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Member Since 27 Jan 2011
Offline Last Active Mar 28 2013 05:08 PM

Topics I've Started

Indulge Me; What Was It Like To Be Gluten Free Back Then?

14 September 2012 - 06:07 PM

I was curious to hear your experiences of being gluten free prior to the explosion of gluten-free products. I arrived on the scene post explosion, and even though the transition was hard, I am positive that is wasn't even close to being as difficult as it was back then. My symptoms started in 1999, and reached full blown illness by 2002, but of course, it took till 2010 to get properly diagnosed. I ponder what it would have been like to be diagnosed right away.....back then..

I remember in the 90's, I had a problem with my water well. The well guy came to work on it. He was there for hours and I thought he must be getting hungry, so I offered this very thin, pale man some peanut butter crackers. He quickly and gruffly told me he had Celiac's disease and could not eat wheat, rye or barley for life. I remember being embarrassed for asking him he wanted crackers, and we said no more about the subject. Yet, I thought of him for the longest time because as a person who baked and cooked a lot, I understood the ramifications of what he had, even though I had never heard of it before that day, but the more I thought about it, the more I realized how tough his life must be. It's so ironic that several years later, I had become gluten intolerant with a wheat allergy to boot...and was in the same situation as the well guy.

.....so I ask again veterans, what was it like for you? How about you vets who have been at this for a lifetime? Do we have anyone who has been gluten free for 10, 20, 30, 40, 50, 60 years??

Alba Shampoo Has Wheat In It Now

30 December 2011 - 07:24 PM

Alba has added Hydrolyzed wheat protein to their shampoo/cream rinse. My daughter pointed it out just a few hours ago. I bought this a week ago and have been sick all week, and also have sores that have formed on my head. Now I know why....GGGGRRRR.

I went to the Alba website and their shampoos/cream rinses do not have wheat in the ingredients list. This must be a new formula and the website is not yet updated. But all 5 bottles that I purchaed clearly state "hydrolyzed wheat protien" in the ingredients list.

The ones I have are "Alba Botanica plumeria replenishing hair wash" and "Alba Botanical gardenia hydrating hair conditioner". I've used this shampoo and cream rinse for for over a year, and it was gluten-free. Periodically, I have checked the ingredients to make sure it was still gluten-free, but didn't read it on this last purchase. I am soo unhappy, and they ARE going back to the store! I have 5 ickey big sores on my head from using the shampoo/cream rinse for one week, and I have felt crummy all week as well.....live and learn!!! GGGGGRRRRRRRR :angry:

The rule is to always read the ingredients list, no matter how many times you have purchased a product. <_<

What About The Chicken With Rice Soup?

24 December 2011 - 12:32 PM

I do not know what was wrong with me the other day, and now, but I could not answer this question very well when I was asked this by my Mother in law at a restaurant. I stumbled and fumbled about ingredients and cross contamination, but just could not spit out a logical, to the point, short, convincing reason as to why I cannot just order the chicken with rice soup. I felt so defeated on this day. This restaurant had no gluten-free menu, no clue about gluten-free, and I had a hard time explaining to the extended family and the waiter that I could not eat there. I had coffee, but then saw someone else’s baked potato and ordered one, it was wrapped in foil and looked safe, and I did not eat the skin. The waiter was kind enough to get new sour cream and butter from the source, instead of the common area where everyone was helping themselves. He also read the ingredients for me. I usually am prepared when we go out, but I wasn't this time. We had been showing the In-laws around town and got hungry. I was out of snacks and ideas.

Please help me out, how do you answer this question in very few words, logical, to the point and convincingly? Thanks.

Question: Why can't you just eat the chicken with rice soup? There shouldn't be anything in it that would make you sick.

Wheat Allergy

09 December 2011 - 10:33 AM

To all that know me and all of you fellow sufferers of wheat allergies who also suffer debilitating airborne reactions like me; I have finally found a solution and I hope and pray it keeps working. I've been airborne reaction free for a week now, so I thought it was time to share.

The story:

I went to a new doctor last week about a ladies issue I was having, and while in the appt. I was having an allergic reaction. The doctor noticed and asked me what I was allergic to. I told her "wheat" and that maybe the coffee shop down the hall was baking stuff. She said, "maybe, but I happen to be wearing wheat germ based beauty products, so I think you are reacting to me" She was shocked by how sensitive I am and asked how long I had been suffering with the airborne reactions. I told her since April, right after I had my gallbladder out, and cannot eat wheat either, I've been gluten free for 20 months.

She asked me if anyone has ever put me on a HISTAMINE 2 BLOCKER. I said, I didn't know, I had never heard of histamine 2. So, she looks through my prescription history and saw allegra, zyrtec, claratin, benadryl..and says, "No, you have never been on a Histamine 2 blocker, only histamine 1 blockers".

She explained to me that Histamine 2 is produced in the stomach and can make food allergies worse. She said blocking histamine 2 will help knock down the airborne reactions by blocking histamine 2. I hope I got her explanation right, it was confusing and went way over my head. However, I've been on zantac 150 mg twice daily for a week now, and it’s working. I got mine in prescription form, but you can buy it over the counter.

Well I am here to tell you that it is a miracle. I have not had an airborne reaction since I started on this stuff. If anyone remembers, I react so violently that I had to take prednisone just to fly on an airplane because of the pretzels people eat, so I would not die of anaphylactic shock. Life has been hell. I've been a bubble girl since April, I couldn't even be in peoples houses because they have wheat products in their kitchen. And, I had to wear a mask all the time in public because there is no escape from wheat.

So, I've been testing how well this Zantac is working (with my epi-pen close by of course). I went to the grocery store and went into the bakery, opened a bin full of hot dinner rolls and smelled them (not eat, just smell).....shockingly, I had no reaction, none, zip, zilch, miracle!! The biggest test for me will be to go into a stand alone bakery. That will be the final test.

I just wanted to share this crazy solution just in case it helps someone else. I've found very little info on it on the internet. I think that prescribing it for allergies and asthma is fairly new. I'll never be able to eat wheat again, but at least I can breathe it again and can go places again.

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