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jcgirl

Member Since 10 Mar 2005
Offline Last Active Jul 13 2008 08:44 AM
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Topics I've Started

Vomiting With Weight Gain?

12 April 2006 - 04:07 PM

Hi all, I haven't been on recently because my son has been getting progressivly worse sense January. He vomits more than he doesn't. After a follow up endoscopy and another biopsy for celiac with full blood panel the answer was still negative to celiac. GI said he believes he may have cyclic vomiting syndrome with abdominal migraine. I have been doing alot of research and he just doesn't fit the bill. He is progressivly getting worse and not responding to medications. Brandon has vomited approximatly 51 days so far this year. Vomiting episodes alway accompanied by ab pain. He has had ab x-rays at ER and they said he has to poop and has alot of gas (give me a break), ab CT scan did show slight enlargment of a gland (still not sure what one), brain MRI report said normal, AB/Renal ultrasound said mild fatty deposits in liver. He has gained weight through all of this. Face is fat and mid body fat, sounds to me like it could be some form of Cushing's. His thyroid tests normal except for elevated total T3. Oh, he is also retaining fluid. We are being referred to Cleveland Clinic for metobolic testing.

I am at my wits end. Can't seem to put this puzzle together and I feel like time is waisting away waiting for Cleveland. Has anyone else had any experience like this? Also, I have lost faith in local doctors, they seem to have tunnel vision now, especially the ER doctors. The kid was vomiting blood, pediatrician told us to go to ER, the wanna be ER doctor said it was not his area of experteas and suggusted alternative medicine and not to bring him back unless he vomits a cup of blood or more. Needless to say I told pediatrician who in turn has filed an official complaint. Our new pediatrician is the only local doctor I trust, he is looking at every possible senario. He also ran celiac blood panel again, still negative. Skin prick tests negative as well.

So anyway the official dx's that we have thus far is major acid reflux, 4 esophigus ulcers now cleared up, pyloric ulcer cleared up, definate lactose intolorance.

Any suggestions or insight would be a big help. Afterall, it was the internet and this site that helped me figure out that I have celiac. As a side note, through all the stress of my son's illness, I cheated, had some beer and broke out with DH. Stupid me. :unsure:

Differential diagnosis to cyclic vomiting are many, including partial intestinal obstruction and ureter obstruction. How would one go about getting an independant analysis of films?

Sorry for the long post and I thank you all in advance for your caring and understanding like always.

Laurie

Biopsy And Colonoscopy

10 January 2006 - 07:45 AM

Well my son is going to have a second biopsy for celiac on Monday and they are also going to do a colonoscopy. The poor kid does ok for about 10 days to 2 weeks then begins vomitting for a week. Here is what we have discovered via testing in the last 6 months:

celiac negative in August

severe acid reflux

5 esophagal ulcers

Giardia in August

Dairy intolorant diagnosed in December

Bacterial overgrowth diagnosed in December

My son started a strict dairy free diet in December. It is possible that he may have had dairy by accident over the holidays which may have triggered the vomiiting. I just don't know. Is it common to vomit for a week straight from one slip up? The diarehia has not cleared up either. Could it be celiac or gluten intolorant, could it be bacteria overgrowth........ It is so frustrating not knowing. The poor kid was racking his brain trying to figure out what he ate that he wasn't suppose to.

Anyway, my question for other parents is this:

Any suggestions on clear liquids, no red of course, that he can have for a day and half during prep for colonoscopy. Don't want him feeling like he is starving. He lost 10 pounds last week from vomiting. Also, any suggestions to make the prep smoother would be greatly appreciated. Is the prep harder on a child than on an adult, as in like crapping, etc.??

We plan on driving the 3 hour trip to the hospital in the motor home. That way he can still go skiing with his ski club and start the prep on the road. We will be staying in a hotel once we get to Rochester, the poor kid would become clostophobic if he had to spend hours in a motor home b-room.

Who Is Responsible

08 December 2005 - 06:04 PM

I am not sure which forum to post this under so I figure the moderators will move this to the proper location. Anyhoo, here is my question:

Who started Celiac.com and is responsible for maintaining this wonderful website? I would just like to say thank you to whomever you are. You have provided a source of great knowledge and encouragement to all of those who have been fortunate enough to stubble upon you in our quest to find answers, support and encouragement. I could not survive a gluten-free life without you.

Thank you from the bottom of my heart. Your efforts, and those of all the members of the forum are forever appreciated.

Because of the advise of others here and reading there trials and tribulations, I, after 15 + years have finally gotten some answers. And more importantly, my son will not have to suffer the way I did because I now know that you have to question your doctors, ask them for certain tests and be vigilant in finding the answers and causes to the symptoms.


Laurie

Vomiting Fest

01 December 2005 - 07:05 AM

I have posted before about my struggles to find out answers to son's GI problems. He has constant D of course and has been going through several episodes of chronic vomiting. He has missed 4 weeks of school so far this year. Endoscopy in August was negative for celiac disease as well as blood work. He has severe acid reflux and 5 ulcers and taking meds for that. Tuesday he had the hydrogen breath test for Lactose intolorance and hoping to get results today. Prior to the breath test he was puke free for 2 weeks. The next morning he starting the vomiting again, doc office said that if it is in fact lactose problem that the stuff he drank for test could have activated the vomiting. My questions are as follows:

Has anyone had hydrogen breath test before and if so what do numbers indicate. His baseline was .044 and throughout test numbers went down to .020, etc .

Does anyone know about eosinophilic esophagitis? I think this may be an issue with his vomiting.

Should I insist on another endo for celiac disease? The doctor is talking about another to check ulcers and also colonoscopy. May be looking for Chrohn's

Any help would be appreciated