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running_girl

Member Since 08 Jan 2011
Offline Last Active Jan 22 2012 04:57 AM
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Topics I've Started

Not Dh

16 July 2011 - 12:26 PM

It's been a long time since I've visited this forum but felt i should give you an update. Though I was convinced my itchy rash was DH, I have since learned I have lupus. I'm doing well. I have a great rheumatologist and my meds are helping.

My thought in posting this was, I know there are many of you, like me. Looking for an answer but not getting the results you had hope for with your gluten free diet. My rash is so similar to what I understand DH to be that I'm still surprised at the results. But as I learn more and more about Lupus the more I see it is a fit.

So, just a note of caution to keep pushing your doctors for the care you require. It was a high ANA result that was the clue, in my case.

I hope you all are well. I don't know about you, but this heat/sun/sweat sure makes my rash super itchy.

Take care and thanks for all of the warm support many of you offered me.

It Takes So Very Little...argh!

26 February 2011 - 06:05 AM

I have been gluten free for 6 weeks and my lesions were finally clearing. Though I still had a bunch of sores there were few that were "active".

Then I got a nasty cold and started to take some decongestants not even considering they would have gluten in them. Within 24 hours blisters began to appear on my hand. Then, last night, I mindlessly tested the pasta I was cooking for my kids. One spaghetti noodle and wham-mo - I'm a mess.

I woke up this morning with bumps all over my back and legs. ARGH! :angry:

I don't have a question - Just writing in to vent.

My family is sick of me talking about it.

Thanks!

Second Biopsy Advise

29 January 2011 - 05:55 AM

I'm schedule on Monday for a second skin biopsy. The first one (he took the lesion) was inconclusive but the dermatologist believes it's DH and put me on a gluten free diet. I've been gluten free for two weeks and still have a number of areas where my rash is still quite active. I know it will take a long time for the rash to clear, but here is my question. Since I"ve been off gluten for two weeks, will that interfere with the testing? Should I eat some gluten for the next couple of days? My initial thought was that as long as I still have a very active rash there must still be plenty of antibodies for testing. Thoughts?

Also, I put some iodine (10%) on a patch on my skin and left it there for about 30 minutes. In that spot I now have a similar bumpy rash in the shape of the patch. How conclusive is this test? Without a definitive diagnosis I'm concerned I'm missing something else that might be important to my health.

Thanks for any advise.

Sweat And Dh

20 January 2011 - 03:15 PM

Would my sweat create more DH bumps? I have been gluten free for three days and am trying to reduce my iodine intake. I understand that it can take months for the rash to go away but I wasn't prepared for a new breakout. I'm wondering if there would be iodine in my sweat which would aggravate my DH. I ran last night and didn't shower for quite some time afterwards. Today I'm covered with a bunch of new bumps.

Do I Have Dh?

08 January 2011 - 03:47 PM

I'm looking for some REAL experts to help me. Who could be more familiar with DH then the folks in here?

I have had a nasty, extremely itchy rash for about 3 months. It started on my upper thighs, elbows and lower arms. Over time it has spread to my upper back, and the outside of my hands and fingers. It is symmetrical. When I get a patch on one arm I get one on the other arm shortly afterwards. The bumps seem really deep. I haven't noticed any blistering, but that might be because I've scratched them so badly. They take forever to heal.

I was diagnosed with IBS a few years ago. I haven't been bugged too badly with intestinal issues in the past couple of years. As long as I keep my diet simple, weight down and keep fit, I feel OK.

I was searching the internet to see what looked similar to my rash and came across DH. My doctor thought is was reasonable and did a blood test, which came back "normal". I find this difficult to believe. Everything I've read just makes so much sense to me. The pictures on the web look just like my rash (I would upload a picture if I could figure out how to).

SO Is it common to have false results from the blood test?

My doctor sent me to a dermatologist. The derm has taken a biopsy of one of the bumps off of my back. I'm waiting for the results. Will this be conclusive?

He has given me some ointment that I hope will clear things up. Both doctors have advised me NOT to limit my gluten intact.

I appreciate any advise you can give me.

Thanks!