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Member Since 04 Jan 2011
Offline Last Active Mar 01 2012 10:34 AM

Posts I've Made

In Topic: Canker Sores

01 March 2012 - 10:34 AM

I get them 3-12 hours later...

In Topic: Anyone Else Lose All The Friends?

20 February 2012 - 06:29 AM

Hi there, I'm writing this, not as any kind of advice to you - it's a really really tough situation - but to add to the general discussion about celiac and changing friendships.

I also went through the process in which some of my friends who didn't have the patience for me when I was sick drifted away. Especially a I used to like going out and partying, when I could no longer drink or stay up late because I was too sick, they didn't make the effort to see me and do different things. However, there were a few wonderful people who stuck around, and I made some new friends.

Now something new is happening - since I decided to be SUPER-strict with my diet (after a very long process of investigating and learning what was going on with my body, which involved other health problems too) and I am feeling much much better, stronger, clearer, calmer, and my life is much more "together", my friendships are shifting again. For years I was very tired, irritable, easily upset, co-dependant, and I was naturally drawn to similar people. In the past, if a friend was mean I would have stuck around as I needed them. Now that I'm much better I don't want to take anyone's s***! As I am less easily upset and less clingy, mean and aggressive people are just falling out of my life. It's kind of sad to see old friends go, but it's happening naturally and I'm not shaken up as I would have been before. I find myself getting closer to more together and calmer people, who in the past were on the periphery of my life.

The only thing I can say is keep on looking after yourself 100%, don't compromise on this just because the people around you don't understand, and I'm totally sure things will get better socially in time, even if it means building new friendships. And it's awesome that your man is such a gem.

In Topic: Negative Biopsy

03 June 2011 - 08:09 AM

Did the doctor take an IEL count? New research shows that this is more indicative of celiac disease then villious atrophy.



They also talk about it on this interview-


I have been gluten free for 4 years although I still fell pretty unwell (nothing compared to before though). I was told by the doctor that after all ths time but with periodic glutenings I am almost certain to have elevated IELs and that this along with my case history would be sufficient for a diagnosis.

Good luck!

In Topic: Gluten Making Me Uproot Myself

05 April 2011 - 06:10 PM

Hey MEH, thanks for the solidarity!

I felt, like you did, that something like gluten wasn't going to affect what I did and where. But really, I'm busting my a** trying to be 100% gluten free, and I manage it 99 times out of 100, but the hundredth time where I get glutened, I get really sick, and I'm bouncing back more slowly every time and I'm scared. And food being so omnipresent, the 100th time comes around pretty quickly. The thing is, as butterfl8 pointed out, its all about making choices. And my choice seems to be between being here, the only person I know with a problem with gluten, no awareness at all (except for those I've eduated ;) ) , not eating anything I haven't prepared myself from scratch (but even nuts, packets of lentils, ground coffee etc cross contaminated), not eating out at all. Right now I'm exhausted, and I still get glutened fairly frequently, it literally isn't working out right now. There's the physically getting ill and being knocked out for a few days or a week, and then there's the emotional part of feeling unsupported by the country in general- no labelling laws, no advocacy groups, no services. I couldn't find a single celiac in the whole country to share info with! I think I'm an individual who does need more support than than that.

From what I can see, at least in Spain they label food properly, there are very active groups of celiacs, directories of restaurants you can eat in safely, and specialist gluten free foods. After turning it over every which way I think I may have made the choice that it would be worth making the move to feel more supported and for my life to just be easier and frankly safer, and also that being mobile, somewhat spontaneous with eating, and travelling around on weekends are actually really important to me. I know a lot of people don't have these kind of options, but right now I do- I'm single, no kids, as a teacher I can pick up work pretty easily. If I can make it work, the whole of the rest of my life might be healthier. And if I don't like it there I guess I can come back here and somehow make it work!

It may be that I find that I still get glutened constantly in Spain, and like for many people, preparing everything from raw ingredients and only eating at home becomes the only option, time will tell. But I think maybe now is the time to try it, and I'd also have regrets if I didn't give it a go. This thread has been really helpful for me in terms of consolidating my thoughts, I've come to terms with the idea and my choices and reasoning a lot more in the last few weeks, and I feel better.

In Topic: What's Your Job

04 April 2011 - 07:25 PM

Oh, MEH, I'm truely sorry to hear that. I can sympathise as I live in Colombia and I'm currently planning my departure because of the difficulties with avoiding gluten here- I moved here before I was aware of the gravity of my problem with gluten. The teaching per se has been fine gluten-free, but the location hasn't.

I wish you all the best with finding a job that lets you look after your health.

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