I know it has been said many (tons) of times but I have to say it again because, here I am - a new member and, this forum has made such a difference.
This has been so educational and whole areas of experience are so important.
A friend of mine and I were visiting and I know she is bipolar so I asked "Do you have D by any chance?"
"All my life..."
"Oh yes, and migraines."
I was all over her to go and get tested and I am so excited that there might be an answer to some of her issues. Even to get rid of the GI issues would help so much.
And now I am starting a support group here and they have a safe place to come and share everything... this site! I feel very thankful for all this offers here.
I have always believed in being straight up with kids. It seems they follow like little ducks and if something is presented to them as matter of fact.. that's how they take it. They will watch you to see how you deal with life and this is a great chance for you to show them... this isn't terrible, it's just different.
An idea is to thank them for their wonderful gift and since you can't eat it yourself you are going to save it for someone very special or 'someone I love'.
And yes, your body is very badly reactive or 'allergic' (if that helps them understand). I think it is good to educate and inform because some child that is standing there may end up with something or have something even now... and they want to know - it's okay to have an allergy or syndrome or disease (whatever) or to be different.
GO Jenn624!!! Kids are great!
I am sure it is normal... I've shed tears too. Once just because someone made something gluten free for me and I didn't expect it. There is definitely a grieving process especially when you have a life change like this. I've heard others talk about this too. You need a HUG!!!
For quite a few of us just a little bit of gluten after being gluten free causes an even more severe reaction than what we were experiencing when we were diagnosed.
I just want to underline this point. The longer I am gluten free the more I can't tolerate gluten 'cheating'. Also - I was the 'IBS' diagnosis and negative biopsy. When I went gluten free... UREKA! I felt SO much better. You may want your wife to live as a gluten eater but if that is the issue... it will be doing something behind the scenes.
No, I'm not fvbnpbw.. no no I'm GIANT! (Hear me FART!) Gluten Intolerant And NO TESTING!!
YES!! I'm all for the costumes.. I can do a huge paper mache POO ... and have a fart pillow inside. We have a huge Goose Festival here at the end of Sept. (we're on the Canada goose flyway) and it would be a great time to walk around in a big Poo costume and answer questions... but do I have the guts??? Heck of an idea..!
First of all, I WANT US TO HAVE A SECRET HANDSHAKE!!!
(and the cone of silence too.. )
I loved reading through this.. I hope it keeps going!
I am a home schooling mom with a teenage son. BUT.. before that.. I was (I'll start at the beginning -)
Photo plant color corrector (they use to have those)
Darkroom technician for a professional photographer
Framer and Poster Salesperson
Teacher Aide for Hearing Impaired
Teacher Aide for Mentally and Physically Challenged students
Notetaker for Hearing Impaired Adult Basic Education students
Technical Institute bookstore computer inventory clerk
Wait.. am I looking a bit unfocused? I always loved something new, never was fired, always had a job lined up before I moved to something else.. I loved the adventure. Those were the days before I had my son and.... the evil gluten monster bit me.
We have (now) a chinchilla and a budgie. We used up 2 hamsters and 2 gerbils and a fish.
I am a farmer's daughter. I love the country.
My theory is that people who love pets are have gluten problems. The thing now is to find the correlation between certain animals and whether it is gluten intolerant or Celiac or Celiac with soy intolerance or dairy allergy or....
You've got to know that, if eating out, you will encounter additives like msg. It seems to me I remember people talking about racing heart and msg.. Institutional food also... very bad for having additives in packaged quantities.
I have the same concern for a couple of people I know.. people with symptoms which, to me, are very indicative of allergies or gluten issues. I wish they would try a gluten free diet also. It can't hurt and it is a healthy diet.. can't be anything but good for a person compared to fast food.
There wouldn't be any harm in suggesting it and seeing if they are open to it.
Ok...let's get this straight...if your doctor says that you don't have celiac...then you probably don't have celiac. If you don't have a blood test and an endoscopy..then you don't have celiac. That is the only way that you can tell. You don't take test that you get off the computer...or you don't take the word of your "friend" or you don't read an article in a magazine saying that you have celiac.... That means that you don't have celiac. This in fact it is a serious disease...and there are sooo many people that are diagnosing their selves... because it is cool...it is fun to say I have a disease...( and one that is easy to take care of..) . The world has decided to diagnose their selves..and now we are 'all ' celiacs...
To read the forum over time... you will hear the underlying response by a majority of the medical profession to REAL symptoms that are debilitating. It is very frustrating to have doctors decide they absolutely know if you have something based on science that has not progressed far enough to test for all the indicators. Not unlike using fingerprint technology before DNA testing became accepted in forensics. Obviously there is something going on with all these people who are testing negative but displaying positive symptoms. The testing is still in infancy.. just as all science progresses, so will accuracy in testing for Celiac and gluten intolerance.
There seems to be some kind of resistance in this country for doctors to even think of celiac as a possible diagnosis. One person told me it was the lack of drugs etc. needed to cure it--those no push by the pharmaceuticals and no real money in it for surgery unless say you get cancer of the gut etc. All I can say is that it is very noticeable absence and very weird. It is an attitude however that is gradually changing--especially now that there is a simple blood test that can indicate if you have the potential to have it or not. An extra reason doc's seem to avoid the diagnosis is that they think its a "fad" plus it creates a very limited diet which they themselves often couldn't imagine following. Pretty crazy, eh? Since for those who do have celiac its not worth being miserable and sick just to fit in and have the usual diet etc. etc.
When my dad first displayed Crohn's disease in the 50's, the doctor scoffed at him and told him there was no such thing... it was just a fancy name for irritation of the bowel. This is the pattern, unfortunately, for the medical profession. The new (and Celiac/Gluten problems are sure not new) problems fall through the cracks until it is more widely publicized in journals. They also HATE to be told what is wrong... that's BAD!!! They have just enough information to be dangerous sometimes. That is not discounting the doctors who understand. Thank God for them. At least there are some...
I've had 6 years of all kind of tests for everything but Celiac. I recently had a colonoscopy, endoscopy, and biopsy.. everything 'normal' and I am obviously fine. After years of being sick I found all this gluten info online and went gluten free... BINGO. I feel wonderful now... but.. I am still undiagnosed, except by me.