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running_girl

Member Since 08 Jan 2011
Offline Last Active Jan 22 2012 04:57 AM
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Posts I've Made

In Topic: Not Dh

03 August 2011 - 05:49 PM

Hi Shayre,

I'm certainly no expert and just as confused as you. My rash is very persistent and the meds my rhuemy gave me have not gotten rid of it yet. Some of the other symptoms that I developed were Raynaud's (fingers and toes turning white in the cold), overall exhaustion, mouth sores, and chest pain when I breath deep. Not all of my test results are consistent with Lupus either. My doctor says it is still in the emerging stages. My first ANA was very high, but the more recent one was low.

I've learned that autoimmune diseases are very difficult to diagnose. They are a simply a combination of symptoms. The medical profession, in an attempt to provide more standard treatments, lumps a bunch of symptoms together and gives it a name. Sometimes these symptoms overlap with other groups and some aren't standard in any given dx. Many people are diagnosed with more than one autoimmune disease.

My doctor is not sure if my rash is part of the lupus or something else. I guess the trick is to just treat the symptoms and try to stay ahead of the flares.

Again, I'm far from an expert. My advise is to stay in front of your doctor. Be respectful and kind, but strong. Ask for more tests, ask to see specialists, ask for copies of your results. Keep a journal.

I am doing the same as you, on the internet trying to find some answers. Sorry I couldn't be anymore helpful.

In Topic: Not Dh

16 July 2011 - 02:59 PM

My rash still seems more similar to DH than to the typical Lupus rashes that I've read about. However lupus can attack your skin in many different ways and nothing is really typical. I'm still learning but I think the best explanation may be that it's more like an allergic reaction to what's happening in my body, the sun or heat then it is a direct infection.

Along with the high ANA results I started developing other symptom's of Lupis. So, though I'm certainly not happy about the diagnosis, I am pleased that I have good care in place.

It's hard to know if the gluten free diet improved my skin. For a while I thought it was, but I was never rash free. I think the improvement I saw was from the antihistamines I was taking. I will say that I felt an overall improvement in my health when I eliminated gluten. Personally I think we have too much bread in our diets and since this experience, I have greatly reduced my overall consumption. I don't see that changing.

It is nice to not have to worry about cross contamination though. Dining out is a much more pleasant experience - that's for sure.

Thanks for asking.

In Topic: Any Ways To Stop Scratching?

23 March 2011 - 02:05 PM

Cold helps a bit. I just run a face cloth under the cold water and apply it to the itchy bit. Good luck.

In Topic: It Takes So Very Little...argh!

19 March 2011 - 05:42 AM

I would love Dapsone, but my doctor still feels DH is not the culprit. He is sending me to a Rheumatologist for more tests. My ANA results came back high as well as recently getting Raynaud's he is suspecting Lupus.

DH would also result in a positive ANA test, wouldn't it?

I will continue to work with my doctors on this, but in the meantime I'm staying away from gluten and sea food.

thanks!
Brenda

In Topic: It Takes So Very Little...argh!

15 March 2011 - 02:54 AM

I'm back. That little experiment didn't turn out very well. Two weeks of full gluten gluttony has convinced me. My skin has never been worse. So until my doctor comes up with a better idea I'm going to stay away from the stuff.

Now i have some catching up to do. This forum has been busy.
:)