CathyG

My Mother had her gall bladder removed 20 years ago and had no issues at all after they removed it. It was the best thing she did!

My biopsies and blood test came back negative too. My doctor did see some inflammation in my small intestine and said that it could be a sign of early stage celiacs. He said that it could be due to a few things, but the possibility of at least a gluten sensitivity was quite high.

I've been told to go on a gluten free diet for 6 months and have another endoscopy to see if it's made a difference. Since going gluten free (only 2 weeks) I have noticed a few things start to get better, so even if I'm not technically a celiac, I definitely have some issue with gluten and am happy to stay on this diet. I'm sure it'll take quite some time to resolve all of my issues, but there is definitely small progress.

It might be worth asking your doctor if they found any increase in lymphocytes in the small intestine.

Thanks so much for your replies.

The first doctor only did the tsh which came back normal - pretty much bang in the middle of the range. The interesting thing was that they also provided results for previous tests I'd had on my thyroid over the last couple of years and 2 years ago my tsh was right at the bottom of the range and no one told me. It looks like last year there was another test done which showed it had increased slightly and then the most recent test has it looking very normal as far as that test is concerned.

I've just seen another doctor and asked for a full thyroid profile including every test possible for my thyroid just in case something is being missed - my first doctor refused to do any further testing. I've only had that blood test done yesterday so I'll probably get the results on Tuesday.

I'm secretly hoping that it is a thyroid issue as I need to find an end to these heart problems and other weird symptoms I have.

Thanks again for the replies

ETA: sorry I forgot to mention - I find that if I take calcium tablets twice a day it makes a HUGE difference to the occurrence of these heart palpitations. I went from having something like 40 or 50 a day (that I was aware of anyway) down to maybe one or 2 a month. In the last few weeks though, this seems to be getting worse again (probably 5-10 a day which are increasing in strength) which also coincides with an increase in GI issues - I think I'm having some absorption issues.

It might be worth trying the calcium if you haven't already done so. I'm not sure if it will work for you, but it definitely helps me out alot.

Cathy

I was only diagnosed a couple of weeks ago and I have to say that I feel much better now that I know what's wrong with me.

I have 2 small children, one is 1yr and the other is 3yrs and I would do anything to make sure that I'm around to be their Mum. Giving up gluten is alot easier for me than coping with an illness when I have little ones to look after.  

I see where you're coming from and can understand that being in college would definitely be a challenge. Just keep telling yourself that at least you found out now and that you'll be healthy and able to avoid scary life threatening diseases later in life if you look after yourself. As they say "knowledge is power" and it's better to know what's going on especially with a disease like this that can be managed.

You'll probably find that once you finish college you'll feel alot better about your diet and lifestyle - I'm in a different stage of life to you and I find that it's not that difficult to maintain this lifestyle, it just takes a few changes which aren't that hard for me. You'll probably find the same thing  

Yes, I am feeling alot worse too. I am only gluten free for a week now, as newly diagnosed a week ago today for Celiac. I quit cold turkey and my body is freaking out. I get gushes of dizziness too. It is unsettling to have our lives one way one day and the next day it is completely different. A major adjustment. We will make it through this.

Oh thank you so much for your replies, I thought I was going mad!!!

I too am extremely dizzy and can't function properly. I'm struggling to hold a conversation at the moment and these symptoms have only happened since going gluten free. My doctor told me that the dizziness wasn't related to the gluten free diet, but I found it a coincidence that it happened only a couple of days after giving up gluten and lactose.

Thanks again for all the replies