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Cara in Boston

Member Since 03 Feb 2011
Offline Last Active May 13 2015 09:22 AM
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Posts I've Made

In Topic: Desperate To Lose 10 Lbs

12 May 2015 - 05:06 AM

Read up on the Paleo diet.  I lost weight while consuming slightly more calories.  Once I eliminated grains and added more fat, that seemed to do the trick.  Plus, I found that I felt GREAT.  Not starving all the time.  I made sure I had protein and fat at every meal (avocado, nuts, olive oil, etc.) and everything improved (medical numbers, skin, hair, energy, mood, etc.)


In Topic: How Long Until Biopsy Comes Back? Going Nuts Here!

12 May 2015 - 04:55 AM

Since it sounds like testing (for celiac) is complete, you can go ahead and start him on the diet.  If the test results come back inconclusive (biopsy can only confirm celiac, not rule it out) you can continue the diet for 3 months to see if it helps.  Not sure what his symptoms were, but if you see improvement on the diet, you will have another clue as to what might be causing the problem.  


In Topic: Should My Daughter Have A Biopsy?

13 March 2015 - 06:39 AM

I do think it would be great to have an actual, concrete diagnosis.  However, there is a chance you could go through all the pain and suffering and the biopsy could STILL be negative and that will not rule out celiac.  It just means the damage was not found, NOT that she doesn't have it.  The doctor could miss it, the gluten challenge might not have been long enough, (my doctor said 6 months eating gluten), etc. etc.  If she is told she does NOT have celiac (when it kind of looks like she does) then she might feel free to continue to eat gluten - even occasionally - and her health will not improve.

 

Some doctors won't diagnose without a positive biopsy.  Others will take into account family history, symptoms, response to the gluten free diet, etc.

 

Some schools, colleges, camps, will require an actual diagnosis in order to provide accommodations.  Of course, a diagnosis of gluten intolerance would also work in this case.

 

What blood tests did she have?  Maybe she was not given the whole panel (not uncommon) . . . maybe if you revisit that you could get more information.

 

Anxiety and depression are also symptoms of celiac disease.  

 

From my experience, my youngest son was diagnosed first.  Once I learned about celiac disease, I realized I had most of the classic symptoms for about 5 years.  I was extremely anxious, but I attributed it to being sick all the time and my doctor not finding anything wrong with me.  My blood tests were positive, so I went gluten free with my son.   Suddenly felt great.  Then doctor wants to do biopsy.  Says I hadn't been gluten-free long enough to change outcome so I did.  Biopsy was negative.  New doctor (at Celiac Clinic) says to go back on gluten for 6 months and do another.  I made it about 6 weeks and felt terrible again.  Stopped and just went gluten free.  I didn't need a positive biopsy to tell me I shouldn't be eating gluten.  My doctor diagnosed me with "gluten intolerance" even though I had positive blood tests and a son with celiac.  I clearly have celiac, but who cares?  Treatment is the same.


In Topic: Eating Out In Washington Dc - Need Suggestions

13 March 2015 - 06:30 AM

Thanks for the suggestions so far.  We will be staying close to the museums and stuff - taking the train, so we won't have a car to travel too far.  


In Topic: Chef That Wants To Borrow Your Shoes...i'm Taking A Walk

11 March 2015 - 05:09 AM

I think what you are doing is great, however, you will not get the full experience because you will have no reaction when the waiter, menu, kitchen staff, manager, etc. is wrong.  Our extended family is constantly rolling their eyes when we decline dinner invitations because they just don't get it.  If the place has a gluten free menu, why don't we just enjoy it?  The consequences of putting our health into someone else's hands - a stranger who may or may not know what they are doing - is just too great.  And, too stressful.  Sometimes I can't even enjoy my meal because I am so worried about what may happen tomorrow.  

 

We have a limited number of places we trust (CPK is one, but only the location at the Pru, not the one downtown) and sometimes even that can be inconsistent.  The fantastic waiter one day may not be there the next time.

 

If I was just "choosing" to be gluten-free, there would be 100s of options for me.  The reality is very different that what it may appear.

 

Maybe you could get those test strips (never tried them) and test each meal to see how often mistakes really happen.