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Member Since 29 Jan 2011
Offline Last Active Nov 19 2013 06:42 PM

Topics I've Started

Lots Of Symptoms

19 October 2011 - 10:33 AM

I have a daughter that is 30 years old(diagnosed at 10 months with celiac disease)that has been gluten free most of her life. I had totally normal blood counts in October 2011(no anemia) in pretesting for an orthopedic surgery. Now I have microcytic anemia(no menstruation since Feb 2011-55 yrs old) and have been very symptomatic. I noticed increased shortness of breath with walking and elevations last winter.By coincidence, I did start a gluten free diet in January after cooking a meal for a coworker....I felt better so I thought why not? I have been more forgetful in the past year but was attributing it to hormone/menopause. I sometimes feel hypoglycemic...but the blood sugars are normal according to my family doctor/HA1C still normal also. My cholesterol and triglycerides have come down (familial hypercholesterolemia) on the gluten free diet. In mid September, I had a few "episodes". First time I thought maybe I was dehydrated....was feeling a bit wary of making mistakes at work...so I drank fluids and ate lunch. I had been lightheaded, unsteady even with feet planted and standing, tingly hands and head/lips and I couldn't sort thoughts. The second time I was working in a different medical facility and had to get help with a study(ultrasound)...I walked back into office and burst into tears. I had bad headache ,lightheaded, felt unsafe doing my job, shortness of breath. The coworkers checked my blood pressure...I am hypertensive and on meds....b/p was ok. I hydrated and sat in quiet room...didn't want to go to er. (had forgotten b/p pill in am). I took a b/p when I got home at 7 pm. At midnight- I felt like heart was beating out of chest,short of breath, tingly hands,lightheaded..etc lasting a half hour. I saw my new doctor lol (cardiologist) and family doctor the next week. Echo ok, ekg ok, stress test on hold. All bloodwork normal except hct 30.7,hgb 9.9,mcv 74, mch 23.9,rdw and platelets just slight elevation. All big drops for me. Had furthur bloodwork - fe/tibc 14/560, iron sat 3. I have leg cramping now too on top of the neuro/cardiac symptoms.
Upper endoscope and colonoscopy next week with biopsy also(he wants to see if small intestine looks inflamed..maybe celiac) I have large hyatal hernia and take a proton pump inhibitor(decreases stomach acid) as well as exercise induced asthma and arthritis(on ansaids). They won't let me take iron until all testing done. B12 normal.
A friend called last night and said that she read somewhere that following a gluten free diet if not a true celiac sprue can cause iron deficiency anemia. My doctors say the opposite. Is that accurate?
I am sorry the post is long. Thank you for any input. Bigsis917

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