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IrishHeart

Member Since 26 Jan 2011
Offline Last Active Private
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Posts I've Made

In Topic: The What's For Dinner Tonight Chat

Today, 09:25 AM

Step away from the Gelato  :lol:

 

 

No! you're not the boss of me.  :P

 

made tacos last night.  tonight i may have fried children if the Bicker Brothers don't knock it off   <_<

 

 

:lol:  fried children..do they come with thai sweet chili sauce? yum

 

Got a couple of sponges and a couple of bathrooms? See where I'm going here? Even if they are 3 and 4, they can have a little water and a sponge and a towel and " clean". Because, if they have time to fight, they must need something to do.

 

my mother used to say "knock it off..! go outside and play!.don't make me come in there or I'll give you something to occupy those hands...." and we all scattered before she even got in the room. 


In Topic: The What's For Dinner Tonight Chat

Today, 04:38 AM

"Jenny, Jenny I got your number."

I need to make you mine

Jenny, don't change your number

8675309

 

 

Soooo... had a great time with the neighbors on Sat. Night. They came for drinks and apps at 4:30  and stayed until 9. Now, those are MY kind of peeps....... lots of laughs.  She's a doll. She brought me a basil plant.

And they both "get celiac" and what gluten free means --we only discussed it briefly. He said "well, there's gluten free food everywhere, but it does not mean it's going to be okay for you to eat, right? it's all  in the prep."  I could have kissed him right then and there. lol

 

I can't tell you how much I LOVE these mediterranean pork burgers. had them last night--again--because they are so moist and flavorful.

http://www.livingwit...ata-3480-1.html

 

I skipped the gremolata and added feta into the burger mix. YUM!

 

make them, peeps! trust me. Grill 'em up, serve them with corn on the cob and potato salad...or last night, I made sweet potato fries with garlic aioli

and for dessert...well, we had.sea salt caramel gelato....Karen and I are on the same page! ;) 

 


In Topic: It's Not Insomnia

Yesterday, 09:29 AM

Good for you, honey!! whoohooo!.

 

As you know, I, too had serious insomnia for most of my adult life and during the 3 years before DX, when I was quite ill, I barely slept more than a few hours at a time. (pain and ramped up everything kept me from being able to rest very much) I could never lay down and

take a nap like some can do--just too jumpy and in pain--even though I was exhausted beyond belief.. It was awful.

Never had a regular sleep pattern or a restful night's sleep. Sleep study said I never reached REM sleep. duh. I told them that--why did I need a study done?  :huh:

 

Now, I get sleepy at a regular time (between 10:30 - 11pm )and I can sleep nearly 7 hours . I may awaken, but at least now, I can go back to sleep most of the time. I wake up rested and I never  feel exhausted

 

I am so happy for you!!!.

 

This is the "new normal".


In Topic: Fibromyalgia

26 July 2014 - 11:16 AM

It's not frustrating for me at all to reassure you, Beth. I get it,. I really do. 

I was often frustrated with my slow progress the first year and half. But it happened.

I kept a list of all my symptoms and each time one resolved, I crossed it off. It made me feel better to see it on paper, i guess.

 

Stress does not help anyone with AI diseases because it causes inflammatory cytokines. I am not just making that up  :D

so yes, you have to find ways to expend that stress and anxiety that comes with being in pain and frustrated.

 

Talk walks, walk around the pool if exercise is too much right now. get rest,  You can't feel bad about not working---you are recovering

from a disease that has tapped you out. I used to feel bad too, but then I realized that it wasn't my fault. I was too sick to work, I could not even lift a damn can of soup back then... and i wasn't just

slacking off. 

 

Every day is a healing day. As trite as that sounds, it's just the plain truth of recovering from celiac.

Hang in there. 


In Topic: Fibromyalgia

26 July 2014 - 05:04 AM

Heard the fibro word back in the 90's. Dismissed it. I felt I did not fit the symptom profile at all. Heard it again in 2004. One pain management doc, in a 5 minute consult poked me in a  few places and said 'you have fibro. sorry... there's no treatment for that.". Another doctor told me "it doesn't exist"

 

Neither my rheumatologist , my PCP nor I thought it was right. (I do have OA so the joint pain made sense. but the muscle weakness, loss of muscle mass and knotty muscles--hard as rocks? that was all celiac) 

 

Doctors ASSume all muscular pain is "fibro". Most doctors think this is a dead-end wastebasket diagnosis.

 

They throw all sorts of drugs at it (docs say tramadol is not addictive, sure, okay...just be careful when you try to stop it--wean off it slowly)

using anti-depressants for fibro and IBs--totally wrong. If someone is not in need of seratonin reuptake inhibitors, all hell breaks loose. this may actually lead to depression symptoms and insomnia. Lyrica is a crap drug that causes more symptoms than it relieves (in those who have told me they tried it anyway) 

 

Most muscle and joint pain IS in fact, related to celiac damage (vitamin deficiencies, etc)

 

Please don't buy into the fibro Dx entirely. I have come a long way in healing, I went to physical and massage therapy, worked with a physio-weight trainer and have regained the ability to do yoga, walk, swim and ride a bike. I still have some pain, yes, but my muscles took the brunt of the damage from decades of undiagnosed celiac. I never give up..

 

At DX, I could barely walk and it hurt just to have clothes on or to lay down. I sizzled with nerve pain.

 

Please be very careful with drugs that mess with your stomach. The last thing you need is to irritate your Gi tract any further.

 

I take no meds (sure, I'd love to be able to take a magic bullet to stop the pain) and I move constantly so my muscles can become reconditioned.

 

Fibro is poorly understood, but I did see an article that says they know the cause of it. This is good news for true fibro sufferers--as it may lead to a cure. 

 

http://www.healthlin...omyalgia-062113

 

Be patient with the healing process. I can't tell you how many people (women in particular) I know who were given this fibro DX---only to discover it was gluten and celiac all along causing that pain.