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Karl Otto

Member Since 29 Jan 2011
Offline Last Active Jun 04 2011 03:11 PM
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Posts I've Made

In Topic: Deactivate My Account Immediately

30 May 2011 - 05:27 AM

Whenever,I come upon a group of interest and, they tell me to listen to them, only, its time to go.
I am a human beings just like all of you. I have my opinions and thoughts just like all of you. When, members do not listen to me, why should I listen to them. Communications is a two way street. I say somehting to you and, I am suppose to hear your rebutals. This is the way real communications is suppose to be conducted. Vise versa and, so on. I grew up with this disease and, I had to trial and error to deal with it. I think, I have learned something about the disease as well has all of you. But, the members of this forum must learn to hear everyone's opinion equally or, do not speak at all. There is one last point that I wish to make here before departing this forum. This form is for people with Celiac Disease but, most people with Celiac Disease have more than one disease going on at the same time. Many people whom have a second disease, cannot tolerate the food and/or practices of those whom have only celiac Disease by itself. What you people preach here is ok only, if you have Celiac Disease. In the future give warning to people whom come here and have other diseases other than Celia by itself. Tell them not to mention there other diseases or their knowledge of other diseases.

In Topic: My Son's Sad Look Upon His Face

29 May 2011 - 09:03 AM



Hey people do not get me wrong here. For about three years between 18 - 21 yrs old, I did wonderful things. I fished, hiked, camping, took photos professionally for the US Army. I traveled around the world, see many different people and learned that all people are equal and they all want the same things out of life. I was very happy back then. I almost felt normal. I was in college studing to be a writer. It was then the manure hit fan.

My disease took me out of the game of life. I am a living example what happens to the human body when, my two diseases are not taken care of right away.

In Topic: My Son's Sad Look Upon His Face

29 May 2011 - 08:47 AM



It is not being bad or stuck up, to want your children to grow up normal, strong, and happy. It is like child abuse, your grandfather abused you father he abuses you, and when you get grown, you abuse your child. The only way to stop it is to stops with you, yourself. Then, there will be no more abuse.
As with any disease, you know for sure that is in the family tree, it can be pasted along to your children. Child are innocent people, they do not deserve to be born with one foot in the grave before coming into this world. I look back on my young life and, I see where I have suffered because, I my two diseases and know, life would have been better if not for my two diseases. I had the strength in will power to do what it takes to win. But, the diseases must run their course so, I was handycapped right from the start. How, was I expected to tell my sons that, they were going to grow, be athletic, get a good educations and go on to college. At the same time knowing, that I had diabetes, heart conditions,and celiac Disease in the family tree. These things would put a screatching halt to the have happy life thing.
Having diseases, cost allot of money to control, it robs us of our future. It keeps us from working normal jobs and buying homes and giving things to our children and wives. Life is hard enough for normal people but, for the disabled it is evern harder and more costly. Sure, we the disabled do what you can and must to survive another day but, that is not living, just existing only. We make adjustments in our lives but, it is not living, its co-existing only.
I have been personally sick so long, I am sick of being sick. There is nothing, I can do about it, however. Celiac Disease and Hyperinsulinism Hypoglycemia do not get better with time but worse with time. They are classified as a cumutive diseases, meaning gets worse with time.
I have worked for two hours a day when, I was young on volumteer basis one time. I worked in a veterans home setting. These disabled veterans were very unhappy customers, they lived in mysery and, they did not like it, being disabled. Some were in wheelchairs, bed ridden, etc... Some wanted to be able to go out into the world again. They would have litterly sold their souls to be normal again.

In Topic: My Son's Sad Look Upon His Face

29 May 2011 - 06:20 AM



I am talking about the people whom know they have it before they are married or before they become sexually active and, could easily make a mistake and have a child. People whom have Celiac Disease at present time whom, did not know they had it. Well, they have a valid excuse because, someone else had control of their lives.

Hambergs, are made of bread, meat, & Sauces. The last time, I looked those burgers have wheat in them. Some got Rye and wheat, too. Please, tell me you think they do not have it. It states so on the wrapper in my state and city. This product contains wheat, and/or rye. When, you use wheat bread in preparing anything, you contaminate that other foods as well. Come people, has the wheat gluten gotten to your heads. I do not believe in half-stepping here. Just like smoking cigarettes if you quick or say you are quitting it means absolutely no cigarettes what-so-ever.

Like me and food chemicals, I do not drink, chew, smoke, or use street drugs. Nor do I let them be used in my house by others as well. I do not drink, coffee, tea, or anything else with caffeine in it.

Those burgers always made my oldest son sick after he ate them. He would always say, they sure taste good going down but, he would lay back in his easy chair and say he feels sick for the first hour after eating them. He or myself never knew what was causing the sickness. Now, we know, what caused it.

Things like fast foods helped put him in allot of his bad health at present time, too. Over weight, and out of shape. He has a physically demanding job and his other jobs were also physically demanding jobs. It required him to lift heavy objects, bending, stupping, and walking around constantly. Yet, with all these physically demanding jobs, he still become over weight. His doctor says so in his medical records. Too, much fast food he says.

I personally think, that any responsible parent to be, would not want to pass on their medical conditions to their unborn children. Why put a child through the same hell as we have to go through now? They are innocent people. Not knowing something about your health is damaging to your family's health now and in the future times. Celiac Disease keeps on spreading because, we keep having children and knowing we have this disease within us.

In Topic: Celiac Disease With Hypoglycemia

29 May 2011 - 04:02 AM



Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

First off, for years they VA & US Army gave me all sorts and kinds of Anti-Anxiety Meds. Which, were totally wrong for me according to the civlian doctors I have seen in the past. I had to take these meds for 15 - 20 yrs. In there opinion it gave this condition to me.

Second, the VA & US Army doctors gave me Epilepsy meds of all kinds, never did stop any seizure activities in fact made them worse. Again, the civilian doctor blame the taking of the meds for 15 - 20 yrs in cause seizures to be worse. VA & US Army claimed the did not know my present condition.

Third, I now, have no teeth in my head accept my front teeth only top and bottom 12 teeth in all and, they are now in danger of coming out, too. The oral surgen, whom done work on my gums and teeth were shocked at what they saw in my mouth. My gums and jaw bone decentigrated into nothing and, I have no gum ridges to place false teeth on. So, I get no false teeth ever. I have to grind up all my current food in order to eat anything. This could have all been avoid according to the oral surgen if I had have been told and treated for my present condtions. Celiac Disease & Chronic Hypoglcemia.

My teeth as well as my sons teeth died from the inside out that, means the pulps in all teeth died first leaving the outside of the teeth nice and shinny and white, giving the impression of well kept teeth. Then, the teath all crumbled and broke appart in my mouth one at a time. Again, this could have all been avoided if, I would have been receiving proper treatment of Celiac and Hypoglycemia. Thank so much Uncle Sam.

Fourth, I have to keep a log book ever darn day of my life, to write down blood sugar levels, how often eat, and my activities during the day. I do not get any regular sleep due to have to eat 6 times a day, every 4 hours all during the night and day. Never getting but, 3.5 - 4 hours at a time of sleep. I wake up spend 15 - 20 minutes prparing the meals then, repeating this process every 4 hours, 6 times a day. All of this in order to live.

My yougest son and oldest one now have to do this as I do according to their doctors. This is only the tip of the iceberg, of things I go through daily.

Dizzy spells, blurred vision, lightheaded, foggy mind patterns sometimes, neuropathy in fingers and toes, seizures, tired allot, weak spells, loss of weight, under weight, no muscle tone or muscles on body, have to lay on mattress overlay due to bed sores trying to form, cannot sit in regular chairs due to no meat or muscles on my behind. Found out, 7 yrs ago, the US Government knew all about my condition when, I accidently was given copy of my medical records from the VA Hospital. A disgruntled worker at the VA, send me my official copy before she was fired. Papers dated back to 1985.