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Karl Otto

Member Since 29 Jan 2011
Offline Last Active Jun 04 2011 03:11 PM

#703791 Deactivate My Account Immediately

Posted by on 30 May 2011 - 05:27 AM

Whenever,I come upon a group of interest and, they tell me to listen to them, only, its time to go.
I am a human beings just like all of you. I have my opinions and thoughts just like all of you. When, members do not listen to me, why should I listen to them. Communications is a two way street. I say somehting to you and, I am suppose to hear your rebutals. This is the way real communications is suppose to be conducted. Vise versa and, so on. I grew up with this disease and, I had to trial and error to deal with it. I think, I have learned something about the disease as well has all of you. But, the members of this forum must learn to hear everyone's opinion equally or, do not speak at all. There is one last point that I wish to make here before departing this forum. This form is for people with Celiac Disease but, most people with Celiac Disease have more than one disease going on at the same time. Many people whom have a second disease, cannot tolerate the food and/or practices of those whom have only celiac Disease by itself. What you people preach here is ok only, if you have Celiac Disease. In the future give warning to people whom come here and have other diseases other than Celia by itself. Tell them not to mention there other diseases or their knowledge of other diseases.
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#703781 Deactivate My Account Immediately

Posted by on 30 May 2011 - 04:47 AM

How do I deactivate my account with Celiac.com?
I do not want to be a member here any longer.
I want my personal information erased from this forum.
Current members cannot accept new view points on subject of Celiac Disease.

I cannot find the spot on this forum which allows a member to deactivate their account.
  • -1

#703518 My Son's Sad Look Upon His Face

Posted by on 29 May 2011 - 09:03 AM

Hey people do not get me wrong here. For about three years between 18 - 21 yrs old, I did wonderful things. I fished, hiked, camping, took photos professionally for the US Army. I traveled around the world, see many different people and learned that all people are equal and they all want the same things out of life. I was very happy back then. I almost felt normal. I was in college studing to be a writer. It was then the manure hit fan.

My disease took me out of the game of life. I am a living example what happens to the human body when, my two diseases are not taken care of right away.
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#703511 My Son's Sad Look Upon His Face

Posted by on 29 May 2011 - 08:47 AM

It is not being bad or stuck up, to want your children to grow up normal, strong, and happy. It is like child abuse, your grandfather abused you father he abuses you, and when you get grown, you abuse your child. The only way to stop it is to stops with you, yourself. Then, there will be no more abuse.
As with any disease, you know for sure that is in the family tree, it can be pasted along to your children. Child are innocent people, they do not deserve to be born with one foot in the grave before coming into this world. I look back on my young life and, I see where I have suffered because, I my two diseases and know, life would have been better if not for my two diseases. I had the strength in will power to do what it takes to win. But, the diseases must run their course so, I was handycapped right from the start. How, was I expected to tell my sons that, they were going to grow, be athletic, get a good educations and go on to college. At the same time knowing, that I had diabetes, heart conditions,and celiac Disease in the family tree. These things would put a screatching halt to the have happy life thing.
Having diseases, cost allot of money to control, it robs us of our future. It keeps us from working normal jobs and buying homes and giving things to our children and wives. Life is hard enough for normal people but, for the disabled it is evern harder and more costly. Sure, we the disabled do what you can and must to survive another day but, that is not living, just existing only. We make adjustments in our lives but, it is not living, its co-existing only.
I have been personally sick so long, I am sick of being sick. There is nothing, I can do about it, however. Celiac Disease and Hyperinsulinism Hypoglycemia do not get better with time but worse with time. They are classified as a cumutive diseases, meaning gets worse with time.
I have worked for two hours a day when, I was young on volumteer basis one time. I worked in a veterans home setting. These disabled veterans were very unhappy customers, they lived in mysery and, they did not like it, being disabled. Some were in wheelchairs, bed ridden, etc... Some wanted to be able to go out into the world again. They would have litterly sold their souls to be normal again.
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#703477 My Son's Sad Look Upon His Face

Posted by on 29 May 2011 - 06:20 AM

I am talking about the people whom know they have it before they are married or before they become sexually active and, could easily make a mistake and have a child. People whom have Celiac Disease at present time whom, did not know they had it. Well, they have a valid excuse because, someone else had control of their lives.

Hambergs, are made of bread, meat, & Sauces. The last time, I looked those burgers have wheat in them. Some got Rye and wheat, too. Please, tell me you think they do not have it. It states so on the wrapper in my state and city. This product contains wheat, and/or rye. When, you use wheat bread in preparing anything, you contaminate that other foods as well. Come people, has the wheat gluten gotten to your heads. I do not believe in half-stepping here. Just like smoking cigarettes if you quick or say you are quitting it means absolutely no cigarettes what-so-ever.

Like me and food chemicals, I do not drink, chew, smoke, or use street drugs. Nor do I let them be used in my house by others as well. I do not drink, coffee, tea, or anything else with caffeine in it.

Those burgers always made my oldest son sick after he ate them. He would always say, they sure taste good going down but, he would lay back in his easy chair and say he feels sick for the first hour after eating them. He or myself never knew what was causing the sickness. Now, we know, what caused it.

Things like fast foods helped put him in allot of his bad health at present time, too. Over weight, and out of shape. He has a physically demanding job and his other jobs were also physically demanding jobs. It required him to lift heavy objects, bending, stupping, and walking around constantly. Yet, with all these physically demanding jobs, he still become over weight. His doctor says so in his medical records. Too, much fast food he says.

I personally think, that any responsible parent to be, would not want to pass on their medical conditions to their unborn children. Why put a child through the same hell as we have to go through now? They are innocent people. Not knowing something about your health is damaging to your family's health now and in the future times. Celiac Disease keeps on spreading because, we keep having children and knowing we have this disease within us.
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#703441 My Son's Sad Look Upon His Face

Posted by on 29 May 2011 - 04:32 AM

My oldest son whom, is 37 yrs old was driving by a Burger King stand yesterday. He had to stop near the stand due to traffic. The smell of the fresh burgers and french fries were pumping out into the air. He told me, he felt so sad and wanted to cry. Imagine that, a grown man wanting to cry. He was very tempted to go straight in there and get one of those burgers, he claims. He thought better of it and drove on home. He looks me in the eyes, his father with a deep saddness and, ask if this is how it is to be all his life? He just shook his head in, saddness. It made me want to cry myself and, I felt realy bad, knowing, I was the one that gave it to him from birth. He got it from me.
Which, brings me to this point, why would any person whom is not married or married without children want to bring a child into this world when, they have this disease. The only way this disease keeps on spreading in through live birth. If the current young people of today know they have this disease when they have children ? You are going to make some innocent child go through all this hell, pain, and mysery. I would not have done it had I known, I had it at the age of 18 years old.
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#703438 Celiac Disease With Hypoglycemia

Posted by on 29 May 2011 - 04:02 AM

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

First off, for years they VA & US Army gave me all sorts and kinds of Anti-Anxiety Meds. Which, were totally wrong for me according to the civlian doctors I have seen in the past. I had to take these meds for 15 - 20 yrs. In there opinion it gave this condition to me.

Second, the VA & US Army doctors gave me Epilepsy meds of all kinds, never did stop any seizure activities in fact made them worse. Again, the civilian doctor blame the taking of the meds for 15 - 20 yrs in cause seizures to be worse. VA & US Army claimed the did not know my present condition.

Third, I now, have no teeth in my head accept my front teeth only top and bottom 12 teeth in all and, they are now in danger of coming out, too. The oral surgen, whom done work on my gums and teeth were shocked at what they saw in my mouth. My gums and jaw bone decentigrated into nothing and, I have no gum ridges to place false teeth on. So, I get no false teeth ever. I have to grind up all my current food in order to eat anything. This could have all been avoid according to the oral surgen if I had have been told and treated for my present condtions. Celiac Disease & Chronic Hypoglcemia.

My teeth as well as my sons teeth died from the inside out that, means the pulps in all teeth died first leaving the outside of the teeth nice and shinny and white, giving the impression of well kept teeth. Then, the teath all crumbled and broke appart in my mouth one at a time. Again, this could have all been avoided if, I would have been receiving proper treatment of Celiac and Hypoglycemia. Thank so much Uncle Sam.

Fourth, I have to keep a log book ever darn day of my life, to write down blood sugar levels, how often eat, and my activities during the day. I do not get any regular sleep due to have to eat 6 times a day, every 4 hours all during the night and day. Never getting but, 3.5 - 4 hours at a time of sleep. I wake up spend 15 - 20 minutes prparing the meals then, repeating this process every 4 hours, 6 times a day. All of this in order to live.

My yougest son and oldest one now have to do this as I do according to their doctors. This is only the tip of the iceberg, of things I go through daily.

Dizzy spells, blurred vision, lightheaded, foggy mind patterns sometimes, neuropathy in fingers and toes, seizures, tired allot, weak spells, loss of weight, under weight, no muscle tone or muscles on body, have to lay on mattress overlay due to bed sores trying to form, cannot sit in regular chairs due to no meat or muscles on my behind. Found out, 7 yrs ago, the US Government knew all about my condition when, I accidently was given copy of my medical records from the VA Hospital. A disgruntled worker at the VA, send me my official copy before she was fired. Papers dated back to 1985.
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#703080 Endometriosis?

Posted by on 27 May 2011 - 03:44 PM

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.
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#703061 Refractory Celiac Disease

Posted by on 27 May 2011 - 03:16 PM

I had a situation once, like temporay IBS, Irritable Bowel Syndrome, I think hat is how you say it.
The doctors at the emergency room gave me some little antibioltic blue capsules. I was suppose to take them for 10 days. After the 5 th day, I got really sick and went back to the emergency room in an ambulance. After that, I produced a large amont of clear dark yellow liquid every time, I had a bowel movenment for a week or two. Then, that was followed by allot of blood in the stool. You could see all the blood in the bowl. It was scary. So, I went to the doctor's office. She told me it was a temporary bout of IBS. Two months later it was all gone, as soon as I stopped eating anything with gluten in it. I have had no bowel problems since, that time many years ago.
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#703045 Has Any Of The Older Member ?

Posted by on 27 May 2011 - 02:25 PM

I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it. I took some anti-biotics that the doctor gave me. It went away but, the antibiotics did make me so sick, I had to go to the emergecy room after 4 days of taking them. Today, 5/27/2011 I went into a Hypoglycemic state. My glucose levels dropped all the way down to 63 mg/dl. I was having all sorts of problems at that point. Celiac Disease was the furtherest from my mind at that moment.

However, I can and do tolerate Extra Virgin Olive Oil just fine. I put it on top of my food with every meal. 1 Table spoon full. So, it is not all oils that bother me. At lease, I can eat olive oil without problems.
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#702905 I Had The Old Test For Celiac Disease

Posted by on 27 May 2011 - 08:42 AM

According to the VA Regulations and, according to the military lawyers, they are responsible. Neither one of us knew the name or the diseases, I was born with at the time, I was drafted. The US Army, were informed and took note of my medical condition. Everyone is examined over and over in the US Army upon enlisting and during basic training. They probe you and prod you and give you untane million shots. They went right ahead and, let me in and serve for 10 years. If I would have known the name of the diseases and with held the information from them, yes they would put me in jail. They themselves did not know of these diseases. When, I went to the clinic for sick call, they would scratch their heads and, say they did not know what kind of sickness I had. Some doctors looked up my conditions up in their doctor's medical handbooks and did not come up with a thing. During my service days on active duty my disabilities became worse and, I had to leave my career. I wanted to stay for 20 years and retire. But, after 10 years, I was just too sick to continue in the military. My oldest son spent his time with me during my military service and, he has been with me ever since. He wittness the US Government give me every medication possible after military service. Heart med, asthma meds, kidney meds, meds for bad back, meds for my eyes, ears, etc..
every kind of meds accept, treatment for Celiac Disease or Hypoglycemia. Then, when, I was 50 years old all of a sudden, they know about what has been bothering me all these years and it was none of the above diseases. It was just plain Celiac and Hypoglycemia. The damage to my inside guts and organs have been damaged beyond repair now. So, the government workers in Washington DC say they owe me compensation pay. If they did not want to pay they, should not have let me into uniform in the first place nor, drafted me into the US Army.
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#702879 I Had The Old Test For Celiac Disease

Posted by on 27 May 2011 - 07:35 AM

I already have disability from Social Security. My youngest son has disability for Social Security purposes. Yes, you are born this Celiac Disease just as you are born with Hyperinsulinism Hypoglycemia as well. Both diseases are inherited from your parents. Well, the Center For Diesease Control says so any ways. First off, the Veterans Administration is emplying that my sons are not my sons. (Biologically) I was there, the day each one was born, I was there the day my ex-wives got pregnant. The boys look just like family member of my brothers and sisters. I spent 10 years in the US Army Signal Corps at basis all over the world. 1972 - 1982. During that time period the medical persnonnel did not know or said they did not know of these two diseases. I informed the miltary upon entering the US Army about, my condition. I was thin, no muscle tone, and under weight when they drafted me for Vietnam War.
Many years after the servie the VA found the name of my diseases. Celiac and Hypoglycemia Diseases. The Social Security gave me total disability way back in the mid 1980's but, the Veterans Administration gave nothing. I never worked any where as a civilian worker. My whole work career in electronics and telecommunications was done in the US Army. Yet, the Social Security looked at my test results and medical records and gave me total disability right away and, I have had disability since that time to present time.
The US Government workers at the VA in Washington DC told me, the military should not have allowed you into the US Army in the first place. They (US Army) did allow you in so, they are responsible for my medical conditions. In other words, they owe me compensation for my conditions. That is what I have been fighting for my whole life. To get what is rightfully mine. Nothing more, nothing lest.
The DNA test is done to establish that I am the biological father of all three son. Since, they each have the disease, their mothers do not, I am common to the three sons. Along with their diagnoses, my older test, and the DNA Test proving without a shadow of doubt that I have the disease of Celiac. The chances of marrying three different women with each one having Celiac Disease is next to impossible.
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#702837 I Had The Old Test For Celiac Disease

Posted by on 27 May 2011 - 06:05 AM

The ex-wives have been tested and found negative. They have other children after they left me and, those children are very healthy compared to the child or chidren they left in my care. The three sons, the ex-wives left me always have had problems with foods and health since they were born. I am the comon fact between my children. Though, they each had different mothers, I am the same father for all three boys. This makes me the carrier of the bad genes.
I am going to get the DNA test between me and my sons then, I am going to get a genes tests. Then, I am going to get a leter or statement stating that the disease comes from the parents of the children. Just maybe, the US Government will see these proofs and accept the original Celiac Disease test and, I can win my many cases for compensation. The money will go a long way in the future when it comes down to financial support for this disease. As everyone knows this Celiac Disease will become more expensive to up keep as time goes by.
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#702592 Has Any Of The Older Member ?

Posted by on 26 May 2011 - 11:07 AM

I have almost forgot for, the last 5 years, I have not been able to tolerate fats. When ever, I try to boil chicken meat, breast, thighs, or drump sticks. The fat boil out of the meat but, I get really nausea if, I eat the meat. I found that whether the meat is pork, chicken, or beef. It oils or fats come out of it or, it is greasey, these fats and oils make me really sick.
Also, if any spices are used in preparing my food other than Iodine Salt, I also get really sick within minutes. My stomach becomes upset and burns. If I eat only bland foods, I have absolutely no problems at all. If I stay away from all oils and fats I am just fine. The only oil, my body wants or tolerates is Olive Oil only !

Any ideals what causes this?
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#702579 Has Any Of The Older Member ?

Posted by on 26 May 2011 - 10:34 AM

I agree with you. We shouldn't be looking back to the past. But, in my case the past is repeating itself. There it is relavent to this situation. I also agree that the Celiac Disease part of my life has done and is doing better. However, the Hyperinsulinism Hypglycenia is not doing well. The second disease can kill me before, I reach the age of 60 years old. Notice the list on my signature ?
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