no way of knowing if there is destruction/inflammation occurring while going to the restaurant, the party, etc.  Know what I mean? 


We call the banquet halls about special diet restrictions *I know of a couple wedding venues that allowed the newly married to bring their OWN food - why not a guest, as well?


Family parties --  we bring our own in individual containers, almost like lunch bags.  For there is always someone wanting to fork the salad we bring, or try something with those glutenous fingers.  :) 


GIFTS!  Yes even some seemingly harmless looking baskets of lotions, shampoos, etc are donated due to items containing wheat products. 


It does get easier.  Good luck and good health to you :)

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