Here I go... stirring the pot... but - I am going to start a support group... and I am self-diagnosed. WAIT!!! There is a good reason. I live in a very small town and we have to drive 2 hours to buy any kind of supplies other than rice flour and about 8 other things. Secondly, the doctors here are very slow to recognize anything other that a positive blood test and all of us are suffering and need support. I have also been reading and reading this forum for days now and 1. I am so very thankful for the forum, 2. I am so very thankful to have only the problems that I have.. ie - I am not sick if I don't eat gluten, 3. and I am so very appreciative of everyone who shares their experiences because I realize there are people who are going through H---- on earth and I don't have a CLUE what that is like. And, if I start a group, they need to be safe in this group. Our issues?.. in this town their is nothing for Celiacs or any derivative of it and I would like there to be some public awareness and support for those who need it. Also, there are many people here who don't have enough computer savvy to access the net or who don't even use a computer. The first thing I want to do is give those who use a computer the address for this forum. I can see it could be the difference between.. life and insanity..
I've had 6 years of all kind of tests for everything but Celiac. I recently had a colonoscopy, endoscopy, and biopsy.. everything 'normal' and I am obviously fine. After years of being sick I found all this gluten info online and went gluten free... BINGO. I feel wonderful now... but.. I am still undiagnosed, except by me.