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Happyw5

Member Since 11 Jan 2011
Offline Last Active Aug 25 2014 04:57 PM
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Posts I've Made

In Topic: My Gluten Challenge (Sjogren's + Celiac)

18 August 2014 - 06:27 PM

What if you do not get any symptoms from your pizza experiment? When I was diagnosed with celiac disease, my only symptom was anemia. My doctors had blamed my anemia on heavy periods from perimenopause for years and a genetic anemia. What if you react to the cheese, garlic, tomatoes and not to the gluten? How are you going to know?

Perhaps you can do a supervised gluten challenge and get re-tested for celiac disease? There was no way I was going to give up gluten or now, carbs (am now a diabetic), without scientific proof, but I know that is also not only possible for many as they lack medical support.

Good luck!

I guess I haven't thought it through, because honestly I am assuming I will react in some way and remember the pain I went through, so I won't want to do it again!  The pizza I ate tonight is the same pizza I would make with my gluten free crust, just on regular crust, so I shouldn't react to any of the other ingredients.  If I have no symptoms I will contact my allergist and ask him about reintroducing wheat and getting retested.  I am concerned though, because I was diagnosed with a positive blood test to wheat allergy.  My allergist did send a test to meridian valley lab (back about 4 years ago) and that came back with very very high gluten, gliadin, wheat, barley and many other allergies.  I am so paranoid right now that I probably won't try to eat it again, I guess I just had a moment of weakness!


In Topic: My Gluten Challenge (Sjogren's + Celiac)

18 August 2014 - 04:34 PM

I was diagnosed with a wheat allergy about 7 years ago ( I had already been diagnosed with other food allergies over the years).  After going wheat free I did feel better but not great.   After a few years I went to a new allergist, he tested me for celiac disease, however, because I was wheat free for so long the test was negative and he said I could just try going gluten free and see how I do.  So I went completely gluten free, I felt better.  I had so many symptoms and no other doctor had an explanation so I assumed he was right on with everything.  Well it's been since 2011 with no gluten and I am starting to question all my choices.  There are times when I have some of those old feelings come back, certain things that are 100% gluten free are bothering me again.  I know that I may have developed more allergies but I don't want to give up more food.  I decided to do a challenge on myself.  I had a small piece of pizza tonight with gluten, and I am nervous, I am going to mark all my symptoms for the next few days and see how I do.  I don't really know why I decided to do this, I guess I am just at a loss and thought I would try to start over with food!  Please keep us posted on how you are doing, I would be very interested!!!


In Topic: Newly Diagnosed With Lots Of Allergies Including Gluten

29 April 2014 - 07:07 AM

shellfish allergy, but I also have a gluten and dairy intolerance, peanut allergy, and I should also be avoiding other nuts, citrus, mint, strawberries, chocolate, pork, and all salt-water fish.

 

Hi, I was diagnosed with a wheat allergy, peanut allergy, hazelnut allergy, grape allergy, egg allergy, shellfish allergy, a dairy intolerance and a gluten intolerance and oral allergy syndrome.  I never had the appropriate tests done before I went gluten free for celiac disease, so I will never know.  And now I wouldn't be able to eat it again to get the tests done!  It is hard at the beginning, but it gets so easy to eat with all these allergies.  I have now reintroduced dairy, I can now eat cheese and yogurt (but still can't tolerate milk and icecream)...  I can eat eggs in things, but not on their own.  

 

If I were you, I would and did go cold turkey on everything your allergist was concerned with.  There is a lot of food out there, it is just about learning new ways to eat.  You can no longer eat the convenient (poison) foods.  You have to make everything from scratch.  I eat a lot of beans, meat, and fruits and veges...Luckily I can eat almonds as well.  It's amazing what you will learn about preparing food.  I wish you luck, hopefully your new journey will teach you as much as it has taught me!!  


In Topic: Starting To Wonder If Gluten Is Even My Problem

23 August 2013 - 05:12 PM

I agree about going to a doctor.  Are you on any medications?  Some medicines have side effects and they can start at any time.  I have questioned my gluten issues-but every time I tried to reintroduce it, it ended badly!  For a long time I thought every pain and symptom was because of what I ate..  I was put on an anxiety medication at the time, becuase I was at the dr all the time with "problems."  I took the medicine for about a year and I have to say it really helped.  I don't doubt that all the problems I was having weren't real, I think I was just so obsessed with paying attention to my body that I didn't know what was normal anymore.  I was taken off the medicine about 2 years ago and I am doing great.  I am not on any medicines right now, I am gluten free, and working on healthier eating and less chemicals in general...  Good Luck, just don't refuse to think it could be something else