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Member Since 26 Jan 2011
Offline Last Active Apr 02 2012 06:01 PM

Topics I've Started


24 March 2012 - 08:09 AM

Just curious if anyone here has had the ELISA testing done, and if it was helpful or not.
I keep getting so close to finding the answer to my health problems, and I am still convinced it is food related...just looking for a means to find some real answers.
Is it accurate? Is it helpful?
Also, is it something my GP could do or do I need to go to an allergy specialist?

May Have Found A Huge Answer...but Still Confused (Possible Dairy Allergy)

20 March 2012 - 01:36 PM

I've had many chronic symtoms over the past probably 7 or 8 years...getting worse over the past 2 years.
The core symtoms are chronic nauseous, dizzy, headaches/migraines (nearly every day), general fatigue and weakness, and brain fog.
I've seen MANY doctors. Multiple GPs, multiple neurologists, a GI, an ENT, eye doctors, dermatologists, therapists, you name it. Have also had a brain MRI and have been tested multiple times for celiac (blood and biopsy, all negative).

For a while I thought it might be celiac and went on a gluten free diet for several months with no results whatsoever.

The past few months I sort of gave up.

About 3 weeks ago I decided to completely cut dairy out of my diet after reading an article on food allergy related migraines.
Well, my migraines disappeared for the most part. One night I ate pizza to "test" things out, and exactly 24 hours later the migraine hit.
So I came to the conclusion that I had diary related migraines with a 24 hour delay (which I've heard is common).
A lot of things clicked. When I was eating gluten free, I was dairy free for about a week, but re-introduced it so that I could get more protein.
One of the weeks I remember feeling pretty good I was in Ireland and ate no dairy that I can remember.

However, today I got the headache. Yesterday I ate absolutely nothing with any trace of dairy.

I guess my question is, what in Dairy would be giving me the headaches? Is it something that could be in other foods that I'm not aware of? Am I wrong that dairy is causing my problems since I got a headache today?

I got really really excited that I had at least a small breakthrough and figured out one of my problems...but today I am just depressed thinking of why the headache would be back.

I'd appreciate any input that anybody might have...sorry if this is a little vague. I'm trying to sum up A LOT in a few words.

Thanks guys!!

Is This Posible?

27 June 2011 - 08:12 PM

I haven't posted on here in a while.
I have had a lot of health issues over the past year or so, and decided to try gluten free on my own (negative blood work)
I was gluten free for over 3 months with no (noticeable) difference, so I went off the diet. I have been off for about a month-6weeks, and most of that felt a little better, noticeably better...but only noticeable now because for a week I have had all my exact same symptoms (bad brain fog, weakness, some digestive issues, etc).

Is it possible that gluten free really was helping? I just dont understand how I felt great while eating gluten for almost 6 weeks.
I am so lost as to what to do. I can't think of much else that changed in the last 6 weeks (I did stop taking a high-dose of vitamin D for a deficiency...per doctor's orders.)

I would appreciate any input on this issue. thanks!

Really Need Some Input On What To Do Next

07 May 2011 - 01:06 PM

First of all, I have been on this board for about 4 months now, and everyone has been nothing but help.
Here we go,
When I first heard about what celiacs was and its symptoms I was so excited. I have been sick for so long, with nothing even close to an answer.
Quick recap: my main symptoms include some digestive problems (upset stomach every morning, after some meals, etc. Bad brain fog for the last 6 or 7 months, bad/nauseous headaches almost every day for at least the last 2 years, weakness in my arms and legs, get chills easily, etc. and some other smaller symptoms. I got the blood tests for celiacs (before I went on the diet), they were negative.

I have been 100% gluten free for about 3 months now, and cannot pinpoint any positive changes. About half of that time I was dairy and soy free as well.
The brain fog is just the same (if not worse), I still get my headaches, and my digestive problems are actually worse than when I started.
I did not keep a journal of symptoms or anything, but I have sat down recently and looked back on everything and cannot see any progression.

My question for you guys...
Do I keep doing this? I feel like maybe I should spend my time, energy, and money on other options to fix how horrible I feel everyday. However, I dont want to stop if I am close. But in your opinion, wouldnt I have some kind of improvement by now? I know neurological symptoms take longer...but come on...over 3 months with nothing?

I am so hopeless and confused at this point, I just need some real-world advice and some direction.
I am a college student, graduating in 2 weeks...so I plan on using the summer to try and figure this out.

Any input on what to do, where to go, etc is more appreciated than I could ever say. I just feel like I have wasted a lot of time, and I don't want to throw all that away.
Thanks so much for everything.


Should I Give Up?

07 April 2011 - 03:00 PM

Like everything else I've tried, I was praying so hard gluten was the answer, and so far, like everything else, it has done absolutely nothing. I have had chronic headaches and weakness and most recently brain fog (my scariest symptom)
I went gluten free on my own about 6 weeks ago after testing negative through the blood test.
The brain fog, headaches, and weakness in my arms and legs are the same.

I am in college, and this diet is a lot of added stress. Should I stop? Should I rule out gluten completely? I am assuming yes, but I am thinking of sticking with the diet for another week or 2.

I am seeing a new neurologist who also hasnt found anything except a D deficiency which I am taking a prescription for.

I feel so hopeless. Things like these that sound so promising just make life so much worse weeks down the road when they don't work (at this point, I just assume nothing will work)

Sorry for the depressing post. I'd appreciate an opinions or comments. Thanks!

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