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hnybny91

Member Since 18 Jan 2011
Offline Last Active May 05 2011 09:00 AM
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#693544 Shin And Thigh Bone Pain

Posted by hnybny91 on 20 April 2011 - 08:04 AM

My very first symptom four years before diagnosis was hip pain. By the end every muscle and bone in my body hurt. It all went away after going gluten (and eventually casein) free.
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#688826 3 Days Of Allergic Reactions

Posted by hnybny91 on 01 April 2011 - 11:18 AM

It could be that you have always had a slight reaction to avocados before but now that gluten is not screaming it head off the avocado allergy can be heard. Since going gluten free I have realized that I am also sensitive to eggs, dairy, almost all fish, yeast, beans and a hand full of spices. It really is kind of depressing when I stop to think about it.
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#688694 Are These Signs Of Celiac?

Posted by hnybny91 on 01 April 2011 - 04:20 AM

What is with this "slightly positive"??? I have heard that from other people and it is absurd. That is like saying you are "slightly pregnant"! There is no such thing with this disease. You need to go gluten free now and stay gluten free. Many of us learned that the medical community was no help in diagnosing us. I had a list just like yours but longer and no doctor caught it - even though I had documented vitimin deficiency and stomach pain as two of my symptoms. You will find so much information on this site. Congratulations for taking matters into your own hands :)
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#687702 Restaurants Won't Allow Any Outside Food

Posted by hnybny91 on 29 March 2011 - 07:37 AM

Money talks. Cancel the booking and have the party elsewhere. If they are unable to meet your needs they don't deserve your business.


ITA.
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#681813 Eczema

Posted by hnybny91 on 09 March 2011 - 09:43 AM

Sounds like Dermititus Hepeterformis to me and is common in Celiac. I have it and my elbow was the worst place. Does it itch?
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#679731 I Am Stupid

Posted by hnybny91 on 02 March 2011 - 12:10 PM

First - you are NOT stupid! Second - you will get through this latest episode. We all have eaten things we should not have. You live and learn and it does get easier - I promise :)
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#679729 New Food Allergies And Family Doesn't Understand

Posted by hnybny91 on 02 March 2011 - 12:05 PM

I am so sorry you are going through all of this with your various food allergies. You need to do what is right for YOU hun. Do not let anyone make you feel guilty for taking care of YOURSELF in the way that YOU see fit, even if they would not do the same if it were them.
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#679488 Is My Doctor Overzealous In Diagnosing Me With Celiacs?

Posted by hnybny91 on 01 March 2011 - 03:44 PM

Count your blessings honey. Many of us went through YEARS of unneccessary tests to never get a diagnosis. Try the gluten free diet and see if it helps and then you will have your answer.
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#679239 Going To See A Natropath Next Tuesday

Posted by hnybny91 on 28 February 2011 - 03:30 PM

People's responses can be annoying. Especially when it comes from family members. It sounds to me like you're going with or without your husband's approval/support. That's what I'd do. You're the one who has to suffer the consequences from your food consumption. I'd love it if you'd post what you learned after your appt.


I definitely will :)
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#677967 Angry At My Gi Doctor

Posted by hnybny91 on 24 February 2011 - 01:55 AM

WTH??? Why don't doctors realize that they work for US? Was he paying the bill? NO! So why on earth woud he "try to save you money" when you specifically requested a biopsy? UNBELIEVEABLE!!!
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#677419 How Many People Are Actually Self-diagnosed?

Posted by hnybny91 on 22 February 2011 - 08:42 AM

Ok...let's get this straight...if your doctor says that you don't have celiac...then you probably don't have celiac. If you don't have a blood test and an endoscopy..then you don't have celiac. That is the only way that you can tell. You don't take test that you get off
the computer...or you don't take the word of your "friend" or you don't read an article in a magazine saying that you have celiac.... That means that you don't have celiac. This in fact it is a serious disease...and there are sooo many people that are diagnosing their selves...
because it is cool...it is fun to say I have a disease...( and one that is easy to take care of..) . The world has decided to diagnose their selves..and now we are 'all ' celiacs...


You are an idiot! I spent four years and thousands of dollars having test after test after test because the doctors I saw were too ignorant to realize that I had celiac Disease AND dermatitis hepeteformis. ONE FRIGGIN WEEK on a gluten free diet made me feel like a human being again. Yes, I am self diagnosed and yes I will scream from the rooftop that I HAVE CELIAC DISEASE and I could give a rat;'s behind if you or any other doctor agrees with me!
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#676116 Forget Doctors (Or At Lest Mine)

Posted by hnybny91 on 17 February 2011 - 09:44 AM

What a stupid doctor! So what if you go "overboard" with gluten free??? Nobody needs gluten to survive! Even if you don't have Celiacs (which you probably do) you would not be doing ANY harm to yourself by cutting out gluten completely. On the other hand, if you DO have celiac and you still eat some gluten (not going overboard by her standards) you could be KILLING yourself!!!
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#674363 Doc Says Celiac - I'm Unconvinced

Posted by hnybny91 on 11 February 2011 - 05:39 AM

I spent nearly four years sick and there was a point in 2010 that I didn't think I would make it to 2011. In 2010 alone I saw my GP, two Rheumatologists, two Infectious disease doctors, and one Cardiologist. None of them came up with Celiac & Dermatitis Hepeteformis. NONE OF THEM! I was diagnosed with fibromyalgia, ploy arthritis, mixed connective tissue disease, sjogren's (positive SS-B but no inflamation), vitamin deficiency, and hypocondriac.

I gave up wheat in January of this year just because I had heard it helped with fibro. After a few days I noticed my mystery rash (what I now now to be DH even though no biopsy) was considerably better. That is when I went to the internet and searched "wheat allergy." My jaw hung open as I read all the symptoms associated with Celiac Disease. It is the first time ALL of my symptoms have been explained.

Through that research I discovered that I needed to do more than just aviod wheat. I am now a little over a month in and I am finally able to blow dry my hair. Yes that's right, I consider somethinng as little as being able to blow dry my hair a cause for celebration. This has truely changed my life and I don;t give a ratss behind if anyone in the medical community ever validates my diagnosis.

Gluten free does not have to be more expensive. I figured out pretty early on that I did not the gluten free substitutes (bread, brownie mix, etc.) Just eat clean and natural and it may even be cheaper. Yesterday I started on the Paleo Diet because I am convinced that I have other sensitivities (dairy for sure) and want to eliminate nightshades, soy, corn, suger, lentils & all lentils. I also need to lose the 60 pounds I gained while sick.

Going gluten free will not harm you in any way. Give it a try.
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#674294 Doc Says Celiac - I'm Unconvinced

Posted by hnybny91 on 10 February 2011 - 06:17 PM

Oh honey, I think you are in denial. The thought of going gluten free for the rest of your life can be daunting though. You really should give the diet a shot. It could change your life.
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#673131 Depression And Celiac - Connection?

Posted by hnybny91 on 05 February 2011 - 09:46 AM

the last few months before I discovered I had Celiac (not thank to any of my MANY doctors) I was experiencing my worst depression episode ever. I cried all day every day, had to take time off of work, my family could barely say anything to me for fear I would go hide in my room, etc. My infectiuos disease doctor basically said I can't find anything wrong and wrote onthe notes to my GP that I needed to been seen for psychosis. With in TWO WEEKS of being gluten free the depression was nearly gone. I am only gluten free about four weeks now and I would say it is completely gone now.
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