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Member Since 04 Jan 2011
Offline Last Active Nov 16 2012 02:44 PM

#758498 What's The Best And Worst About Being Super-Sensitive?

Posted by on 20 December 2011 - 09:58 PM

I don't know if my son counts as super sensitive but he definitely reacts to cc.
Anyway, the best thing has been that since he does get sick from cc he is actually very serious about staying gluten free, and the people around us believe it.
Worst thing is, of course, the kid getting sick, and not being able to get an official diagnosis because of it.
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#756951 Picky 4 Year Old, Transitioning To Gluten-Free

Posted by on 15 December 2011 - 09:34 AM

Just a note on cheese - a lot of people, especially celiacs, have a problem with milk products. Part of a child's "pickiness" is sometimes a physical problem.
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#754232 Did Your Partner Support You ..........

Posted by on 06 December 2011 - 10:32 AM

I think it's pretty normal for a lot of people's partners to be skeptical and take some time to adjust to any kind of change. Have you told him that you feel that you need support in dealing with your diagnosis? Have you told him what specific things he can do to help you feel supported? Have you told him that you've been feeling like a burden? It could be that he just doesn't know how to show his support and needs to be gently guided in the right direction. My partner and I can both need those kinds of reminders sometimes.

However, I think it's really important to look at that support or lack of support in the context of the whole relationship.

First set of questions:
  • Does he take your feelings into consideration on other topics?
  • Is he been generally supportive of your hopes and dreams?
  • When you specifically ask him for help is he usually willing?
  • Does he ask for and listen to your opinion on decisions that affect both of you?
  • Are you able to talk to him about emotional things?
  • Does he sometimes willingly give up what he wants so that you can have what you want, without guilt tripping you about it?
  • Does it bring you comfort to confide in him?

Second set of questions:
  • Do you often find yourself giving up what you want to avoid a conflict?
  • Do you usually find yourself thinking of what he wants before thinking of what matters to you?
  • Do you avoid bringing things up because you are afraid of what his reaction will be?

If you got mostly "no" answers to the first set, and mostly "yes" answers to the second set of questions there may be a bigger problem to deal with.
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#752892 Parents Of Hs Seniors

Posted by on 02 December 2011 - 10:14 AM

I get that you have very valid reasons to be concerned about the trip and not want him to go. I am sorry that I may have given the impression that it seemed you hadn't raised him to be a competent person who could handle himself. That was not my intention or my perception.

From your original post, I had the impression that you were debating whether to "allow" him to take the trip or not. My post was a response to that... and aimed at giving you ideas for ways to make this squarely his decision while making sure he thoroughly looked at the issues for himself. It may be that if he really analyzed the situation he would come to the same conclusions you have about the trip.

It sounds like you have used the same techniques in the past, but this time your concerns are greater than before. I can see why you would be very concerned and contrary to your impression, I *don't* judge you for that.

I still think it's his decision to make, and the consequences of his decision are his to handle.

[i]That's how he went on the beach trip last year, doing exactly that. And the problem here is that there are many potential problems that are outside his control or mine to plan or sign off. (You do know that you sound pretty darn judgemental, right? We don't keep him locked in a closet :))

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#752659 Parents Of Hs Seniors

Posted by on 01 December 2011 - 01:28 PM

He's almost 18. He's going to be making his own decisions before you know it. This is a chance for him to practice.

If you come at it from a "no way" perspective, thinking of all the risks, you can guarantee he won't learn the lessons he needs to learn from it and it will be a power struggle that drives you apart and makes him feel he needs to tough it out and keep it from you if he realizes he was wrong.

I'd wrap my head around the fact that this is something he wants to do and is capable of figuring out. Then I'd tell him that, and make sitting down with you or another informed, experienced person to think about potential problems and their solutions a requirement of going. I would require him to write up his plan and submit it to me for review before signing off on it.

If you see he's missed potential issues, you can make notes on the plan and ask him to address them before you can sign it. I bet he'll come up with more than you think.

His solutions don't have to be perfect. They have to account for potentials that could kill him or make him extremely ill. Life is full of risk. It's our job as parents to make sure our kids get a chance to take their own risks and learn to deal with their own emergencies and failures before they are truly on their own.

In the context of a youth group with some adults and access to transportation I think it's a good way to give him a chance to learn those lessons.
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#752466 Questions To Ask The Doctor

Posted by on 30 November 2011 - 07:54 PM

I agree you need to get copies of the tests, but I'd go a step further and get a copy of my entire chart. If you call ahead, the office can get it printed up for you. Usually the older records are archived and it takes some doing to get them. Reading through my chart and my kids' charts was enlightening! I haven't been able to get my childhood records which sucks! Do it now, and then get your new info annually in the future!

Last time I went in I brought in a statement of all the symptoms I had in addition to a list of questions. I brought a copy for the doctor to keep and put in my chart and a copy for myself to take notes on. This was great, and my doctor even appreciated it.

If you have more tests you would like run or have questions about, put those on the list. You might look into potential deficiencies.

Good luck!
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#751925 Need Help With Rotation Diet And Exotic Grains.

Posted by on 29 November 2011 - 03:44 PM

It sounds like you may benefit from a diet like GAPS. It is aimed at restoring gut health and healing leaky guts. This is the diet my family has been on since February.

I have a whole series of posts on this diet on the blog linked from my profile as well as links to the book, etc. The diet completely eliminates all but monosacharide sugars, resulting in a mostly starch-free diet at least at first. Starches are difficult to digest and you obviously have problems with them, so why not just cut them out?

Rotation diets are good when your gut is very leaky. You can do GAPS as a rotation diet as well by making sure that you keep the ingredients in your soup very simple, and then rotate them. As you heal, the rotation should become less of a necessity.
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#751466 Miserable ;(

Posted by on 28 November 2011 - 08:49 AM

Processed gluten-free stuff doesn't sit well with us. Staying away from it is for the best. We reseasoned our cast iron successfully, and got used stainless steel pots.
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#751147 Positive W/ Enterolab But Not Going gluten-free Because.....

Posted by on 27 November 2011 - 11:28 AM

Why don't you get your daughter tested for celiac with blood tests? She has classic symptoms.
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#750900 Forum Pet Peeves

Posted by on 26 November 2011 - 10:35 AM

I hate when people apologize for writing too much. To really give a good answer, we need *information*! If I don't have time to read something long, I just won't read it. No one is forcing me! When I read what others have written, I get something out of it.

I agree with the others who have a problem with people asking questions then not coming back with answers to follow up questions or updates to really difficult situations.

Something that bothers me about this forum in particular are the board rules about not linking to blog posts. The same issues come up over and over and I sometimes *really* want to share the same information that I've shared before. I've written blog posts so that I don't have to rewrite up all that same stuff. It's very silly to have to type out to search the blog linked from my profile instead of just linking to it. Same deal with not being able to link to ahem, sites that sell things. It's obvious when someone is a spam poster who is just here to promote their blog or make money on their affiliate links. It seems petty and greedy to not allow regular members of the community to link to their own blog posts that are directly relevant to the topic at hand.

I also hate when people get all bent out of shape about people's typos, spelling, or grammar mistakes. I get not wanting to read big blocks of text-speak or all caps. However, jumping on people for using the wrong "there," is off topic and mean.

Last one... I think someone said it already... is when people bury a completely new and unrelated question in the middle of someone's thread. It confuses the whole thing and makes them less likely to get good answers.
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#750762 So How Was Thanksgiving?

Posted by on 25 November 2011 - 04:37 PM

It was great! We made a "parallel" meal and brought everything (turkey, chestnut stuffing, cranberry sauce, brussels sprouts, roasted cauliflower, salad, fermented veggies, squash pie with almond crust & homemade vanilla ice cream) for us to eat along side theirs. We did bring a salad and pickled veggie tray to share as well. I even invented my own new grain-free stuffing recipe. It is based on chestnuts and has pork, celery, and apple as well. I'm going to get my act together to blog the recipe. The test batch turned out better than the batch I brought unfortunately, but it was still good. Traveling with food is hard to get right.

The kids ate an insane amount. My super picky former vegetarian daughter ate a huge plate full plus a salad plate and then had seconds on turkey, pie, and ice cream as well. No one got sick and everyone was happy :)
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#747472 Thinking Of Testing

Posted by on 14 November 2011 - 10:45 AM

Getting the blood work makes sense. You may want to try going gluten-free regardless of the results, but since you can't test for celiac once on a gluten-free diet, you'll want to get the blood work first!

What was his stool tested for?
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#747127 Fruit And Vegetables

Posted by on 13 November 2011 - 08:18 AM

I have been participating here for almost seven years, and lurked for months before actually joining.

Shauna, the level of hyper-sensitivity to gluten that you describe is not just unusual. In all my time here, it is UNIQUE. For most of us, it is way over the top.

I don't dispute that these are true stories of your life, and I feel sorry that you have to live this way. But these experiences just do not reasonably transfer to the lives of the rest of us.

It seems that when Shauna posts this is often the response. I get that people want newbies to realize they probably don't have to be as vigilant as Shauna. However, I'd like to point out that she never claims everyone needs to be as careful. I think it's very clear that she realizes her level of sensitivity is extreme.

However, I for one am very grateful for her posts. We have uncovered problem areas because of her sensitivity, awareness, and willingness to share.
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#747121 Serious Behavioral Issues

Posted by on 13 November 2011 - 08:07 AM

You might look into the GAPS diet. It is gluten free and aimed at fixing behaviour and psychological problems through restored gut health. The book is well worth reading and I have a resources page, guide to starting the diet, and an outline of the first six stages on the blog linked from my profile. You start with just homemade soups and slowly add in each ingredient and new food. It has worked wonders for our family.
Aside from that - are you sure you are 100 percent gluten free? I have a post on the blog linked from my profile about going 100 percent gluten free that might give you ideas of things to check.
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#746646 Joint Pain

Posted by on 11 November 2011 - 08:39 AM

Just wondering if any of you were tested for RA or Lupus . . . or did anyone have a positive ANA test but follow-up/more specific testing for RA/Lupus didn't result in a RA or Lupus diagnosis?

My son got tested for septic hip, Lupus, blood screening for leukemia, and all those were negative. He ended up with a tentative diagnosis of either septic hip or a reactive rhumatoid arthritis to pneumonia. The drs did no take into account his past, persistent joint and bone pain, either.
We have found that removing gluten removed all those symptoms, introducing it brings them back.
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