kennessee

None of the tests are really conclusive unfortunately. Did your doctor do a total IGA? There are quite a few of us who are IGA deficient which will make the IGA testing consistantly negative even if we are celiac.

I don't know if they did a total IGA.  All the paperwork said was "Endomysial Antibody IgA and t-Transglutaminase ( tTG) IgA"  that was it.

I went out today and bought some gluten-free stuff: chicken nuggets, mac and cheese, snack type stuff.  It's expensive, that's for sure!  Is cornmeal fine for coating chicken?  I bought lots of frozen chicken and decided I would coat them with cornmeal or Bisquick Gluten-Free coating.  I went in and got the blood results so I could see them and the dr only ordered 2 tests out of the 5 or 6 on the celiac panel.  He ordered the Endomysial Antibody IgA and the t-Transglutaminase (tTG) IgA.  The Endomysial Antibody IgA said negative and the tTG IgA said <1 negative.  Those were the only 2 he tested.  Just testing these two would the results be conclusive to negative?  Or should the doctor have ordered all of them?

Thanks for replying, Macie.  I am not even sure where to start with eliminating gluten.  It seems it's hidden in many things.  And right now my 4 year olds favorite food is breaded chicken nuggets.  I'm going to be doing some massive research and start the gluten-diet.  It certainly couldn't hurt anything.  I'm a bit annoyed the pediatrician won't refer me to get him tested for other food allergies.  He just told me to eliminate it ( dairy ) and try it.

Maiko-

Thanks for replying. Out of curiosity, what branch is your husband in? Mine is Air Force. What were your children's symptoms that made you ask to get them tested? Were they all having symptoms or just your 3 year old? Your 3 year old sounds like my 4 year old. He was never diagnosed as having IUGR. He was born at 38 weeks and was 6lbs 5oz. My second son ( 3 now ) was born at 37 weeks and I went out and bought preemie clothes thinking he'd for sure be smaller than his brother.. nope. He was a whole pound bigger at 37 weeks. My 4 year old had pyloric stenosis and never gained anything the first 2months and sometimes I feel like he developed a food aversion because I'd feed him every hour-forcing him to get something in his body.

I kept him off of Dairy yesterday-besides a couple bites of scambled eggs that had milk in them. So bfast, he had 2 small sausage patties and that was all he wanted. Lunch he would only eat half a ham/cheese sandwich. Wouldn't eat anymore than that. He got his medicine ( appetite stimulant ) in the afternoon. He ate 8 chicken nuggets for dinner and had a half pb/j sandwich after that. His mood was awful yesterday-as it is right now as I'm writing this. He just finished breakfast an hour ago and it was a cheese danish. He had a lot of bread yesterday. Did anyone notice this kind of behavior when eating these foods all day? He threw a fit in the Walmart yesterday-which he never normally does. He fought with his brother all night last night and is now fighting again.

Well, his doctor gave me a referral to an ENT for my son's sleep issues. He said it sounds like sleep apnea and may need to have his adenoids and tonsils taken out. They took blood at the appt and are going to do a Celiac panel on it. At this point, I just want answers to why my son complains about his stomach hurting and doesn't want to eat a larger quantity of food. My 3 year old can out-eat him most days. The pediatrician isn't as concerned about his weight since he gained almost 3 lbs in a month when he was on an appetite stimulant. My issue with that is what is the plan when we take him off the stimulant and he continues to not have an appetite? I asked about lactose intolerance as well and he didn't order any testing for that. He said I could take out all dairy and give Lactaid milk,etc and see how my son does. My son hates dairy as it is anyway. Always had to force the kid to drink his milk. Hates yogurt, mac&cheese, pudding, ice cream, milkshakes, anything with milk or cheese in it. Anyway, the doctor said the results of the celiac panel would be in about 5-7 days. I will come back and update with the results. I am so thankful for this board and for the people who share the story of their kids and getting diagnosed with celiac disease.