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Kryptonite!

Member Since 10 Jan 2011
Offline Last Active Oct 20 2012 06:17 PM
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Posts I've Made

In Topic: Protein And The Kidney

20 October 2012 - 06:13 PM

Thanks for the update K! I haven't had kidney issues myself, but it sounds like you are doing better eh? That's good to hear! :)

yeah rgr that thanks

In Topic: Protein And The Kidney

20 October 2012 - 06:12 PM

[quote name='megsybeth' timestamp='1350498446' post='830467']
Hi Kryptonite,

I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.

Thanks,
Megan
yeah doc told me that it could be celiac i also have hypo thyroid also.its a mess lol.you might want to try a kidney doc for those test results.also push for the celiac tests also to confirm. my kid has to be checked also.maybe keep your kid gluten free my kid is gluten free also but is not confirmed yet.

In Topic: Confirm Of Protein In Urine

12 April 2012 - 01:48 PM

Sounds better Krypto. Thanks for keeping us updated. I don't know about the biopsy but maybe someone else will chime in on that.

Have you tried an elimination diet? I don't know if that would help or not, but seems like food intolerances can cause an awfully wide range of symptoms. Sore joints, migraines, skin rashes, liver problems, etc. So why not kidney issues too? Just a thought.


hi GFinDC,
thanks for the reply,i hardly eat as it is lol ,you know how that is.i think i have tried everything under the sun.i guess i will follow his orders,and see him in 3 months.i am stumped about this.but its all ok if you can deal with celiac you can deal with this issue also.,have no choice.
will post back in 3 months with report.
hope nothing else happens btwn now and then lol.
take care kryptonite

In Topic: Confirm Of Protein In Urine

11 April 2012 - 08:47 AM

saw the kidney doc this week all blood work was great creatine was also good also.he had told me that i am in pretty good shape,because there is no loss of functions anywhere,as of now.he has me on a med that will hopefully cut down the potein passing threw.i am to see him in 3 months he said if the bloodwork is the same we are good.same with the urine work also.biopsy will only be needed if blood is off and more protein is in urine. :D he also mentioned that it is possible that since i have celiac that this is why this is happening.bottom line he said people with celiac have a greater chance of developing kidney issues this doc is out of yale new haven in ct.
hope all is well with all
kryptonite

In Topic: Confirm Of Protein In Urine

26 March 2012 - 01:17 PM

ok saw the kidney doc yesterday i went to get lab work done that he had ordered.get this 15 different blood tests. after 12 vials of blood. have ultrasound march 8,he does not expect to find anything wrong because my blood work from my intern has no flaws cmp was fine and cbc was on jan 5.he wants to rule out other conditions.he thinks the kidneys are inflamed and thats what is causing the spill my numbers with the 24 hr test were 1,000 over a 24 hr.
kryptonite

ok got some news here.all the blood work that i had done which was out of this world to rule out every disease known to mankind,turned out to be all normal,so i am left with a kidney biopsy to determine what the disease i have i guess.anyone here have one done and do i really need this to be done feedback would be helpful.
thanks kryptonite