Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 26 Jan 2011
Offline Last Active Apr 24 2011 08:09 PM

Posts I've Made

In Topic: Will My Friends And Family Believe Me...

28 February 2011 - 06:27 AM

Thank you all, I'm glad to say that I'm feeling less anxious and able to think a little more clearly now that I've stopped eating wheat now. The only person who has dismissed my food intolerance is the CBT counselor I am seeing, who is quite certain that my symptoms are caused by depression and not food, needless to say, I haven't bothered continuing the discussion with her because it was quite clear after one session that she would not be swayed from her belief. Talk about inappropriate bias from a proffesional. I am quite sure that at large number of people with anxiety and depression could be helped by looking at what they eat!

My apologies for putting my post in the wrong section, I initially intended to ask friends and family how they initially reacted to discovering their loved-one had coeliac, but in my hazy, foggy, anxious state of mind didn't quite know what I was doing at the time :unsure:

kind regards


I would think about getting a new therapist. Yes, they "only" deal with emotional problems, but the good ones will recognize that physical illnesses can have things like depression and anxiety as symptoms, sometimes the only symptoms. In fact, it was a psychologist friend who first told me to consider vitamin deficiencies, perhaps caused by celiac or something else that causes malabsorption, and that he didn't believe that I ONLY had problems with depression/anxiety.

Something like that (that she doesn't believe that food intolerances can lead to symptoms, even after you told her that it does do that to YOU) is a major no-no for me in a therapist and a sign that they should be fired, if at all possible.

In Topic: Doing Without Carbs

27 February 2011 - 02:27 PM

MCC0523 - I should have mentioned that I also follow the FODMAP diet - so something with very little fruit sounds good, but I'm also somewhat restricted in what veggies I can eat. The diet does sound worth a look, though it also sounds kind of expensive. I'm especially interested in what you say as my husband has POTS and ED syndrome, like you - however, he also needs a low cholesterol diet and it doesn't sound good from that point of view - do you have any thoughts on that? It's a struggle to cook separate meals - I'm the healthier one so I do most of the cooking but I can't do too much chopping, peeling etc.

I think that low cholesterol diet is a BAD idea long term... cholesterol is found in almost every cell in the human body, and it is what the myelin sheath which coats the nerves (and what is attacked in MS) consists of. If one doesn't consume cholesterol, then the liver makes it, so if the diet is low in cholesterol (or good fats in general) it can overtax the liver, and other bodily functions, reducing the absorption of Vitamin D (which is made by exposure to sun, but if there isn't fats, especially cholesterol, to help with the synthesis, then it isn't used as efficiently) and hormone production and it increases inflammation. Inflammation should be more of a concern with heart disease than lipid levels. Half of people who have their first heart attack have a NORMAL (or what the FDA says is normal) lipid panel. Lack of good fats leads to inflammation, and with EDS, inflammation is a given frequent dislocations and hypermobility. Since I've started eating this way, my knees are now a normal size (the first time in over 3 years), and my pain levels, which used to hover around a 7 on a GOOD day, hasn't gone above a 5 in 2 weeks, maybe longer.

http://www.marksdail...om/cholesterol/ has a much, much better explanation of this than what I could ever do.

As far as expense, it doesn't have to be. I shop on the perimeter of the store, and I get whatever is on special with the meats, and I pick the veggies that I can tolerate. By going on special, I spent around 4 dollars for 8 lamb loin chops last week (that was the meat for 3 meals), and just under 6 for a pound and a half of salmon (4 meals). I am planning and preparing a garden right now, and for chopping and peeling, something like a Slap Chop or some other vegetable chopper and a potato peeler (mine hasn't seen a potato in a LONG time, though) are great for spending less time and energy on that part of meal preparation. And at first, I was worried about doing so much chopping and peeling, but I'm feeling better enough that it isn't a big deal as I feared it would be.

In Topic: Doing Without Carbs

27 February 2011 - 08:14 AM

Try http://www.marksdailyapple.com for a primal based diet.

The "diet" (lifestyle or way of eating is more accurate) is meats, veggies, and healthy fats (coconut oil, butter, animal tallow are all great; processed vegetable oils {such as canola} and anything that has been hydrogenated is VERY bad). Fruits are a rare addition, although if someone is doing heavy training, say for a marathon, then it might be consumed more frequently. All grains, legumes, and sugars are discouraged if the lifestyle is followed strictly.

ETA: As far as energy goes, as long as you get a good amount of good fats, then you'll have wonderful energy levels, without the peaks and valleys that comes about with eating a carb heavy diet. I've been eating like this for the past few weeks, and I have to say that my reactive hypoglycemia has completely gone away, and I don't have periods of exhaustion. I do get tired, but one of the things that I like about this lifestyle is the notion of following the signals of your body... so if I'm tired, I'll rest. But I don't have to rest for several hours at a time to see results. Sometimes, all I need is a 30 minute nap and I'm back to full force.

ETA 2: A typical day of eating is 2 jumbo eggs and 2-4 servings of veggies (this morning was asparagus and brussel sprouts), and a serving of meat (usually chicken, bacon, or whatever was left over from the previous night's dinner) for breakfast. I'm not hungry at lunch normally (only on days that I'm more active than most) so I don't eat then, but if I do, it's a smaller version of my dinner. For dinner, it is a good portion of meat, and even more veggies, or a salad with mixed greens for the lettuce. Unless the veggies are raw, I will cook all of my food in coconut oil or butter, and if I'm having salad, my dressing more often than not is the left over butter or coconut oil used to cook my food.

In Topic: How Many People Are Actually Self-diagnosed?

26 February 2011 - 05:41 AM

NO ONE says that you can't have celiac disease..no one says that you don't have a food allergy or intolerance...but for people on this website that declare they have celiac disease..without being tested..or doing the entrolab thing...is ridiculous!

Of course you can feel better with out eating wheat...but don't go around telling people that you have celiac when you don't. Or when a doctor saying" um...you don't have celiac.." and then those poor people that want a disease.. say well, maybe my doctor doesn't know what it is..or just doesn't want to diagnose me...or whatever the reason is this month...it is not true. You don't have it. You probably have an intolerence ...that is fine...declare yourself gluten free...but not celiac...

What is ridiculous is your seemingly blind faith in the medical profession. Plus, what part of 30% false NEGATIVE rate of the "Gold Standard" tests don't you understand? That means that there are 30% of the people who have been tested for Celiac and told that they don't have it that ACTUALLY HAVE IT!

Of course you can go around and trust the medical profession to always take care of patients, but as someone who slipped through the cracks for almost 25 years, don't go around and tell me to trust the medical profession when they are not trustworthy!

In Topic: Super Sensitive And Living In A Mixed Household

23 February 2011 - 08:22 AM

I am looking into getting a dorm fridge... However, I'm not sure if I want to buy one now, since I'm most likely to move out.

I am an adult, who is keeping my parents from being in a financial pickle by paying them rent to live here. I would rather not move out, because I know that would be detrimental to them, but I can't handle being glutened at least once a week, in my own home (I don't eat out) and I'm REALLY careful (washing my hands after I touch anything that could potentially be a source of contamination, washing my dishes by hand and rinsing them for at least 15-20 seconds, using plates instead of counters to prepare food, etc.). It may be their kitchen, but as I'm paying for use of it, it should be in such a condition that it not going to make me sick. Since gluten makes me sick, then it should be gluten free. Or I'm not going to use their kitchen. Which means I'm not going to eat, because I don't eat out... so the only option is for me to move out.

I've tried to talk to my mom about this, and to say that she is resistant is an understatement. My dad is more supportive, but is unable to counteract my mom's strong personality when it comes to things like this.

Celiac.com Sponsors: