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Dee777

Member Since 31 Jan 2011
Offline Last Active Oct 08 2013 04:07 PM
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#780607 Struggling To Lose Weight...

Posted by Dee777 on 14 March 2012 - 09:17 AM

I was diagnosed with Celiac disease on January 25, 2011. I had been losing a lot of weight, fast. Once going gluten-free, and my innards began to heal, I put it back on. And then some, like 15 pounds MORE than I started with BEFORE I lost weight being ill. I was stuck on the whole "I have Celiacs now, it's going to be impossible to lose the weight, etc. etc. etc..." and I lived with that for about 4 months. I was unhappy how I looked, hated looking into a mirror. Lost my confidence.

Then, I realised something. Celiac disease did not take away my body's ability to lose weight. I gave up. Even though I have Celiac disease this same formula holds: Calories in < calories burned. Less input, more output. I gave up eating gluten-free bread, it is more calories than the wheat crap I ate before. Ditto pastas. I eat a slice of bread maybe once a week now. I started online Weight Watchers. I walk, use my exercise bike, play with my dogs in the back yard. I clean my house more vigorously. And, I am losing weight now. Being Celiac didn't stop me from losing weight, THINKING that I couldn't lose weight because I had Celiac's kept me from losing it.

Just a thought. Hope it helps someone get over what I was going though, which is what I call the Celiac Weight Dilemma. Commercially prepared gluten-free foods are high in calories. If you eat them, you need to burn them.

I now eat tons of fresh fruit, veggies, veggie and chicken stir fries, some beef (lean), and can now evern eat dairy products.
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#707611 The Gluten Was "fermented" Out Of The Sauce

Posted by Dee777 on 10 June 2011 - 02:46 PM

Psawyer, that is exactly what I just said to my husband lol
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#707610 The Gluten Was "fermented" Out Of The Sauce

Posted by Dee777 on 10 June 2011 - 02:45 PM

The name of the company is Sunset Gourmet. They claim they have been selling this sauce for over 4 years with "no problems". I will copy and paste his reply in a bit! Thanks for your response!
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#700736 I Can't Do This

Posted by Dee777 on 19 May 2011 - 05:56 AM

Yes ,to the OP , how are you doing??


I, too, am concerned about the OP and how she is doing. My thoughts are with her every day.

Dee
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#697250 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 06 May 2011 - 04:56 AM

Glad your doctor was able to get you in. Sometimes the doctors with the worst bedside manners are the best at figuring out what is going on. Hopefully that will be the case for you. I do hope you are feeling alot better soon.



Thank you, Ravenwoodglass!
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#696823 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 04 May 2011 - 09:03 AM

You're so welcome, hon and I hope it resolves the D for you.

I knew your electrolytes must have been off, that's why I recommended the water,salt,sugar drink. I commiserate as I went through that awful D and abdominal pain for a very long time. Had the abdominal scans, stool samples, scopes, everything. They could never "see" anything except the tests revealed an absence of good bacteria in the gut.

The bottom line? Time and Probtiotics. Trust me. Your gut flora is all out of whack. No doctor will tell you to supplement with these, but celiacs have unbalanced gut flora for sure.

Please get some and try it. I get mine from Custom probiotics. (If they edit the name out, PM me and I'll tell you where)

TOTALLY Stopped the D, the C and now, I have normal BMs for the first time since....um :unsure: ,...well, EVER in my whole life. :) :)

Geesh, did you ever think you would be discussing poop with other people on the internet?? :lol: :lol:
me neither, but there it is... ;)

Please, keep me posted. I want to hear you are feeling better!! ;)



Now that you mention it, no. I never imagined I would ever be discussing my poop condition with anyone, least of all on the internet :)

I received a call today from the office of a gastroenterologist. It appears my GP called and begged for me to have an appointment with him and lo and behold I have one for tomorrow morning at 10. I have been taking the probiotics but I am not sure if they are inside me long enough to work. Every time I have a little drink of something even water, whoosh. Down the drain. Do you order your probiotics online? I live in a small community (pop. ~5,000) in Canada, there aren't a whole lot of places here to get them so my options are limited! The ones I currently have are bought at my local drugstore.

I am a little leery about seeing the gastroenterologist. I looked him up online and have read that his bedside manner is atrocious. I guess I can go see what he has to say, I don't HAVE to do anything he suggests if I don't feel right about it, right? I am just so tired of doctors and tests and D! Not that anyone else in here isn't either! I am certain I would be insane by now if I didn't have this forum and you wonderful people!

Thank you, Irish!

Dee
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#694921 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 07:09 PM

:rolleyes: (chuckling) yeah, what a topic for me to be so well-versed in, eh??...poo and how to stop it...geesh.... :blink:

I became a non-stop researching machine the last 4 years as I became so ill because NO ONE in the medical community was any real help...I only pass on what worked for me. (and reading and trying to comprehend it while my brain was impaired was pretty tricky indeed)

I truly hope you start to feel better soon. The probiotics are pretty miraculous. Give them a chance to repopulate your gut and you'll notice a difference.

You need some fiber --so ditch the dairy and eat that rice and peeled apples. Hang in there, hon!I never thought I'd get to where I am now either...but...here I am.

No D anymore...ta da!! B)

let us know how you're doing!!

Well, everyone should be an expert at something... your area of expertise lays in poop, and i have learned I have a new talent- I can break the speed of sound making tracks for the nearest bathroom!

I had a great day today. Ate a peeled apple, and that was wonderful! For supper I had a half cup of plain boiled white rice and a little less than half a small plain baked chicken breast, and have broken that sound barrier many many times since :(

Ah well. Should have known better maybe I pushed it? I didn't need to take Imodium at all today, had to take three of them within 15 minutes. I do have a question though, if anyone knows. Can I still take the probiotics within a short time of the Imodium? Do I have to wait a certain amount of time between both? I am asking because I forgot to take a probiotic with my supper. Ah this learning curve is so steep!

Thanks! And good for you having no D anymore!!! I am dreaming of that day and will throw the biggest party this town has ever seen when it finally arrives LOL I'll put a big banner in my front window "Come celebrate with me, I no longer suffer from the big D!!!
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#694752 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:20 AM

I have been where you are. I had uncontrollable D for years. My idiot doc told me it was IBS and didn't even give me a blood test for celiac. After I finally found out I had celiac and went gluten free, things got a bit better but I still had problems from time to time.

What worked for me was to get off processed foods. I think that cc was getting me. Instead of baby food bananas, eat actual bananas. Instead of rice crackers, eat rice. Lundbergs seems to be the least cc. Get off the Gatoraid and tea. When the D stops you can try adding things back in one per week and you will know what items you can tolerate and which you don't. Keep a food diary. Good luck.

There are few things worse than letting loose in your pants.


I haven't had the baby food since Saturday, I laid off the crackers and will try the plain rice tomorrow as per my earlier post... You made me laugh with your letting loose in the pants comment, seriously I needed that laugh thank you SO much for the advice and the humor!!! Oh and I switched from Gatorade to Pedialyte and no more tea for me for a while!
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#694751 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:18 AM

You might try taking L-Glutamine, which heals the gut. It ended years of D for me.


Thank you so much for the tip, I am going to go check into that today with the pharmacist who has been so patient with my questions! Your help is much appreciated!
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#694750 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:17 AM

Don't be sorry--you are not a whiner, and you certainly aren't an idiot, hon!! ((HUGS))

I have been in your shoes with this non-stop D, cramps, bloating, and pain in the past, even ending up in the ER with dehydration. Even after going gluten-free, I still had D off and on, mostly because I had trouble digesting fats. I used digestive enzymes and they helped enormously! No more D for me--since about month 3 of absolutely no gluten, no dairy, no soy.

Here's what I have learned:

Gatorade actually creates diarrhea...stop using that ASAP.
Stop the tea too. Tea is a major gut irritant.

If you are dehydrated, mix a TaBLeSpoon of sugar and a TeaSPoon of salt into 16 oz. of water...it will do the same thing as pedialyte. I promise! It will balance your electrolytes quickly.
I did that when I was really ditzy from dehydration and it worked well. (my hubby-- the chemist-- thought of that for me :)
Were you glutened???

I am just wondering...what provoked this episode? What were you eating before this happened? Was anyone around you ill?Are you running a fever?
I hate to ask so many questions, but I am just trying to help you sort out what started it.

D is caused by a virus, a parasite, sugar or fat malasborption , food poisoning, small bowel bacterial overgrowth, among other things.

Are you newly gluten-free? your gut may just be so irritated and raw still.

Can you eat plain rice crackers (gluten-free crackers have soy and sometimes, soy is very difficult for celiacs to digest) and maybe a real banana??
(I would skip the baby food) Peel an apple and eat small bites.

I would follow the advice MarilynR suggests--small amounts of plain, boiled chicken breasts, plain rice....and you should level off.

Immodium does put a good quick HALT on diarrhea BUT it is not wise to use it for days on end.
If you have something in your gut that is causing you pain and illness (a flu bug, gluten, some other poison like Ravenwood suggests) then, you actually DO want to let it out.

The spasms that produce the big D occur because the tract is working extra hard to rid the body of whatever it does not want in there.

If there is insufficient fiber and not enough good gut flora, there's going to be watery stools.

I would suggest taking probiotics (none with dairy, though!!!) if you don't already. They provide the good bacteria you need to get your gut flora balanced out.

When I was really ill with D and lost a dramatic amount of weight(before I was DXed) I had digestive stool testing done and I had NO GOOD bacteria in my gut---that is NOT a good thing. :unsure: I read that Celiacs usually have an imbalance of good/bad gut bacteria.

Three weeks is a long time to have chronic D. I know, I had it for weeks at a time for nearly 2 years. Felt like a weak rag doll all the time.Not fun!

Please...go to your doctor if this does not stop in the next day or so, just to be sure you're not dealing with something other than the gut irritation from the celiac.

I hope this helps and I hope you feel better soon!!



Holy COW... you are one wealth of information, aren't you??? :) Thank you thank you for it all, I have started a probiotic recommended to me by my pharmacist and it seems to have slowed things down, have been feeling better although things have not stopped yet. I started them Saturday night so haven't been on them long at all. I can't remember what I ate prior to getting ill, and I am eliminating ALL dairy for a while will slowly re-introduce it at a later time. Thank you SO much for your help!
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#694747 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:14 AM

When I get D (it is rare) I consume more fibre and that ALWAYS works. Women are to have 25 g of fibre per day; men 30 g. Apparently we only get about 10 g per day on average! Some days I struggle to get enough fibre in my diet.


I agree that we don't get enough fibre in our diets! I will certainly keep that in mind for when I can eat again LOL Thank you for the reminder and for your advice it's appreciated!
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#694746 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:13 AM

Did your doctor do any stool tests? If not go back and demand them. I had salmonella once for almost 3 weeks with my doctor telling me that it was just my IBS acting up (I hadn't been diagnosed celiac yet at that point). I knew this was different from the daily D I had already had for years. Even immodium wouldn't stop it for more than an hour or so and I lost 20 lbs in those 3 weeks. I finally got her to test and sure enough I had it. A short course of antibiotics cleared it up pretty quickly.



I am going to the doctor this afternoon, and I will request the stool tests. My doctor is very sympathetic to my cause and generally if I ask for something like a test in particular he has no problem giving it a try. Imodium helps most of the time but I find if I take the plain Imodium I get all sorts of cramping and gas and bloating and writhe around like a fat worm until it wears off. So I tried the Imodium that covers gas and bloating as well and it is better. Will let you know how the tests come out, thanks for the information, it was very helpful!
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#694744 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:10 AM

(Just an aside.. I had some blueberry tea the other day.. made me sick and - checked the label. Yup, soy in it. :huh: Double check your labels..)


Ah, labels labels... I have read them until I am cross-eyed!!! Dang things. I have gotten to where if I can't pronounce it, I don't eat it, plain and simple. Thank you for the reminder though, silly things us celiacs can't eat!!! I appreciate your help!
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#694741 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 25 April 2011 - 09:04 AM

It costs a little more, but try picking up some pedialyte, or make this: http://rehydrate.org...prepare-ors.htm
Gatorade really isn't for long-term diarrhea, and can sometimes contribute to the problem. Have you tried a lot of yogurt/probiotics, and what color is your stool? (Oh, what a terrible question. :D)



Sorry to all for my neglect in replying sooner, I was a little under the weather and lazing around in the bathroom :)

I did pick up the Pedialyte, and I have been drinking it faithfully. I have noticed a marked difference in my hydration, thank you for the tip! As for the color... it ranges anywhere from a lovely light tan to a medium brown. Quite similar to my hair color as a teenager LOL
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#694301 I Might Be An Idiot, But I Am Desperate...

Posted by Dee777 on 23 April 2011 - 05:11 AM

I have had D since the 3rd of April. It doesn't matter what I eat, it doesn't matter what I drink. My diet for the past 3 days has consisted of G2 Gatorade, water, tea, rice crackers, jars of baby food bananas. If I take Imodium it helps control it but I get horrible cramps and bloating. I called the doctor and asked for Lomotil on the 14th and they called in a prescription for me for 3 days worth and that was it. I went tot he doctor for this about 2 weeks ago and I was told it would pass... I am not sure what to do. I mean, aside from seeing the doctor again. Is there something I'm missing? Is there anyone else out there who gets it this bad? I feel like a freak. I mean, I can't even drink and eat a few crackers without having to be 10 feet from the bathroom. I am scared and stressed and my husband has no idea what to do with me anymore... I want my life back! If there is ANYONE out there who has gone through this, and can tell me how they managed the big D, please, please let me know. I am so desperate. Thank you in advance, sorry for being a whiner :)
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