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Member Since 06 Jan 2011
Offline Last Active Aug 17 2011 06:51 AM

Posts I've Made

In Topic: My First Time Here - Gluten Intolerance And Low Iron

17 August 2011 - 06:53 AM

I have been reading up on GERD symptoms which I seem to have (tight chest, lump in the throat sensation). What I've read is that the GERD often disappears after going gluten-free. My symptoms have come since going gluten-free (around 4-5 months in). I was wondering, do you think that my body becoming more sensitive to ANY gluten could cause me to get reflux reactions to it? Its making more and more sense to me that most of the symptoms I've had are related to the IBS induced gluten-free diet. I don't mean in a bad way but simply that I need to go totally exclusive as my body has become more sensitive to gluten. Does this sound right. Here's the list of symptoms I've experienced in the last 6-12 months:

-Heart palpatations (strong enough to have a monitor on for 7 days, finding an abnormality but not life threatening)
- panic/anxiety/depression
- breast soreness
- back issues
- Some shooting pains in the legs/Sciatica
- Muscle spasms
- tingling and numbness from pinched nerves/tense muscles
- facial burning/hot and cold sensations on one side that was bad and then decreased to almost totally gone
- Jaw soreness (TMD from jaw clenching) leading to teeth sensitivity
- Vision zig zags, three 2-5 minute episodes over a 6 month period (once sending me to the ER as I was terrified)

I believe I have slight TMD (from jaw clenching from stress), IBS (gone gluten and lactose free), low iron, hormonal fluctuations and maybe GERD.

As I said, all of this is from a period of chronic stress.

Can anyone join the dots so to speak and tell me if things look like they are connected to one thing?

Hi Amanda,

I realise your post is a few months old but was interested that a lot of symptoms have begun since you went gluten free.

All the advice you have been given is very relevant - I went gluten-free over 2 years ago and felt great for a while only to start getting bad reflux again (tight chest, something in throat etc.) after about 1 1/2 years. It was very depressing as I had been feeling so good, but it led to me giving Enterolab a try - they test for many food intolerances via your stool. I live in the Caribbean and was able to order the test and send it back from here overnight. The interesting thing is that I have discovered I am also intolerant to dairy, soy, egg and oats - many gluten intolerant/sensitive people have a hard time with these foods also, it is very very common. I cut out all of these and my symptoms have pretty much cleared up. Because dairy doesn't affect me as much as gluten, I sometimes have milk in my tea, but I definitely feel it the next day with mild acid reflux and sometimes headaches. Once you clear your body of these foods it does become much more sensitive.

By the way, you can be gluten sensitive and not have celiac disease. The harm to the body and symptoms are the same though. Dr Fasano at the Center for Celiac Disease Research at the University of Maryland has recently published very interesting information regarding this.

Hope you are feeling better and good luck - it can be a long road full of self diagnosis and research but definitely worth the effort.

P.S. Not sure if they have enterolab type testing in Australia - but I highly recommend it

In Topic: Anyone Alergic To Eggs?

30 June 2011 - 05:06 PM

Eggs flare up my daughter's Eosinophilic Esophagitus.
I feel that baking without eggs + gluten free has been a huge challenge. I highly suggest Cybele Pascal's Allergen Free Baker's Handbook.
Egg replacers
chemical reaction vinegar and baking soda
Ener-G egg replacer
some baby food puree (some just don't do it for me, yuck)
flax and warm water
The list is quite long and it really depends on what type of thing you are making and how well the replacement flavor blends into the recipe and the resulting texture. Just know it can be done and done well, that cookbook is great!

Thanks for the recommendation of Cybele Pascal's baking book. I have been gluten-free for 2 years and recently found out I also react to Dairy/Soy and Egg. To make it even more difficult my 13 year old is Gluten/Dairy/Soy & Egg and my 10 year old Soy and Egg! Aaaaaagh! I live on a small island in the Caribbean and have very limited access to any kind of health food store so the challenges are beyond ridiculous. Have downloaded this book to my iPad and look forward to trying out some of the recipes. Thanks again.

In Topic: Newly Diagnosed Celiac, What Is The "normal" Cycle Of Recovery

05 April 2011 - 06:38 AM

2 weeks ago I was diagnosed with Celiac disease. I am a professional athlete and I ony showed symptoms for 6 weeks before being diagnosed. I was neg. on the blood test but biopsy showed moderately damaged villi. In the first week gluten free I saw a fair bit of improvement training went back up to 3 hours from only being able to do 1 hour (normal is 6hrs+). After traveling internationally and being glutened by beef jerky (didn't even think to look), I have felt like crap this whole week. For me the bulk of the symptoms are fatigue, muscle aches and joint aches, my stomach is not digesting aweosme but I don't seem to have a lot of other GI issues. I am young, fit and had a very quick diagnosis it seems weird to me that I would recover some in the first week and then be completely back to go in the second week. I am EXTREMELY careful with my diet as my job depends on me feeling 100% I am doing everything right, supplements, I always cook at home and only the best ingredients. I understand recovery can be a bit up and down for people who have been suffering many years but I have only been suffering for 6 weeks, I feel like recovery would be very quick for me.

Thank you for any input, also are there any athletes out there? Feel free to DM me.

Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either.

Good luck!


In Topic: Not Sure If I Have Celiac Or Gluten Sensitivity

05 April 2011 - 06:14 AM

I went to the doctor today and all of my tests including the biopsy they did to check for celiac came back negative. I totally expected the negative result. They didn't want to do the celiac panel because the biopsy is more conclusive. I'm going to go gluten free though because I've taken everything out of my diet that they told me and I'm still sick. So I've come to the conclusion that it's the pasta, bread,cookies and anything else that has added gluten to it. Hopefully this will be a good change but I know it will be really hard to get used to.

Hi Meggielynn13,
I was just reading your experiences and wish you the best of luck with the diet. I was diagnosed celiac 2 years ago after years of bad health pain etc. My nephew who is 12 next month has suffered too and afer a negative biopsy and negative gluten sensitivity panels and everything else in between, my sister ordered the Enterolab testing. He is conclusively gluten sensitive, dairy intolerant and has the genes for celiac.
I suggest you do these tests, its worth knowing for sure.
Good luck

In Topic: Is A Negative Biopsy Final?

09 February 2011 - 09:10 AM

Thanks everyone for your feedback. He has had blood testing and it was negative. His mother (my sister) is well aware of the whole gluten free diet thing and how it changed my life. Interesting comment regarding Crohns and that diet is essential for 'controlling' it. Will bring it up from this angle and see where I get - its very frustrating though because she herself has many symptoms of celiac disease/gluten intolerance but because her blood test was also negative will not go further with it. Oh Well! As they say, you can lead a horse to water........

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