Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 26 Jan 2011
Offline Last Active Apr 02 2012 06:01 PM

Posts I've Made

In Topic: May Have Found A Huge Answer...but Still Confused (Possible Dairy Allergy)

02 April 2012 - 06:04 PM


Perhaps you have a true intolerance rather than an allergy? If that's the case, amount may be a factor in whether you get a migraine. From what I remember from our allergist was telling us, it takes a few days for dairy to get out of our systems. So while dairy one day may be fine, or tiny amounts of dairy cc might be okay, you add them up over a few days and get whammied.

So if you, say, ate the cheese the day before, like you did this time, and then got just a little bit of contamination in your processed food the next day, that might be just enough to push you over the edge. I know you mentioned not having any dairy ingredients in your food, but could there be traces from dairy cc due to processing, by any chance?

Like perhaps the dairy free bread might have been made on an equipment line or in a facility that does have dairy, so it might get just a little bit of contamination. That sort of thing. Not enough to usually give you a migraine, but maybe with the little bit of cheese the day before, it was enough to zap you, you know?

I can't think of a lot of dairy things that might cause headaches that you wouldn't be noticing with other issues as well. Although cheese mold (that's used to make the cheese) can cause problems with some folks, so it might be worth checking to see if it's any dairy or if it's just cheese.

An elimination diet journal that also records amounts that you are eating might be useful. That was helpful to me when I ended up having an intolerance that was amount based - it IS hard to figure out, definitely! Because you feel like you ate it find one day, and then got sick the next. But if you can track amounts, or types of processing of dairy, perhaps that might have some of the answer for you.

Thanks Shauna! Ya...I'm still confused. I get a migraine usually without fail about 21 hours after eating dairy (mainly cheese)...yet some days where I didn't have cheese or anything dairy the day before I still get a migraine. So I am in the process of doing a daily, in depth food journal. (something I should have started years ago...but better late than never!)
Thanks for the response

In Topic: May Have Found A Huge Answer...but Still Confused (Possible Dairy Allergy)

27 March 2012 - 06:36 AM

Most bread contains milk. I have a hard time finding any that does not.

freihofer's whole grain white doesn't have any milk

In Topic: Elisa

26 March 2012 - 06:09 PM

When my frequent, loose bowel movements turned into diarrhea and I lost 15 pounds in two months, celiac was one of the first things I thought of. After two months of improvement on a gluten-free diet, I asked my doctor for celiac testing. I did not know you had to be eating gluten to get a positive test. Unfortunately, my doctor didn’t know either—so, of course, my test was negative. He sent me to a GI. After telling him my experience and showing him my food diary, he simply told me to “eat what you want and take Imodium.” So everything else has been on my own—testing that I could find available, food diary, reading books, internet—but of most importance, what I have learned from this forum. I really feel that anyone who has been on this forum for any length of time is more knowledgeable than my doctor.

But how/where did you get your blood testing and other testing done?
And I agree, the people here are very helpful.

In Topic: Elisa

26 March 2012 - 02:26 PM

If you recognize that all these allergy/intolerance tests have a certain degree of unreliability, I did find that they were helpful for me.

My gluten responses are delayed by about three days. That makes it a little difficult to identify problems. I knew I was having problems with more than gluten. We have a gluten-free household and we don’t eat out. I had identified raisins, dates, honey, agave and xylitol as problems but then was stumped. Last summer I did an IgG blood test for 96 food items and among a few other things came up with cane sugar as a sensitivity. Trial showed beet sugar (not included in the test) to also be a problem. There was more—but what? I went back to my very basic menu—grass-fed beef, brown rice, vegetables and dairy. Still a problem so I started going through all my supplements. When symptoms are delayed by three days, it takes a long time.

Soy? Corn? Fructose? Where to start? When I had done Enterolab testing a year and a half ago, I don’t think they were offering any of the food testing they now have. Even though it is a bit expensive, I decided to do their 11 food fecal test and also the soy test add-on. Imagine my surprise with I found soy and corn to be OK but my problem foods were oats and rice. One day off of rice made a big difference. It cost me $450 for the test but it would have taken me years to suspect rice as a problem. That was one of my son’s basic foods (along with bananas and lamb) when on the celiac diet as a baby.

Thanks for the response Lori.
Were these all things that you talked to a food allergist with or general doctor?
An allergist is one doctor I haven't seen. Like I've said...at this point, I haven't really proven that food consumption is my problem but I have strong reason to think it is.
Thanks again

In Topic: Elisa

25 March 2012 - 07:42 AM

I had the skin prick test for 98 foods. The test came back with no reactions. I clearly react badly to wheat(gluten) and soy, so my Dr. did a RAST (blood test) and I didn't have any reactions.

I was told there isn't any reliable test for food intolerances, other than your personal experience of symptoms when you consume something that doesn't agree with you. The best way of figuring those out is to keep a log of everything you eat, and note any symptoms you have. Unfortunately many food reactions are delayed, making it a bit tricky to figure out at first.

That being said, some people do food sensitivity testing through Enterolabs via mail order and feel it helps them know what foods to avoid or challenge later. It's been noted that there can be a lot of false positives with this test, which makes it a bit unreliable, which is why Dr.s don't usually order it.

Ya, that's what I was afraid of.
I am having the hardest time pinpointing anything...especially because I am almost positive whatever it is has a significant delay with reactions.
I recently started keeping a very detailed journal, so hopefully that will help

Celiac.com Sponsors: